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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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Sounds great to me I can't wait to try it, except I'm going to use the jalapeno, I like spicey!! Thanks, Susan
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ARCHIVED How Do You Reward Yourself?
pixiegirl replied to Wandering Hermit's topic in Coping with Celiac Disease
Wandering Hermit... do you have a receipe for the sticky rice it sounds good. I don't reward myself for my diet because I'm so much more healthy then I was before but I am one that when I feel down, I go shopping. I have a huge walk in closet stuffed and over 100 pair of shoes.... (very silly I know...) Susan -
ARCHIVED New Delphi Lists! Product Lists!
pixiegirl replied to celiac3270's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi celiac3270.... I'm actually a member of Delphi groups but for me to be able to open the list I need to download winzip which appears to be $29. Could you send me the list you have so I don't have to buy yet another program for my computer (why can't they come with what you need). thanks, Susan bailey@cape.com -
ARCHIVED La Choy Soy Sauce
pixiegirl replied to jmj0803's topic in Gluten-Free Foods, Products, Shopping & Medications
I just want to say I'm a huge gluten reactor and every time I used La Choy I reacted. I have switched to San-J Wheat-Free Organic Tamari Soy Sauce and I've not had a single problem. I'm not saying that La Choy has gluten I'm just saying SOMETHING in it bothers me. Susan -
ARCHIVED Am I Alone In Feeling This Way?
pixiegirl replied to a topic in Parents, Friends and Loved Ones of Celiacs
Well I hate to get on the nutrition band wagon but I'm going to! I have a 13 year old daughter and so I speak from experience... if you feed your kids only processed snack food you do yourself and them such a disservice. Get them started early to good healthy foods. Yes my daughter eats chips and cookies now and then but she loves fruit, cheese, veggies... -
Hey Mel... I'm not sure what you can and can't eat, but if your interested you can tailor my suggestions to your dietary needs... I've been gluten-free since Sept 2004 and I've had really only 2 set backs, the first time on Thanksgiving (at my brothers house) and those symptoms I was able to get under control in about a week. And then 2 weeks ago I was...
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ARCHIVED New, Overwhelmed And Looking For Input!
pixiegirl replied to Turtle's topic in Coping with Celiac Disease
I have tried a bunch of ready made breads and a bunch of gluten-free mixes. The ready made ones from Whole Foods Market are good but by far the best is Manna by Anna (google it). I make it in a really old bread machine and it comes out perfectly. I wouldn't trade this bread mix for anything. If I could only choose 1 gluten free product it would be this... -
ARCHIVED New To This Forum, Gf Since 3/04
pixiegirl replied to keenpetite's topic in Coping with Celiac Disease
I get pain when I ingest gluten and mine starts about 20 minutes after eating gluten, but its at its worst the following day. I had a lot of your symptoms... fatigue, I've been diagnosed with Chronic Fatigue Syndrome and I'm not sure I ever had that, I'm almost symptom free as long as I stay away from gluten. I have various rashes and had years of sleepless... -
I eat sushi often and I always take my own soy sauce, I plop it right on the table and just tell them I need wheat free soy... they could care less as long as I'm ordering sushi! Susan
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ARCHIVED Still Glutened....
pixiegirl posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I posted earlier that I was visiting my brother in the panhandle of Florida and got really glutened even though I tried really hard not too. I talked to restaurant owners, servers and chefs/cooks. But it still happened and I got really sick. Its a week later, and I still have the runs so badly I can't leave the house.... I know since I've been home... -
I get stomach pain when I get glutened, thats how I can for sure tell its gluten and not some sort of bug... My belly and intestines actually hurt. Susan
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ARCHIVED St. George Island/apalachicola, Florida
pixiegirl posted a topic in Gluten-Free Restaurants
Well my brother is building a house in this area of Florida and we went for our first visit. For those of you not familar with the panhandle of Florida its very pretty, very "old Florida" in places, much of the area around where I was in protected in conservation areas so its all in its natural state. However, let me tell you I was glutened every single... -
I was diagnosed in September 2004 and cruised over the holiday's with Windstar (part of Holland America) and they were wonderful to me, in 10 days I was not glutened once. I have a lot of experience with cruising and food issues, my daughter has a life threatening allergy to peanuts and servere allergies to tree nuts. We have cruised with Norweigen...
