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seeking-wholeness

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Everything posted by seeking-wholeness

  1. seeking-wholeness
    Steve--I assume you've tried Perdue's chicken, which is gluten-free and available everywhere. Have you tried organic free-range chicken? It may be too expensive to eat every day, but it might be worth checking out whether you can tolerate it, just for the sake of narrowing down the specific problem. (You're not blood type B or AB, are you? I am a proponent...
  2. seeking-wholeness
    The Spice Hunter claims not to use gluten in any of their herbs or spices, including spice blends like curry powder (hooray!). You might want to call them (800-444-3061) and see if you get the same answer. (I don't know about you, but I am always a little bit suspicious when a company assures me their products are fine to use--do they even know what I'm...
  3. seeking-wholeness
    jenni, I wouldn't touch that moisturizer with a ten-foot pole! It's true that people don't (deliberately) ingest personal hygiene and cosmetic products, but do you apply them with your fingers? And do you wash your hands after EVERY time you touch your face, to prevent accidentally getting traces of the moisturizer on your lips, or on the food you are about...
  4. seeking-wholeness
    Terri-Anne, My understanding is that citric acid is manufactured from corn and/or wheat. (It may also be possible to synthesize it in the lab.) In the US, citric acid is almost certainly made from corn, so it should be safe. In other countries, however, wheat is more likely to be the source. All food products marketed in the US are required to list...
  5. seeking-wholeness
    Mariann, Wow, your situation sounds almost exactly like mine, except that there is no El Pollo Loco around here that I am aware of! We don't have to travel so far to reach our grocery stores, but we have been needing to do ALL of the shopping on Saturdays and it often takes five hours! I try to take snacks along to keep myself and the kids happy, and...
  6. seeking-wholeness
    Sharon, You're not a moron! You're here and you're trying to heal and learning as you go, which all speak well for your wisdom! I've just been insatiably curious about medical things ever since I was a child, so I tend to soak up medical knowledge like a sponge. My friends tease me by saying that if I'm down in the dumps, all they need to do is start...
  7. seeking-wholeness
    Stacie, My intuition tells me that the IgA and IgG tests may be non-zero for reasons other than celiac disease, but that the tTG test really ought to come back with a zero if you don't have celiac disease. My feeling is that individuals with non-zero tTG readings should be treated as either already having celiac disease or as being in the process of developing...
  8. seeking-wholeness
    Sharon, I don't think it's automatically necessary to avoid dairy, though it certainly wouldn't hurt to try it. If the damage to your intestines is only patchy, you may still be able to produce enough lactase in the intact areas to digest dairy with no problem. I hope that's the case for you!
  9. seeking-wholeness
    Connie, I'm not actually mad at your friend, just sharing in your frustration! Your friend sounds almost like I used to be--except that since I am an Aries, and born in the year of the Dragon, I have always known that deep down inside I am very strong. I used to prefer the victim mentality, though, and I had a hard time even accessing my inner strength...
  10. seeking-wholeness
    Lily, the villi do grow back, so you may be able to tolerate dairy products again once you heal. This may take several months, though! It's also possible that you are sensitive to casein, a milk protein that looks enough like gluten that many celiacs cross-react to it--in which case, the dairy would need to stay out of your diet for good. I hope you are...
  11. seeking-wholeness
    Nicole, Welcome to the board! I'm glad you're here! Your doctor was probably talking about the anti-tTG antibody test. tTG is a normal component of human tissue, so if you are making antibodies against it, you have an autoimmune disorder--celiac disease. Most doctors don't make a final diagnosis based on this test, however. You might want to pursue...
  12. seeking-wholeness
    Ronni, I've never had that symptom, but I am almost positive that it is caused by a vitamin deficiency--probably one of the B vitamins. Now that you have been gluten-free for a while, you must be absorbing more nutrients from your food. Good for you!
