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pixiegirl

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    Cape Cod, MA

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  • No more doughnuts

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  1. I lost weight too, but I mostly eat just food in its natural state, i.e. fruit, veggies, meat, rice.... when I get in the mood for snacks or gluten-free bread (I make Manna by Anna) then I'll gain a pound or two. But sticking to unprocessed food I always loose weight.

    Susan

  2. I agree about their labeling and it bugs me. It use to be that they all said gluten free at my store, now almost none of them do, why is this? I did write to them about this issue and never got a response, which I liked even less. So I'm not going to buy them anymore until I find out.

    susan

  3. I wrote to Avon less then a month ago and they basically blew me off. They didn't send me any list they just directed me to the web site and told me ingredients were listed for each product. When I inquired about cross contamination and that I didn't understand all the ingredient terms I was told to ask my doctor!

    I will not use Avon again, I was very disappointed.

    Susan

  4. I can't speak for others but I don't think I feel sorry for myself because of my Celiac, I accept it for what it is and deal with it, I don't whine and I really don't "grieve for the foods I use to eat.

    However.... that doesn't change the fact that socially my life has changed some because of it. I don't go out with my friends as much as I use too... they sometimes do change where they go for me but my choices are very slim around Cape Cod where I live. They often feel like pizza, beer, fried clams, DJ's wings and at a lot of these places there is nothing I can eat, so I don't go.

    I am also very active in a number of charities and they always have dinners... the money made from the dinner goes to the charity, I buy the tickets for a donation but I can't eat ANY of the food, they can't (well won't) do special meals when they are pumping out 300 of them that night for the function. So I'm not attending them as often, I have a few times but they are often sit down and I sit there and just drink, its uncomfortable for everyone, me and my dinner partners.

    My daughter and I use to eat out at least 3 nights a week, well we get sick of the same 2 places (there are very few chain restaurants that work for celiac disease on the Cape, really outback, thats it) so we don't do that as much.

    So I really do understand how things change. I'm single so hanging out with friends at the pizza place or tapas bar was a major part of my social time. Now I just hardly ever do it. I did try a lot of the places and go thru the explaining my eating issues thing, but I'd still end up getting glutened and for me, as sick as I get with that, I'm not willing to risk eating a salad in a pizza place, they seem to be covered with flour (the whole darn place is!).

    So I'm not whining, I'm Celiac and I accept that but it has change my life and occasionally I am lonely because of this.

    Susan

  5. Sure you can, my mom mixes it by hand and bakes it in the oven. I will say the texture of hers is a bit different then mine but the taste is the same. I would think with a mixer it would be more "mixed up" like the cycle in my bread machine (as opposed to my moms hand mixing) and would be more like the consistancy of mine.

    Susan

  6. I'd go! But then I go to the Caribbean a couple of times a year and have been twice to Jamaica. The entire area is known for fresh fish and fruits. Of course I travel a lot and I feel fairly confident that I can get simple foods in just about any city (not any restaurant but in any city). Grilled fish, plain.... fruit, salad, steamed or grilled veggies.

    susan

  7. I'm in the same boat... my daughter is 14 and just won't do it. I cook mostly gluten-free but she gets snacks that aren't. Also at school she eats a turkey sandwich or pizza and won't take a lunch because its geeky. She is already different, she has a life threatening allergy to peanuts and tree nuts so she feels singled out at school to begin with. She has told me she will NOT go gluten-free and without a doubt she needs too. (based on symptoms, has not had a blood test yet) but she also is like your daughter, forgets everything, coats, homework, everything.... can't sit still, can't concentrate... they have ruled out ADD so I keep figuring it must be gluten.

    Sigh,

    susan

  8. I don't want to beat this issue into the ground or make someone feel bad or picked on, but I just have a quick comment to make about "condoning cheating after a certain point in life". My question would be..... how do you decide when that certain point is?

    A short (and true story): My grandfather at 80 was healthy and living in his own house, had a nice veggie garden behind it , took care of the whole place himself. However he's 80 right! (dear old grand dad is passed away now but was born in the 1880's!! so not great health care back then). He had lost a big tree in his front yard the winter before, due to a terrible ice storm. So that spring he goes out a buys a new tree for his front yard. A 4 foot tall maple.

    His 5 kids freak out... they say, "dad you are 80 for god sake why didn't you buy a bigger tree?" He says why spend the money? They say, "because you will never see this one shading the house!!"

    How wrong they were, grand dad lived in that house for another 27 years, on his own with that veggie garden he tended every single year until he died. He did see that maple tree shading his front yard.

    So its pretty hard to decide when you've reached that "point in life" when it might be ok to start poisoning you body with gluten.

    Peace, Susan :)

  9. I wish we would all sign our posts in some way, I hate addressing people as:

    Dear tiredofdoctors.... lol anyhow, I've been mostly gluten-free for a year now, but I've still been having symptoms... a very nice woman on another Celiac list convinced me that I was still being glutened so now I'm in the process of tossing out tons of stuff, tons.....

    I do have a few questions for anyone... are these products gluten-free?

    Tide, any dryer sheets, oxy clean, sebastian shaper plus hairspray.

    I will say since I've gotten a lot of gluten-free make up and products out of my life I am feeling better.

    Susan

  10. Wonderful, I love when a company gets back to you right away and knows what they are talking about. I'm also trying to make a really complete list of cosmetics/lotions, I love to try new products and this list will really help.

    I've written to a bunch of companies and some have never bothered to get back to me... its been weeks and I guess they just blew me off (2 of which are Tarte and Bliss, which did get back to me saying they have no idea if any of their products contain gluten and why can't I have my doctor figure it out.... I asked them for more info and they never followed up).

    Susan

  11. I so agree with the post above and I too have lost a lot of respect for the medical profession, no one seems to care any more. It took me 11 years to get diagnosed and I had to change doctors to get it done. I was labeled as a hypocondriac by my former doctor which really annoyed me because I've not had tons of things wrong with me, as a matter of fact over the past 30 years all my complaints were limited to only GI things... wow how hard is it to figure out after all that time that some is wrong with my GI system??

    In my job I'm expected to know everything about what I do.... and I try too, I spend hours every single day doing research and I certainly take suggestions from clients... I'm a stockbroker. Why can't my doctor know a whole bunch about what he does and take suggestions from me?

    Susan

  12. About the alcohol.... well wine is for sure ok and I drink vodka occasionally and don't react at all.

    I have read here many times that because alcolhol is distilled there is no gluten in it. I know that Absolute just said that to someone on one of the lists, yes it grain based but because of the distillation process there is no gluten in it at all.

    I also have read on a variety of lists that for some reason it seems like a lot of gluten free/Celiac people become very alcohol sensitive... I have, it seems i get tipsy faster then i use too, so now one glass of wine is my limit.

    Susan

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