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thleensd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by thleensd

  1. thleensd
    ppm is mg/kg: Open Original Shared Link
  2. thleensd
    Get a new doctor!! As yourself how important a formal diagnosis is. You know your body. Are you convinced enough to go gluten free for life? Even if it's not Celiac, you've clearly found a solution to feel better. If you are still deficient in vitamins... maybe your gut is still damaged and would show on a biopsy? (which most won't do unless the numbers...
  3. thleensd
    I am REALLY careful about what I eat because I'm super sensitive. I'm not getting better as fast as I'd hoped (numbers are fine though), so of course, I'm reading up on a bunch of stuff. Side note: I don't have any allergies, though it seems that I'm not currently able to tolerate corn in any form (gives me an aching gut & constipation). So I'm off corn...
  4. thleensd
    You're lucky to have each other! Understood on the happy/sad sentiment.
  5. thleensd
    Scary.... Reminds me of right before diagnosis when I was feeling faint and pulled over on the side of the freeway. Highway Patrol found me and said I either needed to sit up and drive or call 911. Even if I'd have known the problem, I'm not so sure Mr. Officer would have bought, "sorry sir, I just ingested wheat"...haha.... *sigh* Be careful out...
  6. thleensd
    Wow, really? Where would one acquire ostrich or goat meat?
  7. thleensd
    They found my Vit D deficiency next week (I'm at 18, ref range 30-something). I'm anxious to get started on my D because I'm hoping to get some symptom relief. Vit D deficiency can cause fatigue, muscle wasting, and a whole host of other things including bone and muscle pain. Maybe it will help my insomnia and anxiety a bit too. =D My regular doc said...
  8. thleensd
    Anemia was a huge part of my illness. As a result, I've studied up on iron. My ferritin shot quickly up from 2 to 30 within a few short weeks of going gluten free, but I've had to stay on mild iron. You didn't list any numbers or which tests you're referring to, but a couple of thoughts: the distance between "normal" and "low" can be very slim...one unit...
  9. thleensd
    If I had a quarter of a million dollars lying around I'd open up a garlic Jim's franchise (any takers with bucks in San Diego?) They seem to be doing fine (?) and are looking to franchise. They use rice flour for the bottom of ALL their pizzas (so as not to have wheat flour flying around!) I've eaten there a half dozen times or so when I've been near LA....
  10. thleensd
    To the nay-sayers: Even if GSA doesn't have the funds/ability/market for this, I'd say the more people that are educated, the better! Why not drop a line to company XYZ and tell them that we're here and we're looking for options! You never know what the tipping point will be. PF Changs has a great gluten-free menu and fantastic awareness (at least all...
  11. thleensd
    This is a great article on what exactly happens in your gut: Open Original Shared Link However, I need more info...any maybe some translation! =) Particularly... how long does the effect of ingesting gluten last? I know it damages cells, changes your blood, and can set off a chain reaction of sorts.... but how much damage does a one-time accidental...
  12. thleensd
    Yep...me too. It was one of the final pieces of my puzzle before I was diagnosed. Scary. But reading up on them helped. Also, understanding the science of it-being able to tell myself that it was "just" my body having an inappropriate adrenaline reaction helped. Fall back? prescription anti-anxiety meds. Haven't taken them for months and months...but...
  13. thleensd
    I went to my 2 1/2 month followup with my GI doc yesterday. I'm still under weight and fatigued, however, I'm functional now. I can work, but I fatigue easily and often. I've gone from 5-10% to maybe 50% of my desired energy/activity level. Doc wants me to push myself a little more...but I'm so fatigued when I get home the LAST thing I want to do is...
  14. thleensd
    So, you know when you type "________ gluten free" into google and a list of what other people commonly search for pops up? It's good to know that three are 11,200 hits for: rice chex gluten free. That being said, I've so often run across a really dumb response to a good question. We need a gluten snopes for the little myths or unknowns wandering around...
  15. thleensd
    Totally! "Can you wait a day or two to get sick so we can verify your drugs. Wait, actually, so you can verify them yourself? =D Part 2 - went back today to get the name brand drug instead of the generic, and of course, they didn't have it. They said Tuesday. They asked if I had any allergies--someone has put on my chart: Allergies: Bran Reaction:...
  16. thleensd
    Is this 100 or more topic still up somewhere? I've tried using the search function and can't find it... link, anyone? =)
  17. thleensd
    Thank you for posting this. I totally understand...and it's nice to have this community to tell us to hang in there. I trust it will get better. It is definitely tough to be in a tunnel when you have no idea how long it is or is there is light on the other end (thanks for that analogy!) Best of luck. Hang in there.
  18. thleensd
    Yeah, as much as I like to be the center of attention I'm getting really tired of saying the word "gluten"...So while I contemplate my endless patience in educating the world about gluten and cross contamination and reaffirm the importance of talking to the world about what I CAN eat, I'll vent, too. I went to a memorial service yesterday, and all...
  19. thleensd
    I did a search for "anxiety" to see if any one else has a similar issue. (Minus the throat itching, though...that's a little worrisome). I've been tested for 80-something food allergies, and am not allergic to anything. Not even a little. When I was first diagnosed, I'd been having "anxiety attacks" very much like you describe...interestingly enough,...
  20. thleensd
    So, went to the ER tonight with weird facial swelling ("idiopathic"), and some weird bad gluten-y symptoms that were not hang out at home sorts of feelings. Funny moment: on check in with "triage", "....so, wait, you KNOW you have Celiac, and you KNOW that wheat affects you this way, then why did you eat it?" Really? Yeah, nope. Not on purpose doc...
  21. thleensd
    Disney!!!!! Disney Disney Disney! My little nephew is one of those kids that is allergic to everything: wheat, soy, corn, nuts (deathly to cashews and peanuts), among other things. They went on a Disney cruise last summer, and it was incident free! Disney "gets" allergies and intolerances. (I'll also put in my vote again for how awesome all of...
  22. thleensd
    Ok, question. I know I have Celiac, but I don't know if I have DH... I have had some intensely ichy rashes on my neck/jawline/collarbone area (both sides), and some blistery sort of things which I suppose could be DH...but since I've already gone gluten free....is there any reason why I should want a diagnosis of DH or non DH? If it is DH, won't it go away...
  23. thleensd
    I don't know if they are related, but I did see a vague medical reference that suggested the medical community look further into it to see if there is a correlation. A few years back I was diagnosed with idiopathic hives and swelling. They did a ton of allergy tests and I wasn't allergic to anything. I am under the impression that "nothing" causing it...
  24. thleensd
    How did you figure out this allergy?!? Is there a simple test or was it your own trial?
  25. thleensd
    I find the "gluten free" labeling laws (or lack thereof) so aggravating! If something had trace amounts of peanuts in it, could it be called peanut free?? What is the status of the labeling laws? Anyone?
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