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Brooklyn528

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Brooklyn528

  1. Brooklyn528
    The bread is wonderful. No toasting needed. I just defrosted, took it out of the package, and put butter on it. It was awesome! The muffins are great, too. I have tried blueberry and lemon struesel. Both are great. I can't wait til I get some more bread, I just ran out. Brooklyn
  2. Brooklyn528
    Hello! My LFT's were also elevated at diagnosis, but mine were in the 200's range. Slight elevations in LFT's like the numbers you have are related to Celiac Disease. Mine were way above that though. If they get to that range, it is no longer being caused by celiac disease and further testing is warranted. You are at higher risk of getting Autoimmune Hepatitis...
  3. Brooklyn528
    I just got some oats that I need to try. Does anyone have a good gluten-free recipe for oatmeal raisin cookies that I could try them with? I think they are Cream Hill Estates. They are certified gluten-free. Grown in specific fields and such. Anyways, Like I said on a hunt for a good recipe. I have a pitch-in lunch for my newly started celiac disease support...
  4. Brooklyn528
    Hi, I have started a Celiac support group in my area. It will include anybody willing to drive to Brazil, Indiana for meetings. We will be having them monthly at least. The first meeting will be this Sunday at St. Vincent Clay Hospital, in Brazil. It will be in the Medical office building on the hospital campus. The hospital in located on the north side of...
  5. Brooklyn528
    Hello. When I went to the CSA conference this year, Dr. Robert Greene, the foremost thinker and researcher on celiac disease from Columbia University, said that we could quote him on this. Any alcohol that has been through the distillery process except beers and ales is gluten free! So drink what you want. That is one thing celiac disease hasn't taken from...
  6. Brooklyn528
    Fiddle Faddle- Hello. If you notice in my first post, I state that he is not very intune. He is an older GI and he is foriegn. He won't be the doctor I follow up with after I get the biopsy results. My boyfriend and I saw a different GI for my son. He was a younger doctor, knowlegable in celiac disease. He is having us do an elimination diet with my son....
  7. Brooklyn528
    Hello Everyone! Just wanted to update you on how my little trooper did yesterday. She was soo worried all the way up there. She didn't want to have to get any shots or IVs. I told her that she might not have to. We got there and the nurses and staff were all wonderful. They got her vitals and history kept her laughing the whole time. Then, the nurse gave...
  8. Brooklyn528
    Great advice with the food and drink on the way home. It didn't even cross my mind. I will do that now though. Thanks!
  9. Brooklyn528
    Hello Everyone! Well, after two months of having bloodwork showing positive IgG antibodies, my daughter is getting a scope tomorrow to do biopsy to check for damage. She has both DQ2 and 8 with the possible silent Celiac mutation. The GI we saw for her was not very intune with Celiac. He suggested that we are doing the scope to to rule out Celiac because...
  10. Brooklyn528
    You might need some more fiber. Try a supplement like Benefiber or Metamucil. You can get the store brands which are cheaper but work the exact same way. Also, try the above suggestion. Maybe have your GI or PCP check your vitamin levels also. You might still be deficient. Hope to help, Brooklyn
  11. Brooklyn528
    About the AIH, You can have you PCP check your liver enzymes(LFT's) and your ANA level. These are the tests that are used to diagnose AIH. If your liver enzymes are normal, then it's not AIH. I am on two different meds to control my AIH and to try to get me into remission(AIH is a chronic condition, there is no cure, but lots of people do fine after treatment...
  12. Brooklyn528
    Hello. About the wines, you have to watch out on those. Alot of them have gluten in them. I went to the Celiac Sprue Association's Annual Conference and saw Dr. Robert Greene speak. He is one of the foremost doctors in researching celiac disease. From his mouth, All Alcohol is ok because it is distilled so the gluten is lost in the distilling process. That...
