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Latest Celiac Disease News & Research:
Everything posted by weluvgators
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ARCHIVED Candy For A Party
weluvgators replied to GFreeMO's topic in Parents, Friends and Loved Ones of Celiacs
We love smarties, and dum dums work well too. They often have great facility information disclosures on their packages. We are going to try bubblegum this year (double bubble)! We also like to include mechanical pencils, fancy pencils (flames, camo, flower, etc. prints), stickers, erasers, post-it notes, highlighters, bubbles, whistles, costume/play jewelry... -
ARCHIVED Hand Washing Alternatives At School
weluvgators replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
Another thought to help accommodate the difficulties of handwashing in some circumstances is to eat only foods that you do not touch. This can be achieved by utilizing spoons, forks, toothpicks or even food wrapper/packaging. My kids do not use shared stuff at school, as we cannot rely on the necessary handwashing to occur (so, for example, my kids use... -
ARCHIVED Gluten Free Playdoh?
weluvgators replied to shayre's topic in Gluten-Free Foods, Products, Shopping & Medications
We used Colorations from Discount School Supply and are happy with it. We also got new tools for their classes, as our children are super sensitive. We also have good cleanup protocols in place for using it, especially good hand washing before eating after playing with it. -
On our trip to Australia, I became much more aware that glucose syrup may be derived from wheat (they had fantastic labels that declared "glucose syrup (wheat)" on their products there. Now, I think it is generally assumed that glucose syrup in USA is sourced from corn, but how would we know? As a super sensitive celiac that also has gluten allergy with...
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Thanks for sharing this! Do you carry antihistamine for emergency, and/or use one regularly? If so, which one(s)? Do you carry an epi? Have you had to use an epi yet? I would love to hear more specifics about your Emergency Action Plan, if you can share the details. We continue to struggle to find antihistamines for our Emergency plan. Also, are you...
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ARCHIVED Cracking Skin On Fingers
weluvgators replied to Greg Rappaport's topic in Dermatitis Herpetiformis
I would be curious as to the ingredients of your fish food. And, if the food you use does have gluten, how careful are you being in handling the fish food and cleanup after? -
ARCHIVED Omg I Just Had Vinegar In My Chicken Salad Im Itching
weluvgators replied to Flasaltwater's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Where did you find information that "vinegar" in the US is apple cider vinegar? I looked up Hellmann's mayonnaise, and it lists "vinegar" in the ingredients. The Best Foods website says, "The vinegar in Hellmann -
ARCHIVED Celiac And Joint/bone Inflamation
weluvgators replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I replied to another thread of yours about fingers . . . then jumped to this one not knowing it was yours at first, but the joint/bone inflammation title got my attention. I have a child that has two hospitalizations to date due to idiopathic joint inflammation (following a stupid "adventure" with processed "gluten free" foods . . .sigh). We are a super... -
ARCHIVED Cracking Skin On Fingers
weluvgators replied to Greg Rappaport's topic in Dermatitis Herpetiformis
There is another hand thread here kind of related to this sort of thing (in my mind anyway) . Unfortunately for my children, this started to present upon commencement for each of them in school. They had been gluten free for years before starting school, and starting school was the first test of their "tolerance" to environmental gluten. They had... -
ARCHIVED On The Topic Of Buying Fruit/veggies
weluvgators replied to Newtoitall's topic in Super Sensitive People
I haven't understood that most celiacs are healing and get well in our current understanding of the celiac disease process. I thought that most (is it all? I can't remember . . .) celiacs continue to show villi damage, even on a gluten free diet, although they are typically in improved villi condition compared to their diagnostic state. I thought we had... -
ARCHIVED A Friend Of Mine Who Works At A Pizza Joint Just Found Out They're Coeliac.
weluvgators replied to kellynolan82's topic in Coping with Celiac Disease
Instead of "quitting his job", I think he should simply find a new one! I just don't think his current job is compatible with his health condition. I found several cool jobs when I was at University, and I hope that he finds something he loves even more in his search! And, I am now terribly sensitive to airborne gluten and would never want to subject... -
ARCHIVED Burger Joint - Gluten Free Buns - Same Toaster?