  13. seeking-wholeness
    Audible bowel sounds are often my first clue that I've had a gluten accident, with diarrhea following the next morning. My intestines are no longer noisy unless I've eaten gluten, though they used to gurgle pretty frequently. My stomach only growls when I'm very hungry!
  14. seeking-wholeness
    ryebaby0, How about some small amounts of protein, like turkey, to see how he tolerates it? Perdue's brand is gluten-free, as is Shady Brook Farms (I don't know if that is available where you live). SOME cold cuts are gluten-free, but many are not. Open Original Shared Link is a very nice list of gluten-free foods, most of which can be found in a...
  15. seeking-wholeness
    Oh, Connie, I feel for you! I know a family of four where I think they ALL need to be tested for celiac disease, but I had to bite my tongue with them, or they would close their minds to it forever! I actually did get an opportunity to talk to the the father and mention testing the baby, at least--and I know that my expression was dead serious and not the...
  16. seeking-wholeness
    YES!!! My last dentist visit (for a routine cleaning, not repair work) was before I went totally gluten-free, but I had been wheat-free for several months. After I got home, I CRASHED so hard, I thought I had been mercury-poisoned or something! I couldn't wake up fully (seriously, I was walking into walls all day long) for the next three days or so! A...
  17. seeking-wholeness
    Virginia, what a great idea, having food shipped to your destination if you're going to be staying long enough! I would never have thought of that. Thanks for the tip!
  18. seeking-wholeness
    Hi! I'm not sure if this is a problem with the settings on my computer or a larger issue, but the blue circles that indicate whether a forum has received new postings since my last visit are often inaccurate for me. Sometimes the envelope icons that indicate read/unread status are, as well. It's not really a big deal, but if someone could shed some light...
  19. seeking-wholeness
    Travelthomas, I understand where you are coming from, but I think you may be painting things a little too black! I was floored by the new board, and I still don't know how to use a lot of the new features, but I have given myself permission to learn slowly (which is actually a major accomplishment for me--I am such a perfectionist!). Now, I can't even...
  20. seeking-wholeness
    Aldo, There are many reasons why a person would want conclusive proof before committing to a gluten-free diet. One of these is that if you change your mind AFTER going gluten-free, you would have to do a gluten challenge to get (possibly) accurate results, thereby undoing all of the hard work you had just put in to begin healing! Other reasons include...
  21. seeking-wholeness
    KathyB, Thanks for the compliment! I try very hard to be maximally informative without giving offense. I live in the Philly area--out west, beyond the suburbs. Where are you located, if you don't mind my asking? It would be neat if you were close by! I'm glad your daughter has a knowledgeable doctor, and I hope the doctor agrees to perform the...
  22. seeking-wholeness
    Newbie, I can totally understand where your feelings are coming from. For me, it's not so much that I wish I could forget about celiac disease as it is that I wish I were further along the learning curve, and thus better able to see other aspects of myself and the world beyond celiac disease. It will get better, I know, but unfortunately the only cure...
  23. seeking-wholeness
    Kathy, Did your daughter's doctor discuss exactly what the tissue specimens looked like under a microscope, or did he just say the biopsy was "negative"? Some doctors/pathologists don't give a diagnosis of celiac disease unless the intestinal villi are completely destroyed. (This is, of course, just as ridiculous as refusing to consider a woman pregnant...
  24. seeking-wholeness
    julia mom, Have you seen this article on grains from here at celiac.com? Millet is a relative of corn and SHOULD be safe for people with celiac disease. But as with all foods, DON'T trust bulk bins at the health food store! Someone may have used the scoop from the barley bin to scoop out their millet, or the store employees may have put the millet...
  25. seeking-wholeness
    Terri, It's great that you're here. Your mother must be so proud to have such a concerned and caring daughter! If I am remembering correctly, CREST syndrome is related to scleroderma, an autoimmune condition that results in abnormal collagen formation and growth. Autoimmune conditions in general are more common in individuals with celiac disease,...
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