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weluvgators

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Everything posted by weluvgators

  1. weluvgators
    From your list of foods, you seem to be trusting food manufacturers a fair amount. There is gluten in an unfair amount of processed food. They are considering regulating it at 20 PPM. My family gets sick at levels well below that. *AND* that recommendation is based on a study that accounted for only a *portion* of the daily diet as being from "gluten...
  2. weluvgators
    We supply each of our children's classrooms with gluten free play-dough and new tools. We have bought our stuff from Discount School Supply: Open Original Shared Link . We still have strict protocols in place when working with the gluten free doughs because all of the "gluten free" play doughs that I tested were positive for gluten. In testing my third...
  3. weluvgators
    We have struggled to understand what a *truly* gluten free diet is for our family. We seem to have some exquisitely gluten sensitive tendencies that can be quite difficult to manage. We took our entire home gluten free when we started on this venture because it was too hard to do it otherwise with such young children. Since then, I have come to recognize...
  4. weluvgators
    We have some similar experiences with our kids. Our second child had the most obvious problems as a baby, and she is the reason that we went gluten free. It is sometimes frustrating because she has NEVER been able to eat gluten directly. So the conventional diagnostic tools are extremely limited, even if ignoring how poorly the current diagnostic tools...
  5. weluvgators

    Community Member

    1. catsmeow

      catsmeow

      Hi friended you because I have a severe wheat allergy and respond violently to airborne wheat exposure. I could have written some of your posts. In the past few weeks I was diagnosed with Celiac as well, by my doctor. We will be doing a genetic test soon to confirm it. (((((hugs)))) Airborne wheat is making my life so difficult. I cannot imagine being a kid and dealing with it.

    2. catsmeow

      catsmeow

      I have found a solution to my airborne allergies. It's Zantac. Weird huh? The doc said it is a histamine 2 blocker, histamine 2 is made in the stomach acid. Apparently, there is a link between food allergies, asthma, and stomach acid. Anyway, I wrote a long post about it if your interested. It's titled "wheat allergy" and it is posted in the coping section. Maybe Zantac will help your child. I have not had an airborne reaction since the doc put me on it last week. It...