weluvgators replied to kellynolan82's topic in Coping with Celiac Disease
When we traveled to Australia, we found some difficulty in finding restaurants that understood the finer details of "gluten free" food preparation. One of our first stops, I was excited to see that they offered gluten free bread, and we ordered some. They then proceeded to toast it in the shared toaster oven . . . sigh . . . but then one of them realized... -
ARCHIVED Looking For A General Doc Near San Francisco
weluvgators replied to Jenniferxgfx's topic in Doctors
We are using HealthNOW, and we love Dr. Preeti! We have made tremendous progress in coping with our gluten intolerance since starting our work with them a year ago. We had to fly in to see them, but they have been so very helpful. If we lived anywhere near there, I would be seeing Dr. Rupa too - she was awesome for helping us assess and overcome some of... -
ARCHIVED Hand Washing Alternatives At School
weluvgators replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
We make our own cloths, and the girls pick out fabrics and threads for their stuff. For napkins and washcloths I like using velour, jersey or flannel. I bought some bamboo velour in bulk that I love. I serge the edges in different colors of thread, often using wooly nylon type thread. Some of our cloths coordinate with placemats that I also made. Flannels... -
ARCHIVED Hand Washing Alternatives At School
weluvgators replied to SilverSlipper's topic in Parents, Friends and Loved Ones of Celiacs
My girls wash their hands with their own soap before eating at school. They prefer to wash their hands, and generally their classmates are encouraged to also wash hands. We ran into a problem on one day because they were coming from music class to lunch, so we worked with the girls to help make sure that hands were getting washed on those days. We have... -
ARCHIVED Well It's Happening
weluvgators replied to sandsurfgirl's topic in Coping with Celiac Disease
Celiac and food allergy can qualify as a disability with an American's rights protected under the ADA. "An individual with a disability is defined by the ADA as a person who has a physical or mental impairment that substantially limits one or more major life activities, a person who has a history or record of such an impairment, or a person who is perceived... -
ARCHIVED Well It's Happening
weluvgators replied to sandsurfgirl's topic in Coping with Celiac Disease
We have been running into more "no, we cannot accommodate you" attitudes as well. It is an interesting and complex issue. It seems that a celiac / food allergic person's rights should have some protection under the ADA. In "A Guide to Disability Rights Laws" here: Open Original Shared Link is ADA Title III: Public Accommodations, and it applies to restaurants... -
ARCHIVED Australians And New Zealanders Hellooooooo :)
weluvgators replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
In our experience, it is best to minimize food brought into the country (we took a month long trip to Australia, landing in Melbourne). Any sort of produce is absolutely out, even if dried. They had no problem with us bringing in our candy. In our experience, it is best to bring in nothing. I am looking for some information about whole grains and beans... -
When we travelled to Australia earlier this year, I was a bit shocked to find gluten free labels on some of the imported food. I noticed one manufacturer had a "wheat free" label on their product instead of the "gluten free" label that they carry on their American package, and I wondered if that was a way to avoid the "gluten free" Australia regulations...
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ARCHIVED Food Testing For Gluten
weluvgators replied to pgrovetom's topic in Coping with Celiac Disease
We made tremendous strides in our health and wellness by utilizing home testing kits, and I have made past posts on my experiences. I think about what/when/how/where I will eat more often than most, and I am good with that. Yes, it is difficult and a struggle sometimes, but I am so grateful to have gained such an understanding into our diet, health and... -
ARCHIVED Any Connection To Celiac And Urinary Urgency?
weluvgators replied to concernedmamma's topic in Parents, Friends and Loved Ones of Celiacs
Frequent, urgent needs to urinate are a common symptom of gluten exposure for 2 out of 4 of the gluten intolerants in my family (the two with the most "classic celiac" symptoms and genetics). Cross contamination can trigger a bout of frequent, urgent needs to get to the toilet for us. I am still trying to understand it better, but I think my bladder might... -
ARCHIVED How Do You Stay Sane?
weluvgators replied to Mummyto3's topic in Parents, Friends and Loved Ones of Celiacs
Big hugs, Mama! It IS overwhelming!! I have three little ones and all are gluten super sensitive. We came to our gluten knowledge because of our middle child, and it has been a huge learning curve for our family. At times, I have felt like I crash landed in the gluten free world. We just don't have any choice but to be super duper gluten free. It has... -
ARCHIVED Daughter Going To Kindergarten. Help1
weluvgators replied to divamomma's topic in Parents, Friends and Loved Ones of Celiacs
We have had a learning curve when it comes to school. We have two daughters that are one year apart in school - now entering 2nd and 1st grade. It is a struggle, especially as we faced many gluten related health challenges that were rather unexpected. We appear to have gluten/wheat allergy in addition to our celiac condition (for all of our children and... -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
weluvgators replied to CNV2855's topic in Coping with Celiac Disease
We have eaten at Wendy's several times over the past few years of being gluten free, and we always have to ask about the fries. We stopped there for a very early lunch one day and were delighted that the french fry fryer had just gotten a fresh batch of oil, so we ate the french fries that time. We have also stopped at one that had a "dedicated" french... -
ARCHIVED Help / Support For New Mom.
weluvgators replied to Helene's topic in Coping with Celiac Disease
Welcome, Helene! Our family has gotten a crash course in the many different ways that gluten intolerance may manifest, thanks in large part to our super duper silly girl. While our more "classical" celiac child was our introduction to gluten intolerance (thank goodness!!), it is her mother, sister, and brother that also suffer from the more insiduous symptoms...