Jump to content

weluvgators

Advanced Members
 View Profile  See their activity

  • Posts

    384

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by weluvgators

  1. weluvgators
    You have SO much going on!! Have you made your own nut/seed milk before? We had to eliminate soy because of issues with it. I am still not sure if my soy issues are to soybeans or if it is simply the seemingly omnipresent gluten cross contamination. My last horrendous attempt at eating soy left me with a gluten type reaction, but I was SO new to understanding...
  2. weluvgators
    Hi, Lynne! Lots of HUGS, Mama!! I struggle to feed my family with three very young, very sensitive kiddos. And, I am quite sensitive myself. We have been at this for a while now, and I still find that gluten cross contamination ends up in my home. Sometimes it is simply from other people coming into my home to help us. And, it is absolutely amazing...
  3. weluvgators
    Our super, super silly DD seemed to start reacting to "oranges" out of the blue when we went really gluten free initially for her. If we are very selective about which orange juice and oranges that we make available to her now, she seems to do well with them. I am not convinced that her issue was with "oranges". On the other hand, I have had a lifetime...
  4. weluvgators
    I am one that has intermittent problems with wines that I have drunk, so I am pretty selective about which wines I will drink. They have been fairly low grade reactions, and I haven't done enough experimentation and research to identify what exactly I am reacting too.. But, I am THRILLED that my Jameson Irish Whiskey tested negative for gluten. I had...
  5. weluvgators
    Yes, our super silly DD has trouble sleeping with any gluten exposure. Her short cycle, very disrupted sleep was a great motivator to help me get us gluten free! Gluten makes her sick. When exposed, she is a "sick" kid, so sleep is very disrupted, and she would often wake up crying.
  6. weluvgators
    Thank you for sharing, everyone! I just cannot believe how hard this part has been for us. It really helps to know that we are not all alone! And, lots of hugs for all of you that can relate to the rotten teeth. UGH!! I hope that we caught this early enough that we do not continue to have such extensive issues, but right now we have some serious problems...
  7. weluvgators
    For me, I recently decided to do the Enterolab screening with genetic testing. But, I had been looking and thinking about it for a long time. And, I had been gluten free for over 1
  8. weluvgators
    Hugs, mama! I wonder often if things will get "better" or even just more "normal". But then life in our home is very normal, and we are learning so much about our health and well-being. I am sorry not to have words of wisdom, and I have those feelings of worry for my kids too.
  9. weluvgators
    Our super silly DD just turned four. She has never consumed a normal amount of gluten because it was apparent from her first bite that it was probably hurting her. We tried some direct gluten consumption a handful of times during her months 6-12. At about 14 months, I began to understand the need for me to provide her gluten free nursing, and I eliminated...
  10. weluvgators
    I found this article and thought it was interesting: https://www.celiac.com/articles/191/1/Cross...ment/Page1.html
  11. weluvgators
    Thanks, Mike, for motivating me to understand more about the food that passes our lips!! I am not a farmer, nor am I suggesting that I understand farming practices. However, I live in the Heartland and am surrounded by mainly corn, soybeans and wheat fields. Today at church I found a gentleman that is a commercial farmer and well educated in farming...
  12. weluvgators
    I don't think that the writings indicate that celiac does cause those things either. But I do think that much writing exists to indicate should you experience these symptoms, consider that gluten may be a trigger. And how does one know if gluten is a trigger in the equation? Why do people seem so averse to letting others experience a gluten free life?...
  13. weluvgators
    I think it is important for people to recognize that there is a lot of medical information out there to indicate that epilepsy and gluten intolerance may be related in some instances. Let's not dismiss the neurological implications that gluten exposure may have for some. https://www.celiac.com/articles/116/1/Epile...ease/Page1.html I think this sentence...
  14. weluvgators
    I do wonder if they tried a gluten free diet. If gluten were causing the seizures, how would they ever know without trying a gluten free diet? Is there a way to diagnose gluten induced seizures?
  15. weluvgators
    Enterolab detected elevated levels of antibodies in my stool sample even though I have been gluten free for some time. Here is a quick timeline our my gluten elimination: June 2006 - started by gluten elimination in home and mainly out with about once/week or less cheats June 2007 - eliminated major source of cheats November 2007 - eliminated major...
  16. weluvgators
    I am finding more information that leads me to believe that anaphylaxis is possible due to gluten. Here are a couple of studies looking at the issue: Open Original Shared Link Open Original Shared Link . There is also information on wiki that discusses it, particularly as it relates to exercise induced anaphylaxis, under both wheat allergy and gluten...
  17. weluvgators
    Here are instructions for using the EZ Gluten test that include the use of surface swabs! Open Original Shared Link I have wanted to test surface swabs, but so far all of my tests have ended up dedicated to my food supply. So, I don't have personal experience using it this way yet, but I would love to hear if anyone else has done it. I want to test...
  18. weluvgators
    Has anyone experienced issues when interacting with other people that have trace gluten in their personal space? Examples I can think of are people with gluten eating pets (like dogs that are in close proximity to their owners) and people that use gluten containing personal products (like hair sprays).
  19. weluvgators
    Well, the germs I am not really concerned as much about. The gluten, however, I want to eliminate!! We have not done hand wash because I don't see how that gets gluten off of the hand. Ugh!! I really want to do experiments! Where is the gluten lab??
  20. weluvgators
    Can anyone elaborate on large diameter stools?
  21. weluvgators
    What do you all do if you find yourself without hand washing facilities? I am amazed at how often my DD finds herself in this situation. Today they were rushed in Sunday school, and she felt like her hands were fairly clean. But I would love suggestions for her to have in her bag for hand washing on the go. Should we just use a baby wipe? This is not...
  22. weluvgators
    Hi! I was hoping for some suggestions to help a super sensitive person after they have been exposed. I do not feel that I am the super sensitive one in our family, but that is because I live with an almost 4 year old that is just so incredibly sensitive to gluten. I try to be understanding, but it feels so hard sometimes. Do you have suggestions for helping...
  23. weluvgators
    Yes, I agree it does sound like an allergic reaction, and that is my current thought for what we witnessed then and there. And I mentioned the eggs because I do plan to test them more thoroughly. We are currently gluten and dairy free with avoidance of soy and corn. There are other foods that individuals in our family eliminate or avoid for their specific...
  24. weluvgators
    Are any of you using packaged non-dairy "milk"? I am getting ready to try the Pacific brand, but was curious what others are using. My hemp milk test results were absolutely terrible. Keila
  25. weluvgators
    I have not yet figured this out, so I try to thoroughly wash the dry beans before cooking. Our local health food store owner has not yet found a bean source that is not on shared equipment. Getting a beans routine down is one of my latest endeavors, but I still have a ways to go. So, if you figure out a reliable source of truly gluten free beans, please...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.