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seeking-wholeness

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Latest Celiac Disease News & Research:

Everything posted by seeking-wholeness

  1. seeking-wholeness
    Hi, everyone! Have you seen the article in the February issue of Parents magazine? It's called "The Enemy in the Pantry," and it's about a family where the mother and two kids have celiac disease while the father and the other two kids don't. It's not a super-in-depth look at celiac disease, but it covers the basics and quotes *current* statistics (prevalence...
  2. seeking-wholeness
    sweetneet, Welcome to the board! I'm glad you found us! And it's great that you have been observant and self-aware enough to narrow down your trouble on your own, since doctors have an annoying tendency to disregard the dietary connection to illness. Yes, the gluten-free diet will allow your antibody levels to normalize, but there's another possibility...
  3. seeking-wholeness
    Terri-Anne, Yes, Enterolab testing is expensive, but the stool test by itself was only $99 the last time I checked. If Logan is still eating gluten on a regular basis, this test alone should be able to give you some accurate and important information without breaking the bank! My naturopath says that the tests look reliable, for whatever that...
  4. seeking-wholeness
    Wow, Mariann, that is SOOO wonderful to hear! I'm so glad your kids are in such competent hands! Good luck with your biopsy, too--I hope you get to thumb your nose in your uneducated doctor's face! Have a great day!
  5. seeking-wholeness
    midnightlullaby, I second TESTinME's excellent suggestions! The only thing I can think of to add is to examine your diet for foods that you "just know" sit around in your stomach for a long time. Eliminate them for a while, and see what happens to your GERD. (Foods that give me trouble include red meat, pepper seeds and skins, and raw onions.) You...
  6. seeking-wholeness
    Su, how long have you been gluten-free? It can take several months for the intestines to heal, depending on the degree of damage that had been done. Also, are you dairy-free for now? Lactose intolerance is practically guaranteed in a recovering celiac, and you may even be sensitive to casein (a milk protein). I would try eliminating dairy completely for...
  7. seeking-wholeness
    Thanks, Kathleen, dclark, and keburns! I am pretty sure it was something I ate that was a problem, since my shampoo and conditioner are gluten-free and I haven't been using lotion lately. (As an aside, does anyone know where I can find a list of gluten-free dish soaps?) I usually know within five hours, maximum (and sometimes before I finish eating!)....
  8. seeking-wholeness
    Hi, Toni! Thanks for all the information--and the encouragement! It really helps. What happens to me is that I will go for a stretch when I am content to eat only food I know is safe, but then I suddenly get tired of the same old same old and eat a lot of new foods at once. It satisfies my craving for variety, but it makes it hard to determine what...
  9. seeking-wholeness
    I'm not sure if your mystery pain is food-related or not. Are you keeping a food diary? If you write down everything you ingest and the timing of your symptoms, you might notice a pattern. I doubt this is the same sort of pain that you have, but I have had a "mystery pain," too. I started experiencing it before I got pregnant with my first child, and...
  10. seeking-wholeness
    It's funny, I was just on the phone with Hain Celestial Group this morning, and they were most unhelpful! I was inquiring about their Walnut Acres juices, and they couldn't tell me a thing about what was in their "natural flavors"--"it's proprietary and we don't know the formula," they said. And they suggested that the machinery may be contaminated, so...
  11. seeking-wholeness
    sunny, You certainly could have celiac disease. Blood tests can come back false-negative for a number of reasons. Also, celiac disease-related antibodies are concenrated INSIDE the small intestine and usually only "spill" over into the bloodstream LATE in the course of the disease! Another interesting observation is that blood antibody levels DO NOT...
  12. seeking-wholeness
    Terri-Anne, My little guy was able to eat oatmeal and barley cereals for quite a while without any noticeable reaction (except maybe some constipation now and then), so I figured wheat was his only problem. The eye-opener came when he suddenly developed bulky, vile-smelling diarrhea after he started teething on RYE crackers--and since then, he reacts...
  13. seeking-wholeness
