mamaw
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Latest Celiac Disease News & Research:
Everything posted by mamaw
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Anyone have a head's up for Grand Rapids, Michigan? thanks
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ARCHIVED Celiac Camp Counselor
mamaw replied to Abby P's topic in Gluten-Free Recipes & Cooking Tips
I freeeze lasagne often....no problems,. Kareng, I use this recipe too!!! I sometimes use crumbled turkey bacon or crumbled chicken in it to make a changeI also add a dash of hot sauce..black olives work too...Salsa is another fav to change it up... -
ARCHIVED Have I Been Diagnosed?
mamaw replied to Spartan89's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
speak with the doctor (holistic) who had you start the gluten-free diet. Show him what is expected , a copy of all you posted here & maybe he can fudge some of it or as a doctor write his own statement & you could see if the school is willing to accept his statement... -
ARCHIVED Celiac Camp Counselor
mamaw replied to Abby P's topic in Gluten-Free Recipes & Cooking Tips
Make a pan of lasagne,freeze it in portions, chili,spaghetti & meatballs,gfmac & cheese,tuna, chickenfrom Bell & Evans,Starfish nuggets,taco meat frozen in portions, Sloppy joe frozen in portions.. I would take protein bars,snacks peanut butter, crackers,tortilla chips, hummus,beef jerky,pepperoni& cheese bread,buns,... -
ARCHIVED Rye Bread Or Should I Say Mock Rye Bread
mamaw replied to Chrissyb's topic in Gluten-Free Recipes & Cooking Tips
the three bakers has a ready made good rye bread if you don't want to make it.. -
I chuckled at your comment of( "over re-acting).. I think as humans we think of the worse & hope for the best... The more serious you are at the beginnning the better you will be at the end ... CC is big anywhere you eat out but salad bars have tons of CC. Maybe you should have spoken to the mgr &asked if you could have...
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ARCHIVED Lack Of Energy And Constipation.....still....
mamaw replied to raea2002's topic in Coping with Celiac Disease
You want your B-12 to be around 1100 usually. I take weekly injections.I started out with tablets, then to monthly injections now weekly...plus check Vit D,Thyroid testing not just TSH... A1C, Glucose calicum for starters. Miralax & mineral oil are good to have on hand for the Big C, not habit forming if natural things like prunes... -
I have two kids in the family that are celiac... one dx'd at 21/2years with a scope.The other later but both have managed to get through school parties, birthday invites at Chuckie Cheese, school dances, sports event, banquets & so on.. If we make our kids feel different or not like everyone else then that is how it will be to...
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ARCHIVED New To Gluten-Free Diet - My Story And A Few Questions
mamaw replied to GFchic12's topic in Coping with Celiac Disease
Good advice above... I would think a total blood work-up is in order as well...VitD, B-12, calicum, thyroid, A1C, glucose to name a few.. Your blood can give great insight...Also do the total celiac panel...look up salba seeds a good product... I too suffwer from theBIG C .. No issueshtere just chronic C...It isbecoming very common.. Allergeries... -
ARCHIVED Need To Vent, Having A Hard Time
mamaw replied to sharilee's topic in Coping with Celiac Disease
Venting is good! Way better than taking off someone's head! Sometimes out of the blue we all get food deprived or feel food deprived & we react by sadness or anger.. The gluten-free diet is not just a diet but a life style change forever..Not convienent either.. Food deprivation is REAL .. We all need to keep a gluten-free goodie... -
Just because a product is organic does not mean it is safe for celiac people.. The only oats that are safe are the certified gluten free oats... ie: Laura's gluten-free oats,Bob's Red MIll. Pure gluten-free oats & so on.. Plus if a person is just starting out on the gluten-free lifestyle it is not good to use oats until the intestinal...
