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weluvgators

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Everything posted by weluvgators

  1. weluvgators
    Yeah! I found a more elaborate summary of the article by one of the authors, Tricia Thompson, here: Living Gluten-Free by Tricia Thompson, MS, RD, The Gluten-Free Dietitian Subscribe to this feed Subscribe Contamination of Naturally Gluten-Free Grains posted @5:00am ET on June 1, 2010 Open Original Shared Link There is some great...
  2. weluvgators
    One of my children has the really, really bad breath following gluten exposure. It is one of the ways that I monitor how we are doing with our diet. It is a distinct odor, for sure, and I would love to better understand exactly what that odor is. In the meantime, when I smell that dank breath, I know that we better review what she ate the day before. ...
  3. weluvgators
    We do something similar, visual inspection with a three wash procedure - we just do not use soap. I think soap would make the wash procedure more effective, but I just cannot do it . . . yet. And I am trying to improve our visual inspection process. It is just part of our routine now, and my kids are loving the pancakes, cookies and cakes!! We had to...
  4. weluvgators
    Are you asking about the home tests for gluten? Our family loves them! We were testing regularly, especially as we had to make many diet adjustments based on our initial testing! It was quite shocking - the whole experience. Even calling companies with positive test results in hand is interesting. My experience with contacting the University of Nebraska...
  5. weluvgators
    Thank you for sharing such valuable information with us! The Canadian Celiac Association specifically calls out lentils for some reason, It looks like they have updated their site recently too - I like it! Open Original Shared Link We dropped lentils a long time ago, but it would be so nice to figure out a way to test clean lentils in our diet...
  6. weluvgators
    We had to adopt a gluten, dairy and soy free diet to get better. Even with all of that, we still struggled with bellyaches often. We seem to have gotten on top of it by really digging into gluten cross contamination issues and home testing of our food for gluten. But our super silly girl has quite a sensitive belly. Our pedi gi says that many of her...
  7. weluvgators
    My mom has been amazing and makes her home gluten free when we visit (she is now mainly gluten free). She continues to bake gluten bread in her home, so she now abandons all flour activities 48 hours prior to our arrival. We have to travel to get there, but we do come a few times a year. My dad is an awesome cook for us and safely makes us food when we...
  8. weluvgators
    If only it were *just* the kids! One of my examples was from other mothers at my daughter's school party! They threw a big party, but had no provisions for my child. Since I didn't want to add another "isolated" day to her school experience, we brought our own party to share. I established our gluten free serving space, but I was the only *safe* food...
  9. weluvgators
    Well, my introduction to the gluten free world is slightly different than yours. I have a daughter that had obvious, systemic, and permanent damage from seemingly incidental gluten exposure in infancy. I was managing a household with her (at 14 months when the rest of us went gluten free at home) and her sister (only 2 1/2 at the time). A mixed household...
  10. weluvgators
    We do eat in the presence and at the same table as gluten eaters (assuming that we can establish protocols to ensure we can safely eat). "Isolation" is a protocol description that involves defining the parameter of the gluten free space. It is part of our little checklist that we go through to make sure that eating is safe. If we bring gluten free food...
  11. weluvgators
    I use the term "isolation" to define the necessary step needed for us to safely eat in shared spaces. To "isolate" means to define a boundary of what will remain gluten free. This is critical in shared spaces where we plan to eat. When my daughter sits at her desk and eats her food from a different place than anyone else in the room, it is isolating. ...
  12. weluvgators
    Yes! Our super silly girl has had extensive teeth problems, and the staining on her teeth was one of our first clues as to the serious nature of her celiac issues. Unfortunately, we have yet to find a dentist that understands the issues. It is truly awful, in my experience. While I feel that dentists should have been a first line notification and alert...
  13. weluvgators
    Yes! I pull it off of the Fact Sheets that the University of Chicago publishes - I love these: Open Original Shared Link And it is quoting the statistics identified in: Source: A multi-center study on the sero-prevalence of celiac disease in the United States among both at risk and not at risk groups. Fasano et. al., Archives of Internal Medicine. February...
  14. weluvgators
    Yes, Yes, YES! I look to support groups to help me work through the issues *before* I am in a situation and sometimes to help me develop my Lessons Learned! And when I first went gluten free I was just so grateful that *I* didn't have to figure out that cross contamination thing. Well, life has a funny way of teaching me, I guess!! But I have been...
  15. weluvgators
    A 2003 study indicates that 41% of adults and 60% of children are asymptomatic. I consider myself as asymptomatic before going gluten free. Hindsight gives me a slightly different perspective on my asymptomatic status, but there was nothing alarming or intolerable in my life. I was considered healthy and well by all. The symptoms that I now experience...
  16. weluvgators
    I have struggled with similar feelings of stress and strain as our family has learned to live our gluten free lives. I have often thought that counseling would be very helpful, and I have used some counseling to work through some of the issues that have come up. But I do get frustrated that *experienced* counseling is not readily available. I have counseled...
  17. weluvgators
    I think you are doing a fantastic job of honoring your needs. And, realistically, I understand how hard it can be for others to understand our needs. It wasn't all that long ago that I had no idea about most of the stuff that I now understand about gluten, gluten intolerance, celiac and cross contamination! I think about the craziest, most mundane, yet...
  18. weluvgators
    I would appreciate any links that you have about this. For one of my children, she exhibits the stuttering as one of her symptoms with very slight exposure. In trying to understand it all, we suspect it is a function of gluten impaired motor skills - probably both fine and gross. Thanks for any info you can dig up for us!
  19. weluvgators
    You may want to start educating your doctor! My latest reading is Fast Facts: Celiac Disease by Geoffrey Holmes, Carlo Catassi, Alesio Fasano, Second edition. I bought the book specifically to give it to my doctors. In the Clinical manifestations section it has the following information on page 48, I think your doctor may need to update his...
  20. weluvgators
    I have a husband, a father, a mother, a brother and an aunt that have all TRIED to get tested. My husband MAY have gotten the correct test on his THIRD attempt (and only because he had been really sick for months at that point). We haven't gotten those test results back . . . so I have no idea if they finally ran the right ones or not. My brother's doctor...
  21. weluvgators
    Our house went gluten free for our second child when she was 14 months old. At the time, I did it because it was just easier since her older sister was so young too (2 1/2 years old at the time). No one else in our family had *any* suspicions of any gluten intolerance and/or allergy when we made the decision to have a gluten free house for our one child...
  22. weluvgators
    Have you looked much at biopharmaceutical processes and manufacturing of biopharmaceutical therapies? Many of these therapies target autoimmune diseases. These therapies (usually injectable) are manufactured using nutrient solutions (also called "media") that may be derived from wheat. Open Original Shared Link Open Original Shared Link ...
  23. weluvgators
    Hey, Becky, We have been troubleshooting hand eczema/dermatitis in our gluten sensitive child. Her hands get itchy, swollen and red. It is terrible. Her symptoms are specific to school and gluten. We were recently at the dermatologist trying to get help. We have done topical steroids off and on trying to manage it. In a strictly gluten free environment...
  24. weluvgators
    What didn't get shipped to France? Those are the items that I would be giving another look and elimination/addition trial. We have been able to identify lingering contaminants from seeing improvements during our travels and figuring out which of our "normal" foods had been eliminated in the travels. I have no idea about the TJ's rice milk. We have never...
  25. weluvgators
    Hi, Jason, My family used to drink hemp milk until we tested it at home. And then tested it again and again because I could not believe the results - POSITIVE for gluten. After dropping the hemp milk from our diet, we further resolved some lingering health issues. I have tested two different brands of hemp milk, and they were both positive for gluten...
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