    Hi, Disturbed! I keep a gluten-free house and my cookware is stainless steel, so there shouldn't be a kitchen contamination issue. (I should probably replace my wooden utensils periodically, though, since I'm still learning which foods are actually gluten-free and keep having accidents!) And I am furious this morning, too, because it looks like...
  14. seeking-wholeness
    Terri-Anne, It really sounds to me like Logan, Jesse, and Miranda ALL have celiac disease! I know that preferring blissful ignorance is a normal phase in the adjustment process, but please consider yourself gently chivvied to get them tested (and Kelsey, too, just to be sure)! And don't forget that you should be tested, too, and their father as well...
  15. seeking-wholeness
    Lori, You MAY have a condition known as "selective IgA deficiency," which would cause all of your IgA-based test results (including the tTG test) to fall in the normal range even if you do have celiac disease. I forget how common this deficiency is in the healthy population, but it is definitely more common among celiacs. If your doctor did not run a...
  16. seeking-wholeness
    Becky, I don't know that there is any real way to settle the distilled vinegar question once and for all. I believe that it is now generally agreed that distilled vinegar, even made from wheat, poses no THEORETICAL risk to a celiac, but there is a world of difference between theory and practice! If your children experienced intestinal reactions to gluten...
  17. seeking-wholeness
    You're welcome, Judy! And if you're like me, you'll never get off the computer.... I just found out I have celiac disease not too long ago (self-diagnosed), and now that I've discovered that I'm not alone I'm craving community interaction! I'm sure I'll settle down to a *reasonable* amount of daily time online sometime...soon...maybe! Good luck to you...
  18. seeking-wholeness
    Welda, I have just been wondering the same thing! I am pretty sure my husband has celiac disease, but I could chalk that up to random luck of the draw. The thing that gets me is that out of my relatively small circle of friends and acquaintances, I can think of 5 people (and 4 of their kids) who I think should DEFINITELY be checked for celiac disease! ...
  19. seeking-wholeness
    Judy, Have a look at the second question in Open Original Shared Link. The same would apply to barley, as well. I haven't tried Ezekiel bread in a while, but I remember that I used to have some problems with it. I hope this information is useful!
  20. seeking-wholeness
    mg5676, Are you referring to Food for Life brand bread? It's the best bread I have tried so far, but then I happen to like a slightly sweet flavor to my breads. Have you tried warming up the bread slightly (10-20 seconds in the microwave)? This improves the texture dramatically. Just be sure you don't overheat the bread, or it will turn gummy! Yes...
  21. seeking-wholeness
    cornygirl, Time between gluten ingestion and symptoms seems to vary a bit. If I have an accident at dinner, I usually discover it late in the evening (gas and bloating) or first thing the next morning (diarrhea), but just last week I had a contaminated lunch and developed an intense stomachache and headache even before I had finished eating! Sometimes...
  22. seeking-wholeness
    OK, I made a new dish last night and woke up with a reaction this morning (and so did the baby, who shared my dinner). The trouble is, all of the ingredients SHOULD be gluten-free! Has anyone ever had trouble with any of the following ingredients? --Wellshire Farms Uncured Turkey Andouille Sausage (says gluten-free on the package; called and they...
  23. seeking-wholeness
    My older son (now three and a half) began to sleep through the night at about 15 months, but then regressed and began waking up two and three times a night. It seemed to be related to whether he had a nap--if he did, he could sleep, but if not, he couldn't. If he went without a nap for several days in a row, it would take several days for his sleep to normalize...
  24. seeking-wholeness
    Oh, no, Connie! I'm so sorry to hear that! I hope your delivery goes smoothly, when the time comes! Just out of curiosity, are all of your blood sugar readings high, or are some of them low? I have a pregnant friend (who I think may actually have celiac disease) who has had wildly varying blood sugar readings, along with a host of difficulties. Her...
  25. seeking-wholeness
    Hi, Stephanie! I second Denise's recommendation to read Kids with Celiac Disease; it will be a big help to you! Another list of gluten-free foods that you should be able to find at a regular grocery store is Open Original Shared Link. You must be quivering with stress and worry right now! A diagnosis of celiac disease means a major lifestyle change...
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