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ARCHIVED Best Gluten Free Bread
pixiegirl replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I have tried virtually all the bread products mentioned here... some are ok, and some are awful (to my taste buds at least) but so often rice type breads stick to my teeth, they seem to be ground so fine that they are sticky. I have found only 2 products that to me are worth eating.... one mentioned here is the bakery at Whole Foods Markets, they are have... -
ARCHIVED Environkids New Cookies
pixiegirl replied to jaimek's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been able to get the EnviroKids Animal Crackers at our Whole Foods for quite a while, they are good and they do make good pie crusts. I love their rice bars too. Susan -
ARCHIVED Ratzinger--not Good For Celiacs
pixiegirl replied to celiac3270's topic in Coping with Celiac Disease
I've been away on vacation for a week... (and got totally glutened.... but thats another story) and I wanted to say how impressed I am with everyone here voicing various opinions and no real fight has broken out. Thats the only way we can understand others views and the best way for change to happen. I always hate when the "discussion" gets personal and... -
I travel and I have to eat out and even if I didn't, eating out is so enjoyable for me that I refuse to give it up. I agree that steakhouses are the easiest, expensive resturants I've never had a problem at, just don't go on Friday or Saturday evening until they know you. Expensive places have a chef not a cook and in my experience they have far more food...
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ARCHIVED Frozen Meals
pixiegirl replied to sdore's topic in Gluten-Free Foods, Products, Shopping & Medications
Since the original poster said they were new to gluten-free I just wanted to say as far as Amy's frozen meals you don't have to call the company or do a lot of searching to find out if they are gluten free. They will say so on the front of the package usually in the right or left hand corner of the box. Also on Amy's other products its listed too, her salad... -
ARCHIVED P.f Changs In Naples, Florida
pixiegirl replied to traci's topic in Gluten-Free Restaurants
I have had great luck dining out and being gluten-free. I travel often so its just easier for me to eat out as opposed to carrying a ton of food with me. I've had good luck at the chain places that have a gluten-free menu and the best luck at fancy resturants (I just had 2 great meals at Nick's Seafood in Chicago).... but I always try to go on any day but... -
ARCHIVED End Of My Rope
pixiegirl replied to AmyO's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I can't help you with finding a doctor since I'm not in your area but I just want you to know that there are a lot of people out there (and on this list) that are not officially diagnosed with Celiac. My doctor specifically told me I did not have Celiac. He's wrong. I had symptoms for years, like you and have the runs every time I eat gluten. ... -
ARCHIVED What Are Your Favorite Gluten-free Products?
pixiegirl replied to debygf's topic in Gluten-Free Foods, Products, Shopping & Medications
I've tried all the above and they are good but the bread mix Manna by Anna is by far and away my favorite. I made bread, muffins, buns with it, its so good. Susan -
ARCHIVED Good Tasting And Healthy Snack Bars
pixiegirl replied to Roo's topic in Gluten-Free Foods, Products, Shopping & Medications
I love EnviroKids bars (and I'm no kid!) they taste great and are fairly low in calories for a snack (and compared to other gluten-free foods like cookie). I keep a few in my purse all the time. I react to Fritos, every single time and yet they are supposedly made on a dedicated line. I don't get it, I eat many other corn products without any problem... -
ARCHIVED Crab Legs And/or Other Fish?
pixiegirl replied to jmengert's topic in Gluten-Free Restaurants
Well in a round about way, I've been dealing with this issue for years even though I just went gluten-free in Sept. 2004. My daughter has peanut and tree nut allergies (life threatening) and on top of that, is a picky eater. My daughter and I have traveled extensively and we have never had a problem with her food so now that I am gluten-free I am doing... -
I second Manna by Anna its so good.... doesn't even taste gluten-free. Susan
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You said "they are telling you to trust your doctors"..... what authority is telling you this? Quite frankly everything I've read lately, on the net, in magazines, in newspapers says just the opposite, a good doctor is just one piece of the puzzle in our total health care picture and we need to advocate for ourselves when it comes to health. Doctors...