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jadobson

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Everything posted by jadobson

  1. jadobson

    Happy birthday and may God bless you today!

  2. jadobson
    I think you have a legal right. Since Celiac effects eating, a life necessity, the school has to if requested provide your son with a gluten free meal. Try looking under Americans with disabilities act and maybe request a 504. You might also try having a doctor write you a note saying that your child suffers from Celiac and would benefit from the use of...
  3. jadobson
    Try shopping at Walmart. They label their brand of foods Gluten-Free if they are. They are even stocking gluten free pasta, brownie mixes, muffin mixes, and waffles in our area. Some of our staples are corn tortillas with beans and cheese. However, since he's pretty torn up dairy might not work for him. For snacks Trix is good along with the usual fruit...
  4. jadobson
    Here are some of my family's favorites- 1 adult, one teenager and one 5 year old all celiac with 2 non-celiacs that have to eat with us : Amy's pizza-found at whole foods or local health food store, ask if you don't see it they maybe able to order it for you. We add toppings to it ourselves to make it to our favorite pizza. Pamela's baking mix, chocolate...
  5. jadobson
    For the pan check Bed Bath and Beyond. or we have a place in our outlet mall in AZ called Kitchen Collection not sure how common those are.
  6. jadobson
    Wow, I can imagine how joyful you were. We live in AZ, but just came home from Celiac camp in TX this summer. The camp was called "The great gluten escape" It was paradise, my son and I loved it and will be back next year. It is supported in part by the Dallas R.O.C.K. group. There was a bunch of wonderful ladies there that live in that area and have...
  7. jadobson
    We liked Dr. Scheikein (? sp) who is over at Dobson and the US 60. She seems only pediatric. She was nice and explained things in normal terms not all doctor terms. Also there is a doctor that is part of Phx Children's hospital that treats out of an office near that same building. I can't remember her name, but she was ok. She was alittle upset with...
  8. jadobson
    I just wanted to put my 2 cents in. I agree wait until the lab results come back then go gluten free. We too did not bx and I have never regreted it. The doctors agreed after seeing him grow and gain weight that he was celiac. Mind you it took a few years, but they all agree and my littlest child is now doing the same thing at 5 yrs. so we are doing...
  9. jadobson
    I totally agree with talking to him now and the shirt would be a neat thing for him. My son is 12 and I didn't think he'd think it was cool so we never got him one, he recently saw them in a magazine and now wants one. They have hats too. I want to say it was www.celiac.com that has a cute one with a skateboard. Since it is your sister in law you could...
  10. jadobson
    We to are sending our oldest to camp for the firt time this year too. However, we did some research and found a camp just for Celiac disease, so that I didn't have to worry about the food. It'll be fun to come back after camp and discuss the pros and cons of each. If your interested it is Open Original Shared Link. My husband has family in Texas so that...
  11. jadobson
    Don't bx. We too had similar issues. I chose not to bx as we don't respond to anesthia very well. Within a few months he had gained some weight and I could easily see the difference. Our doctors agreed to label him with it without the dx based on the increase weight and dispostion. Go with your gut feeling. Mine was no bx was needed when all it would...
  12. jadobson
    We like the Pamela's chocolate cake mix. Very similar.
  13. jadobson
    Never go against yourself. You do not have to have him go back on gluten. My son had troubles too, not as bad, but troubles. We have been gluten free for 5 years (now 78 pounds heavier). We too didn't have the greatest set of GI's. It was my insistance to vist an endcronologist who caught what 3 GI's hadn't. He too had pos. high antiglidin antibodies...
  14. jadobson
    We avoid it all together. We go to Chucky Cheese and let the kids play. We have brought in our own pizza, since it's gluten free, and they always smile, we've developed a repatoir that now they even know my son by first name and don't stop and ask anymore. It's also nice as the rest of the family can get the "real" thing. If you must have candy buy a...
  15. jadobson
    I fully understand the limited budget. What we have found is that it's much cheaper to make our own bread. My son has his own bread machine so that there is no worries. We bought a cheap Walmart one for around $30.00. We have a great bread book by LynnRae Ries called Delicious Gluten Free-Wheat Free Breads. Here is the link Open Original Shared Link....
  16. jadobson
    Something to think about is could it be all the soy. My son has Celiac and is also allergic to soy something we had no clue about until a blood test.
  17. jadobson
    I've so been there. What helped me is once I finally found recipes that would work I made extra and froze them for that night when I just needed to order a pizza. I also learned that it was ok to buy gluten free things pre-made occasionally. With our limited income we learned, quickly what I could make and what I could buy. If no one eats it, it's a waste...
  18. jadobson
    Thank you soo much these sound wonderful. Perfect for an afternoon snack at daycare. Julie D.
  19. jadobson
    You all have been soooo very, very helpful and encouraging. Thank you for the link that is awesome I can tell the healthfood the item #'s and hopefully get it local. I had never heard of a traveling communion kit, but that would be great to get and I'm going to look out for that. I just can't thank all of you enough. It is a Baptist church so I don't...
  20. jadobson
    Hello all, After some great time away from church, myself and three children, are returning back. I'm wondering how any you approached the church in regards to communion? Both my son and myself have had pos. blood test results, but due to neg. reactions to anesthia we can not do biopsy's. Any suggestions for the approaching the subject with the church?...
  21. jadobson
    We too refused the bio. However, after being on a gluten free diet my son is much happier and has finally gained some weight. It has been wonderful for us. I think you have to think about how difficult it is to be on the diet and what the pro's and con's are of staying on the diet for a while and seeing if there is any differences. Our doctor has labeled...
  22. jadobson
    Safeway brand used to be, I haven't double checked lately as we just make hot chocolate using hershey cocoa. But if you contact Safeway they have in the past emailed me a list, of which I can't find currently. Julie D.
  23. jadobson
    Have you tried a different bread receipe? There are a few good books out there that have some good receipes. Julie D.
  24. jadobson
    I've so been where you are at to some degree. Our son was 34lbs and 7 years old. To make a long story short an edcronologist find his blood work abnormal and reffered us to yet another gastro doc. She couldn't see us for 3 months. I too did the research and put him on a gluten free diet. Less than a year later when I was bringing my daughter in for similar...
  25. jadobson
    I love that idea. My family all loves rice krispy treats, and maybe the house would get eaten instead of wasted, as the gingerbread never gets eaten. LOL Thank you so much for sharing. Julie D.
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