seeking-wholeness
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Latest Celiac Disease News & Research:
Everything posted by seeking-wholeness
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ARCHIVED Reactor And Nonreactor
seeking-wholeness replied to aldociao's topic in Related Issues & Disorders
Aldo, I don't know the answers to the questions you have posed (although I will say that your understanding of allergies concurs with mine), but I did have a thought to share. I wonder if celiacs who react to oats have the less common gene for celiac disease (or even a third, as a recent post here indicated DOES exist!). It would be really interesting... -
ARCHIVED Autoimmune Disease
seeking-wholeness replied to tammy's topic in Related Issues & Disorders
Tammy, I, too, follow a gluten-free/CF diet. I am taking natural thyroid supplementation recommended by my naturopath, and I would be taking adrenal support as well except I haven't yet gotten around to verifying its gluten-free status. I have found, though, that the gluten-free diet by itself has worked wonders for my adrenal exhaustion. I am beginning... -
ARCHIVED New 'safe' Food List,
seeking-wholeness replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
Willamina, you may not have a program capable of reading pdf files. Does your search engine offer a way to view the document as html? Google does, I think. It also loads MUCH faster as html! And a heads-up on the list itself: OAT products are considered gluten-free, so if you choose to avoid them you will still need to read every label (not that that... -
ARCHIVED Glutten Free Shampoo
seeking-wholeness replied to irish's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow! I love my Mary Kay products (exfoliating face wash, moisturizer, lip mask and balm, and foundation), but since I went gluten-free I haven't been using ANY facial products except plain water and tiny amounts of concealer (Maybelline--I don't know if it is gluten-free, but I take great care to keep it away from my lips and off of my hands) when I go out... -
ARCHIVED Gluten Free Chicken
seeking-wholeness replied to AntiGluten's topic in Gluten-Free Foods, Products, Shopping & Medications
Lee, Thanks for the heads-up about minimally processed chicken! Not too long ago I developed a migraine immediately after trying a new brand of chicken (Bell & Evans), but I was reluctant to consider the chicken as a suspect because it was minimally processed and no additives were listed on the label. Now I'll definitely be giving away the other... -
ARCHIVED How To Eat Vegetables?
seeking-wholeness replied to gaceff's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
gaceff, Wow! That's a long time to be without vegetables. No wonder your body can't digest them right now! I'm not a dietitian or a nutritionist, but here's what I would do in your place. This might sound weird, but I would try starting out with baby food fruits and vegetables (the PLAIN ones with NO additives). Otherwise, I would boil some fruits... -
ARCHIVED Celiac?
seeking-wholeness replied to erbadger's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
erbadger, Your troubles definitely sound like they could be caused by celiac disease. If you are 24, the symptom-free "honeymoon period" that many celiacs experience during adolescence would be coming to an end. That, coupled with the stress of surgery, may have triggered your symptoms. It sounds like you have been through a lot these past several months... -
ARCHIVED Digestive Enzymes?
seeking-wholeness replied to gf4life's topic in Gluten-Free Foods, Products, Shopping & Medications
Mariann, I have been using Pioneer brand Digestive Enzymes and Herbs. It is gluten-free (and they say they use extremely stringent standards) and free of soy and all animal products, and it contains glucoamylase, which I have read can help reduce the severity of MINOR gluten accidents. This product also contains artichoke leaf, peppermint leaf, fennel... -
ARCHIVED Totally Confused
seeking-wholeness replied to marythemom's topic in Parents, Friends and Loved Ones of Celiacs
Mary, Have you read Kids with Celiac Disease? It mentions that there is a sort of "honeymoon period" that can begin as early as age six or so and last until the end of adolescence, and during this time the symptoms of celiac disease may appear to vanish. They tend to return, however, during the young adult years--but in a DIFFERENT FORM that may not... -
ARCHIVED Sudden Symptoms/dermatitis?