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ARCHIVED I Can Not Believe I Felt Like This And Functioned For Years!
mamaw replied to cahill's topic in Coping with Celiac Disease
Hi Chill sorry for yet another bad reaction... I hope you feel better soon.....I have still some issues when I can eat a food by itself add iit another food & get ill.. Its like Russian Roulette at times... hugs -
ARCHIVED Husband Thinks I'm Going On A Fad Diet!
mamaw replied to Stubborn red head's topic in Coping with Celiac Disease
How did your stress test come out???Try to call your local hospital & talk to a patient adovcate, they should be able to guide you as well..Please don't be afraid to speak up & get pushy.. This is your health .......this is just so wrong for you to be put through all this bull....glad you have trust in one doctor... -
ARCHIVED Doctor Is (Pretty Much) Stumped. Need 2Nd Opinion!
mamaw replied to kwylee's topic in Coping with Celiac Disease
I got dry mouth so dry for 81/2 months that my teeth stuck to my gum tissue. PlusI had swelling...All because of a change in my thyroid med.. Any change in any of your meds?Inow have enough moisture in my mouth but at times for unknown reasons I get this very dry feeling...My dx's is called angio lymphatic edema...I find that taking a Vit... -
ARCHIVED Husband Thinks I'm Going On A Fad Diet!
mamaw replied to Stubborn red head's topic in Coping with Celiac Disease
Okay you have one who will take you but only refer you to an Internist or a speciality doc. Don't walk run to him get a REFERRAL...It's a start... I do believe no one in the US is allowed to be denied medical help... I do believe that is going against the doctors oath...hospitals are not permitted to turn people away who have... -
ARCHIVED Husband Thinks I'm Going On A Fad Diet!
mamaw replied to Stubborn red head's topic in Coping with Celiac Disease
I don't know where you live but that's bull that a PCP will not see you...What if you get a sore throat or for minor issues,ie: poison ivy... You are being unfairly mistreated by your town doctors ...Do you have fast clinics in your area.They treat anyone. I understand that you have major health issues in the past but a PCP should deal... -
It's your home YOU ARE THE RULER/BOSS what comes in can go out!!! When visitors come a calling (family or not) they need to respect house rules.... or not come.END of Story. You are not being rude you are protecting your health. I put a sign on my door No Smoking. so when people smoke they go outside. I used to have a dog that would...
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ARCHIVED Husband Thinks I'm Going On A Fad Diet!
mamaw replied to Stubborn red head's topic in Coping with Celiac Disease
I'm just a tad confused by your statement I don't have a medical doctor or can't get an Internist because of past medical conditions. PLEASE explain that....if you have issues then some type of intervention would be needed... with that being said you may have something totally different going on within your body besides the consideration... -
ARCHIVED Husband Thinks I'm Going On A Fad Diet!
mamaw replied to Stubborn red head's topic in Coping with Celiac Disease
Is there a reason why you can't get tested to clear up any misunderstandings?With your mother having celiac your odds are about 1in 22 ... And even if you don't have full blown celiac with villi damage you could be gluten sensitive.. The only treatment for either is a totally gluten free diet.....An elimination diet is the only way to test... -
ARCHIVED Gluten Free 3 Months: Hungry!
mamaw replied to jdizzle's topic in Coping with Celiac Disease
I can't take spirulina at all.... -
ARCHIVED What's A Good Gluten Free Book For An 82-Year-Old?
mamaw replied to Monklady123's topic in Coping with Celiac Disease
gluten-free for Dummies! But if you are close to her you could just mentor her? Is she a young 82,then she may read & try to learn but at 82 for some they want no changes that they have to deal with on ;their own...confusing for them....Sometimes having them write it down in their own hand writing they asborb more knowledge... -
Digestive Gold is a good one...Magnesium will help with pain... Get tested for vitanim& mineralsto see what you are lacking.. Sometimes B-12 OTC is not enough....same with others...
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ARCHIVED I Need To Complain!
mamaw replied to Littllemel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe at this point in time you should just do the testing for allergies to everything. I think it is about 200 items . You order the test online.. Today is a migraine day for me so I'm not remembering the name of it but I'm sure someone else will.... Also when my kitchen was a combined gluten-free & gluten kitchen I cooked... -
ARCHIVED Lansing Or East Lansing, Mi Restaurants
mamaw replied to skier2day's topic in Gluten-Free Restaurants
We will be in Lansing in May so I too will have to stop by for pizza! Does anyone know about Grand Rapids area for shopping & dining???? -
ARCHIVED I Need To Complain!
mamaw replied to Littllemel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Not sure ifyou thinkthe teflon may be causing you to feel ill? But try pot & pans that are not coated non-stick pans. Stainless or ceramic.. may be a better choice. I use stainless made from surgical stainless.... Alos at present how many foods are you eating while doing the elimination diet? I understand that most only have maybe...