  6. weluvgators
    Hugs, Mama! It IS difficult. I know all too well the struggle it is to keep a young child healthy and well, especially when dealing with celiac and other food allegies/intolerances. We have had experience with fevers as reactions to both gluten and dairy. My middle child had several instances of high fevers overnight that did not result in any illness...
  7. weluvgators
    We have safely eaten at Chik-Fil-A several times and appreciate that they serve both breakfast and lunch. We try to avoid travel on Sundays since that eliminates them as a choice for road food (they are closed on Sundays). Different restaurants have different policies on being able to order the salads without cheese. We really appreciate the restaurants...
  8. weluvgators
    It will be interesting to find out what the biopsy shows! I have three symptomatic children. My middle child was our first alert to the issues we have with gluten, as she has never tolerated any. I did not understand the extent of our sensitivity when we started our gluten free journey, but we have never in her life been able to do a gluten challenge....
  9. weluvgators
    Oh, HUGS, MAMA! I know how hard this is!! And it is incredibly hard to find the support and resources that you need to sort your way through the probably multiple things that may be contributing to your DD's ills. I have extensive experience with just this sort of thing, as I am working with my three young children. I wish that I could help you more,...
  10. weluvgators
    Hugs! You CAN DO THIS!! I use magnesium supplementation to help with twitching, and I find that gluten exposure makes my magnesium demand very high. I use Epsom salt baths and a magnesium/calcium drink. As for cheaper foods, how are you with rice and beans? My feelings of light headedness seem to relate to low blood pressure and/or low sugar. I find...
  11. weluvgators
    Trying to figure out my DD's dark eye circles was driving me crazy! We changed up several things, including getting new pillows, trying to reduce environmental loads, having her drink more water . . . I just could not figure it out. And it seemed to be something that she was eating, but I couldn't figure it out. Then I started to understand the prevalence...
  12. weluvgators
    The last time I spoke with Kettles (6 weeks ago or so), they informed me that they are now a gluten free facility! They discontinued the one flavor they had that had gluten in it - YEAH!! I did report that we were having trace gluten issues with the Salt & Vinegar flavor, but there was no follow up to that report. We discontinued use of that one and...
  13. weluvgators
    Thank you so much for helping me figure this out. Have you found any websites or such where I can get ideas to incorporate into play for my kids? I do provide the kids with some general supplementation, and we eat an amazing array of good, whole foods. But we seem to all be fighting our way out of nutritional holes. This has really motivated me to do...
  14. weluvgators
    I am simply trying to research to help find health and wellness for my family. My name is Keila, and I have three amazing children: Jane (5.5 yo), Helen (4 yo) and Ross (20 mo). Helen was "easy" in the sense that her issues with gluten were obvious, and she is the reason that we went down the gluten free road. I once lived in a fantasy world of: "well...
  15. weluvgators
    Hugs, Mama! I had my awakening *because* of my daughter. And now, I pray that my parents will have their own awakening. I find it difficult when seeing family members that are afflicted with symptoms that do not want to learn more (much less get tested, even worse they seem to want to *beat* the test - aka reducing gluten consumption because they realize...
  16. weluvgators
    We are very sensitive, but none of us were in medical crisis when discovering our gluten sensitivity. And while I do have some incredibly sensitive testers, there is always room for discrepancy in our testing methodology (observation of symptoms is our primary method). Some of our snacks: baby carrots with poppyseed dressing, we have been using...
  17. weluvgators
    This discussion is SO interesting and helpful for me and my family - they are *just* little kids - KWIM?? And, I feel terribly uncertain as to whether I am welcome to participate in this discussion, as my last post to this thread simply seems to be gone. Thank you very much, Sylvia, for posting here. You are sharing such valuable information! So...
  18. weluvgators
    Yes, I am troubled too, as I cannot even access the last PM that I received. It seems that I no longer have any PM privileges.
  19. weluvgators
    Thanks, Scott! Has it always been that way, and I just never noticed it? Or is it something new that was incorporated? And why can I not PM people that I have previously contacted here? And do I understand correctly about getting errors when trying to PM people that are new here, that they must be in the "Advanced Members" group? Sorry I am still...
  20. weluvgators
    I am getting a lot of errors with private messaging today. Can anyone help me figure out why it is acting so strange? Specifically, it errors when I have tried to return a message from older discussions with people here. And then I am getting an error saying that I cannot PM again for an hour. But I am not even getting a PM out. I think I understand...
  21. weluvgators
    I understand this way of thinking. I spent quite a bit of time chasing other foods and NORMALIZING my low level trace reactions. In the end, I came to recognize that I needed to do the gluten elimination better. I have the benefit of having three super sensitive kids that have not normalized what gluten does to them. They also have other food issues,...
  22. weluvgators
    I really understand your frustration! There are a few things in your list of foods that we do not consume because I sm not confident that they would be gluten free enough for us. Some of the items on your list are ones that we consider as gluten contaminants in our diet, but it is hard to find stuff that is truly, honest to goodness totally gluten free...
  23. weluvgators
    CC is Cross Contamination. We have come to understand it better than I ever wanted. Fortunately?, we have a DD that is so obviously reactive that we are very motivated to be Gluten Free. However, it was easier for me to understand and convey an adult message when I came to realize that *I* could tell when we were getting Gluten CC. As my daughter has...
  24. weluvgators
    Hugs, Mama! It IS hard!! We have three young, super sensitive children, and it is difficult to navigate. We have also had to eliminate many foods that *should* be safe, but they are not. We have had to eliminate several foods labeled gluten free because a 20 ppm threshold is not an effective way for us to manage our gluten sensitivity. We have had...
  25. weluvgators
    I was asymptomatic when I embarked on the gluten free diet. I started my diet changes in an effort to help my obviously gluten intolerant child who was nursing. The first year that I was trying to be gluten free, I was able to cheat regularly without obvious personal issues in my health. Then I quit cheating once/week and had minor cheats on very rare...
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