seeking-wholeness replied to l4grem's topic in Parents, Friends and Loved Ones of Celiacs
Lori, Ouch! Yes, this does sound suspiciously like celiac disease/DH. My 18-month-old baby is just now getting over a patchy, scaly, bright red rash that started behind his knees, but it never got as bad as the rash your son developed! It took just over three months of being gluten-free to get to this point, and the rash isn't quite completely gone... -
ARCHIVED Blood Type Diet
seeking-wholeness replied to aldociao's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lisa S., If you can't find a blood typing kit at your local health food store, you can order one Open Original Shared Link, at the webstore associated with the Open Original Shared Link. Aldo, you are correct that I do believe that the Blood Type Diet can be a tremendous help to individuals who are seeking better health, especially those who are affected... -
ARCHIVED Eczema
seeking-wholeness replied to BabsCanada's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Babs, Have you had your eczema biopsied to make sure it isn't dermatitis herpetiformis? I have read that it CAN look similar to eczema in some cases. I have an 18-month-old baby who has trouble with eczema caused by gluten, and now that he has been gluten-free for a little over three months it is almost gone! He also had some eczema during his first... -
ARCHIVED Reese's Pieces
seeking-wholeness replied to Terri-Anne's topic in Gluten-Free Foods, Products, Shopping & Medications
I wonder whether all Reese's Pieces are made in a single factory or whether there are multiple facilities around the country that make them. It's an interesting question in general, and it may explain why only some instances of various snack foods seem to be contaminated. -
ARCHIVED Reese's Pieces
seeking-wholeness replied to Terri-Anne's topic in Gluten-Free Foods, Products, Shopping & Medications
Terri-Anne, I am SO sorry to hear about Logan's awful reaction to Reese's Pieces! I don't like them myself, so I haven't tried them recently, but I can tell you that I reacted to Planter's dry-roasted, unsalted peanuts not too long ago. They, too, are supposed to be gluten-free, but I reacted--and then about six hours later, my baby reacted too (when... -
ARCHIVED Recovering Anorexic/bulimic And Scared
seeking-wholeness replied to bessiejay's topic in Related Issues & Disorders
Bessie, One thing to keep in mind when you are reading articles about the gluten-free diet is that many people who are diagnosed with full-blown celiac disease have lost so much weight (unintentionally) that their health is in serious jeopardy. For these people, gaining weight is a primary goal of the diet. I, on the other hand, went gluten-free and... -
ARCHIVED Attention Deficit Disorder (add)
seeking-wholeness replied to bessiejay's topic in Related Issues & Disorders
Bessie, I just found Adderall tablets on the gluten-free medication list here at celiac.com, though you may want to call the manufacturer just to double check that they haven't changed the formulation. You may indeed find that your ADD improves on the gluten-free diet, but I would give it at least a few months to work its magic before even considering... -
ARCHIVED Is The Gf Diet Not Working?
seeking-wholeness replied to bessiejay's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Bessie, If you work in an environment that contains a lot of gluten, I would suggest washing your hands frequently and being especially thorough about it right before you eat. Gluten-containing dust can be transferred hand-to-mouth, and all it would take is a tiny amount to make you sick. Similarly, shampoo and conditioner can end up in your mouth, especially... -
ARCHIVED Vh Soy Sauce
seeking-wholeness replied to tagger's topic in Gluten-Free Foods, Products, Shopping & Medications
Tagger, I have never eaten dim sum before, so I don't really know what I'm talking about here, but I do know that SOME Asian foods use rice wrappers. Not all, of course, and I wouldn't be surprised to learn that some restaurants substitute wheat wrappers anyway because they are cheaper and easier to find. Also, even if you find that some wrappers ARE... -
ARCHIVED Celebrities With Celiac?
seeking-wholeness replied to lauderdalehawk44's topic in Publications & Publicity
Amazingly, I can't think of anyone famous who has celiac disease (or at least admits to it)! You may already have heard this, but some experts strongly suspect that JFK had celiac disease, in addition to Addison's disease (another autoimmune condition, I believe) and maybe some other problems. -
ARCHIVED I'm New & Need Help
seeking-wholeness replied to stella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
stella, Just a little over a year ago, my favorite meal in the whole world was a HUGE plate of pasta with sauteed zucchini and mushrooms, lots of garlic and Pecorino romano cheese, and several sloshes of lemon juice. I probably ate it twice a week, and I never noticed any reaction. But then I decided to cut wheat (and ALL dairy) out of my diet for the... -
ARCHIVED Inflammation In The Stomach
seeking-wholeness replied to hillary-h's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hillary, I'm so glad to hear that your daughter's biopsy was conclusive! celiac disease isn't the easiest diagnosis to adjust to, but it isn't the hardest, either, and on the gluten-free diet I am sure she will grow up happy and healthy. Good luck in your first gluten-free shopping venture tonight! -
ARCHIVED Vitamin B
seeking-wholeness replied to tagger's topic in Gluten-Free Foods, Products, Shopping & Medications
Tagger, That's very interesting! Are you taking a B-complex supplement or just one or two of the B vitamins? I'm just fishing here, but I wonder if supplementing some of the B vitamins would increase your need for the rest of them. Assuming you are not yeast-sensitive, have you tried taking nutritional yeast (a gluten-free formulation--NOT brewer's... -
ARCHIVED Does It Have To Do With One's Age?
seeking-wholeness replied to azza's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
azza, Welcome to the board! Celiac disease (also known as gluten intolerance, gluten-sensitive enteropathy, or non-tropical sprue) is genetically transmitted, so if you have it, you have carried the gene for your entire life. HOWEVER, symptoms do NOT always begin during childhood! celiac disease can appear for the first time at any stage of life,... -
ARCHIVED Uncertainty..
seeking-wholeness replied to DLayman's topic in Parents, Friends and Loved Ones of Celiacs
Becca, Wow, your stress levels must be through the roof right now! I really feel for you during this difficult time! It's so frustrating that the doctors seem to be trying to bully you into having an endoscopy done. My personal feeling on the issue is that the false negative rate is too high to justify the risk of the procedure, especially to an infant... -
ARCHIVED Celiac Disease And Liver Enzymes
seeking-wholeness replied to a topic in Related Issues & Disorders
I assume you are referring to alcohol that is NOT based on gluten-containing grains, since you should obviously not be consuming any that IS! That said, I don't know much about the significance of elevated liver enzymes, but Open Original Shared Link is an article that discusses this problem. I'm sure there is much more to be found on the internet, as...