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weluvgators

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Everything posted by weluvgators

  1. weluvgators
    Is it possible that the sudden and severe issue/pain is gas? If I get glutened, even by very small amounts, I can get horrible gas pain. In the past, I have sat on the toilet . . . not producing anything, but wanting to produce something to relieve the pressure. The only thing that helps is staying in a fetal position (really the toilet is one of the most...
  2. weluvgators
    We found relief for our dd's frequent headaches by doing another round of diet evaluation. We had to eliminate the gluten free processed foods to see improvement, and we implemented more stringent food sourcing and washing protocols. For our DD with headaches, it seemed that eliminating the remaining gluten free processed food was enough to give her relief...
  3. weluvgators
    Our family uses them, and we love them. So far, our experience is with the EZ Gluten test, but I hope to use Neogen tests in the future. I have posted here in the past about our experiences with them, and they helped us take some tremendous strides in improving our wellness. Several of our doctors are interested in our results, and I love sharing them...
  4. weluvgators
    I know of an asymptomatic celiac that was picked up through family screening due to sibling diagnosis of celiac. He doesn't always follow a gluten free diet, and it doesn't really phase him. There are low level symptoms that are probably a result of gluten, but they are his "normal" way of being. I kind of understand where he is with his diagnosis. ....
  5. weluvgators
    My kids cannot even eat their own food in the cafeteria without symptoms of gluten exposure. And there is no way that my kids would consider eating the food in a school cafeteria situation as you described. When we were hospitalized, the shared kitchen ensured that there was dedicated space and procedures used for our food preparation. They also implemented...
  6. weluvgators
    We were unable to get a "diagnosis" of celiac disease when my DD went gluten free, as she was NEVER able to tolerate any amount of gluten - she refused to eat it in infancy. A handful of tentative trials from months 8-11 made it obvious that we could not proceed with feeding her gluten - EVER. She is positive for celiac genetics - both DQ2 and DQ8, as am...
  7. weluvgators
    One of our children had a type of eczema that was around the mouth, usually at the corner. It would come and go, just like you describe. For us, figuring out trace gluten exposure better helped it heal and stay away. Chap stick type stuff helped, but it wouldn't go away without better diligence in her diet. Another child seems to get a lip reaction, and...
  8. weluvgators
    I am making my way through Allergic Girl's new book, "Allergic Girl: Adventures in Living Well with Food Allergies", and so far I love it! She has so many great suggestions for handling situations like this with your friends. I thought the trailer for her book was hilarious, if you want to see it: Open Original Shared Link . The book has some specific...
  9. weluvgators
    It is good to hear that he seems to be feeling better. Behavior changes are one of the symptoms that we monitor for gluten exposures (anxiety is particularly telling for us that gluten is a top suspect). We also had a huge run in with crazy antics for one of our kids that seemed to be rooted in hand sanitizer exposure. It was awful, and she was super crazy...
  10. weluvgators
    When we were eating them, my kids did well with Tropical Source chips (as a treat, not a staple - so never daily). They did not do well with Enjoy Life after an elimination/addition study. We have not had any in some time, but the Tropical Source was the last one standing at our house. I would even try them again, as we just phased them out . . . no direct...
  11. weluvgators
    That sounds fantastic!
  12. weluvgators
    Have you considered setting a little potty next to her bed? We keep our toddler potty on a waterproof mat by the bed, and we find it very helpful for the kids when they are little. Sometimes it is really hard to make it far when that urgent need to go strikes. And she may be more inclined to wake and get out of bed if she knows she doesn't have far to...
  13. weluvgators
    We use a kid lunch thermos, like these: Open Original Shared Link , and I am sure there are some other cool thermos and lunch container links. My kids really enjoy the warm lunch, and we use ours most days. We have found them very handy for travel too. I would be lost without the thermos!
  14. weluvgators
    Our school tries to do popcorn parties more often now. They also do ice cream parties (but my kids can't have dairy either). My kids have been attending the party, just bringing their own foods. I try to give them something they really like, but it can be very hard. My kids are younger, and the last pizza party was truly hazardous to my child's health...
  15. weluvgators
    Make the classroom gluten free! That is what our children require to be safe at school, and it is being done. We provide gluten free dough and clay. We double checked the paint, and it was good. Discount School Supply has options for gluten free art and craft supplies. They used rice and beans at the sensory table for our preschooler. Glues have...
  16. weluvgators
    I don't have much time right now, and it will be weeks before I am back to my regular connection. You are not alone. My dd had a horrid series of episodes with this last summer. She simply ate more than usual amounts of "gluten free" food after being on a very strict whole, unprocessed foods diet. It was awful. We were using Zyrtec and Benadryl with...
  17. weluvgators
    Before I ever realized my gluten intolerance, I was diagnosed with idiopathic enlarged thyroid. So my thyroid is much larger than normal. I did have an ultrasound done when it was first discovered, and unfortunately, no one bothered to screen me for celiac or even mention that as a potential cause of my enlarged thyroid. My thyroid levels have always tested...
  18. weluvgators
    Have you checked all of his medicines to ensure they are gluten free? We also have to live gluten, dairy, and soy free, as we found other foods that cause us reactions too. We also have to live very gluten free - a gluten free household, cleaning protocols for anyone that enters our home, modifications at school to reduce environmental gluten exposure...
  19. weluvgators
    We have a couple of family members that have joint pain as a symptom of gluten exposure. We have to be very, very careful in our food consumption to ensure that we eat as gluten free as possible. We have had a horrific arthritic event that appeared to be triggered by more than usual consumption of "gluten free" food for one of our children. We now eat...
  20. weluvgators
    We are planning a trip to Australia and would appreciate learning more about the gluten free culture there. How are restaurants and markets at responding to enquiries about gluten (and other allergen) information? How do you figure out which places you will try? We are also dairy and soy free, so are there recommendations for approaching people about our...
  21. weluvgators
    I am sorry if I have offended you and others by sharing my family's experiences with gluten intolerance, and I am sad that you feel I have been irresponsible. This has been a very difficult and exhausting journey for our family with many medical consultations, a couple of hospitalizations, and an enormous amount of work involved to achieve, maintain, and...
  22. weluvgators
    I have witnessed systemic inflammatory reactions in my children that have been traced back to airborne gluten exposure. Eliminating the sources of airborne gluten exposure eliminates the systemic chronic inflammatory response. There are lots of arguments for how my family may have "gluten allergy" in addition to "celiac" . . . but we are also a family that...
  23. weluvgators
    I forgot one of the details of our past two years troubleshooting school . . . eliminating almost all processed foods from their diets. There was definitely some "gluten free" foods that were being packed in our DD's lunch last year that did aggravate the "school" situation. We now pack whole foods items that are washed and prepared in our home. . . we...
  24. weluvgators
    Hey, Muffy, we have to work really hard to keep our kids safe at school, so I thought I would share what is working for them. The classroom should be gluten free - period. Give me specific examples if you feel that this is not feasible, but I think it should be. Encourage hand washing and tooth brushing (if you can!) for all of your students. We run a...
  25. weluvgators
    We have had to push for gluten free classrooms for our children. Our pediatrician sent a letter stating that they have suspected gluten intolerance and should be provided a gluten free classroom at this time. We have since had a more strongly worded letter from our dermatologist saying they have gluten intolerance and must have a gluten free classroom....
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