  13. Brooklyn528
    Hello girls! I am also 24 and I was diagnosed in January of this year. First off, some food suggestions. Kinnikinnick breads, rolls, and muffins are great and can be ordered online. After you order, they bake to your request and mail same day. Always put it straight into the freezer. The Betty Crocker mixes are great. Trix cereal is gluten free. Honey nut...
  14. Brooklyn528
    I was having the same kind of problem after going gluten free. I was still super tired all the time, moody, bad acne, just all around not feeling good after having my son last year. I was wondering if you have had your liver enzymes checked. I found out that on top of my celiac disease, I have Autoimmune Hepatitis. If you look it up, most of your symptoms...
  15. Brooklyn528
    Hello. I myself am now on long term Prednisone treatment for Autoimmune Hepatitis. I started at 50mg a day, and I have since tapered down to 20mg. The treatment has worked great for me, and my liver enzymes have gone down a lot. I still have celiac symptoms after being gluten free for 6 months and the Prednisone, but my recent EGD with biopsy shows that I...
  16. Brooklyn528
    Hi. Going back up to your original post, I notice that you said there was an abnormality in you liver functions. I was wondering if you knew what it was? When I was diagnosed with Celiac, they noticed that my liver enzymes were about 4x what they should have been. They blamed it on my Celiac disease for a long time, and i just got sicker and sicker even though...
  17. Brooklyn528
    Quest does a Comprehensive Celiac Panel which tests for the antibodies and does the gene mapping. This is the one that i had done on my children. They both came back with the gene and positive IgG. We are going to see a Peds GI at the end of the month. I would suggest doing this test. Also, I work for a GI doctor and this is the first test he does on suspected...
  18. Brooklyn528
    If you are responding to Prednisone and the swelling is symmetrical(same on both sides), you may be a sero-negative RA. My mother has those symptoms and she has sero-negative RA and possibly lupus. I would consult the Rhuematologist about the possibility of this. Also, on the note of Prednisone, I have been on it for over a month without and Celiac symptoms...
  19. Brooklyn528
    Just to clarify, the comprehensive celiac disease panel test for all of the antibodies and does the gene mapping. I work for a GI doctor and this is the first test that he does on every suspected celiac. So its the best test to do first.
  20. Brooklyn528
    The easiest test for celiac is a blood test. I would suggest getting the gene mapping or comprehensive panel done. That way if she comes back negative with no gene markers you don't have to test for it again. If negative with gene markers, then you know to do a routine test for celiac once every six months to a year. Brooklyn
  21. Brooklyn528
    They can most definitly be connected because I have both. I was diagnosed celiac in January and diagnosed with Autoimmune Hepatitis in September, both this year. Autoimmune Hepatitis is very rare though. I pray that you get a diagnosis and can start treatment soon. If you don't mind me asking, what are the highest her enzymes have gone? Mine got up into the...
  22. Brooklyn528
    Well, I'm gonna be staying another day. The doctors didn't come and tell me anything today, so I believe they are still trying to figure it out. It rather odd to most of the doctors I've talked to so far that I am having myoglobin in my urine. I just hope that this is the last extended stay that I have to endure. I miss my babies and being at home. I will...
  23. Brooklyn528
    Just a little update. I've now been admitted to the hospital here in Indianapolis. I was having what I thought was blood in my urine, but it turns out that it's not blood but myoglobin. This is released when muscle tissue is being broken down. My hepatologist is running a gammit of test to find out what is going on. But i will keep everyone who has replied...
  24. Brooklyn528
    Hi, I'm having a really hard time coping right now, and I need some help. I have had two autoimmune diseases diagnosed in the past year. Just yesterday, I found out that my mother has lupus. I have a lot of the symptoms also. I'm being sent to a rhuematologist and getting bloodwork done to check for RA, Thyroiditis, and Lupus. I'm just having a hard time...
  25. Brooklyn528
    I always start my day off with a nice gluten free Banana. Full of Potassium for energy and lots of other good nutrients!! Brooklyn
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