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captaincrab55

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Latest Celiac Disease News & Research:

Everything posted by captaincrab55

  1. captaincrab55
    One needs to ask their own body what immune diseases, cancers, or other health issues it may decide to bless you with. The Medical Science Book for this disease isn't complete and there's no way that we can say what is safe for you. Don't be foolish with so called, "Cheat Days".....
  2. captaincrab55
    I second the onion issue! Read the small print warning on all pain killers. Some contain small print warning not to take them more than 10 days/month. Taking them more may cause hearing loss.
  3. captaincrab55
    IMO, You need to find several new Doctors that understand Celiac Disease. You need to be seen by a Dermatologist that knows Dermatitis Herpetiformis while you are suffering with a skin break out. Good Luck
  4. captaincrab55
    razzle, Just making skin contact causes a rash and itch for me.
  5. captaincrab55
    You could have DH. gluten-free is a strict diet that doesn't allow for an oops. If you have DH also, it may take a year or so on a strict to get total relief. Did you get your vitamin levels checked??
  6. captaincrab55
    I was diagnosed with DH in 09 and I still break out, but not nearly as bad. I follow a strict gluten-free diet, but who knows for sure about some meds or the small amounts our Government claims is safe for us. Exposure to spackle dust at work on construction sites seems to bother my skin the most. I usually get symmetrical breakouts which is...
  7. captaincrab55
    Mnoosh, Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet?? IMO, You are over reacting to a misprint or most likely a misread article.
  8. captaincrab55
  9. captaincrab55
    OK, How low was your Vitamin D level??
  10. captaincrab55
    Belle, Celiac Disease isn't an allergy. Now a question for you, will an epipen work for intolerances??
  11. captaincrab55
    Sounds like the OP's Dermatologist tested her in the wrong way. squirming, Posted some great information on DH. It wasn't till I found my 4th Dermatologist over 30 years that I was diagnosed on my second visit. I suffered from an infant till the age of 56. Most of the many Doctors claimed it was just some type of food allergy. IMO...
  12. captaincrab55
    Make sure you chose a Dermatologist that is actively treating patients with DH. I saw 4 Dermatologists in 30 years before I found one the would listen to me and knew how to test for it. The test takes 2 weeks for tissue results.
  13. captaincrab55
  14. captaincrab55
    Prescription eye drops, RESTASIS twice a day does wonders.
  15. captaincrab55
    I have DH and itchy skin is a symptom. Your Dermatologist could write a script for Dapsone, provided you're not allergic to Sulphur. Expect blood labs to go with using Dapsone. You need to study everything that goes in your mouth for possible gluten content, including all meds.
  16. captaincrab55
    When I was diagnosed, it cost me a bit over a $1000 just to make my kitchen gluten-free. It took another 4 years to zero in on other food issues with nuts, casein/dairy, corn and strawberries. Are you taking any generic meds? Corn starch is used in some meds and the wax coating on supermarket vegetables is also made from corn. So many...
  17. captaincrab55
    Sounds like you should visit a Dermatologist. You could try an Iodine patch test, but it's not accepted as the Gold Standard here n the USA. I suffered with that itch for over 50 years.
  18. captaincrab55
    Have you seen a Dermatologist?? I suffered for over 50 years, before I was diagnosed by the 4th Dermatologist in 30 years. They need to do a biopsy next to your break out. A simple iodine test will usually indicate that you have DH or an iodine allergy, maybe both. Pt iodine on the bandage part of a band aid and apply it to your skin for several...
  19. captaincrab55
    It took 9 months taking prescription (50,000 IUs) Vitamin D to get my D level into a safe zone.
  20. captaincrab55
    My health plan requires one to be diagnosed with Celiac Disease to win a brand name medication(certified gluten free) request. I've had several generic meds that caused issues associated with gluten cc. It's sometimes possible to win a social security disability case when diagnosed by the Gold Standard. Good Luck.
  21. captaincrab55
    fargo, What is your current Vitamin D level?? Low D may cause joint pain in some people.
  22. captaincrab55
    Gene testing may rule out Celiac Disease.
  23. captaincrab55
    Were you eating gluten before the biopsy? You could have DH.
  24. captaincrab55
    Try going to a new Dermatologist.
  25. captaincrab55
    Giwi777, When was the last time your Vitamin D was checked?? I had many pain issues when mine was very low.
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