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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    You can definitely do damage without any noticeable symptoms. It's called Silent Celiac Disease, and as I understand, that type of celiac disease is growing within the celiac disease population. My family is full of that type. I was diagnosed without any gut symptoms, simply because I asked to be tested. I insisted on testing my children, neither of whom...
  2. T.H.
    Another thing to add to the list of 'might be this' could be food allergies. I never thought I had any food problem, then when I was diagnosed with celiac disease and went gluten free, I felt absolutely horrifically awful. No energy, mood problems, sick to my stomach, all sorts of good things. It turns out that I had undiagnosed food allergies to a...
  3. T.H.
    Have you ever looked at this? Open Original Shared Link It's a condition that can be caused by whole grains, fruits, veggies, beans, etc... And it seems more likely to develop in people who have had previous gut issues. Both gut symptoms and mood symptoms can be present. And there are varying levels of it, so it can be mild or severe. Diet correction...
  4. T.H.
    For us? We just took the whole family gluten free. I couldn't figure out any other way to do it so that it worked. The cross-contamination was so easy to do, and the stress of constantly being aware of that started to show, with having two butter dishes, two spreads of every kind, constantly washing hands so a small person didn't eat something with gluten...
  5. T.H.
    Has she come across 'fructose Malabsorption' in her research? I only just found this recently, but it's not something almost ANY doctors in the US ever look for. In Australia, though (I'm in the US, but I've been researching, too. :-) ), they are finding that 35-45% of people with gut symptoms have mild to severe fructose malabsorption. It's not genetic...
  6. T.H.
    Thanks. :-) I have to do a foodlog right now anyway, so tracking the calories sounds like a good idea, and not too much extra work, compared to what i have to do. Can't do the rice, though, sadly. Makes my throat swell up at the moment. :-(
  7. T.H.
    Just based on your list of things to eat, I figured I'd ask something! Are you having any problems at all, now, or do you feel healthy now? The reason I ask is that I didn't see any foods on your list that provided iodine, but when I was told that I had to stay away from corn, they told me I had to stay away from iodized salt, also, as that is often contaminated...
  8. T.H.
    Oh, no I hadn't even considered lifting weights. Might be a good idea there, thanks.
  9. T.H.
    Thanks for the reply, sue! :-) Yeah, I'm kind of worried that the limited diet might deter the stabilizing, too. I know I could eat 'more' of my food to try and get more calories, but I just don't know if that will do it or not, or if there might be something else, you know? I suppose I kind of hope there's something else, since eating more of the foods...
  10. T.H.
    I hope you start to feel better right away! It's definitely a bit overwhelming at first, with the learning curve, but it slowly improves. I'm on it 7 months now, and it's much easier to figure out what I can and can't eat, and recipes for that. One thing I'd add to what everyone else has said is that you want to make sure you have a good GI doc and a good...
  11. T.H.
    Short answer: Yes, you can be glutened. However, absolutely plain beans, rice, or cooking oil don't have gluten (to my knowledge). But... - just like the rice mentioned, the beans may be cooked in broth, which could have gluten - You may ask for no seasoning, but the chicken or the beans may come 'pre-seasoned' with something that contains gluten...
  12. T.H.
    So far, the doc isn't sure. I've been fortunate to have a doctor who tests the ever-loving doo doo out of his patients, from food allergies to other auto-immune diseases - and so far, I seem to simply have celiac plus reactions to other food. If I stay away from the other foods, I seem to do okay, but the doc and dietician have me trying to find new foods...
  13. T.H.
    I'm getting to the point where I need to stop losing weight, but so far I haven't managed to do it. :-( I gained about 40 pounds in the 6 months before I was diagnosed celiac sprue. In the 7 months since I was diagnosed, I've lost about 55 pounds. I'm now 1 pound away from my 'as low as I wanna get' weight, and the weight loss doesn't seem to be stopping...
  14. T.H.
    I'd second what everyone else has said: it could be other foods. Celiac folk are more likely to have other food issues, and be more sensitive to dyes and additives in our foods. I was horribly ill after I went gluten free, too. Nausea, headaches, earaches, etc... One thing that helped me was this: 1 - cut my diet to the bone. Fresh fruits and veggies...
  15. T.H.
    I don't know if this will help, but heck, worth a try! I just found this last week: Open Original Shared Link It's involving a condition that can give you gut issues with a variety of foods from grains, veggies, fruits, etc... And it can also be caused by celiac disease (they don't know tons about it, so this is more correlation than causation, at...
  16. T.H.
    From what I understand, there is a chance you can still be biopsy negative but celiac positive. I don't remember the details - maybe that some people have damage that is not consistent in all areas? - just that a few people here have had that experience. However, my own thoughts? Whatever the diagnosis, if not eating gluten makes you feel better, trust...
  17. T.H.
    Oh, I think I gave the wrong impression! While I was hoping that my daughter might not have it (no gut symptoms), I pestered the whole family to get tested after I was diagnosed. Both she and my brother came back positive already. :-( My son was the one with some 'possible' symptoms, but he came back negative! Sigh. At least I took everyone off the...
  18. T.H.
    My son is 1 month shy of 8 and he's 45 inches right now. I also know a 10 year old little boy diagnosed about 4 years ago, and he is also very small. As to if there might be something else? I've seen one thing that might be of interest. This article here on the site: https://www.celiac.com/articles/21964/1/Linear-growth-Impairment-and-Anti-pituitary...
  19. T.H.
    Good for you! We did the same thing, with similar results. It's great when we can find out what's been bothering them! congrats!
  20. T.H.
    I would also wonder about CC for the gluten-free spreads you have - does anyone with gluten foods dip the knife into these after they have already touched their bread with the knife? But re: food issues - if it's all the time? I would think the best thing to start with would be what you eat daily, yeah? Tea or coffee? (I found out I was allergic to coffee...
  21. T.H.
    I definitely have something similar to the breathing issue. Best I can figure, it's "an allergic reaction confined to the digestive system" when I inhale food particles in the air...if it's something I'm really sensitive to. (I basically googled my butt off to try and find that out, LOL). Basically, if it hits the mucus membranes of the lips, tongue, or throat...
  22. T.H.
    Maybe her doctor was like mine? He has all his celiac patients stay away from synthetic food dyes, additives and preservatives - he said that people with celiac seem to have a greater chance of sensitivities or reactions to these, as well as a greater chance of developing sensitivities to these if they continue to eat them. So maybe it's that? As...
  23. T.H.
    I had a sheet of Nori seaweed and got glutened, best I can tell. Later, I was reading that many of the companies that process nori seaweed do it on machines shared with wheat products. However, I've been having a heck of a time finding information about what brands might be gluten free and safe. Anyone know of any?
  24. T.H.
    When I was diagnosed with Celiac, I had no overt symptoms when I would consume gluten. And when I went gluten free, I realized that this lack of reaction made me nervous. How would I tell if I was getting damaged if I don't notice a reaction to the gluten? So last week, I ate something that I found out later had gluten. Before I went gluten-free, again...
  25. T.H.
    So sorry you're having such a hard time of it! I really understand the specialized food thing - in the beginning, there is such a learning curve it feels like every spare moment is dealing with food: figuring out what's safe, how to cook it, how to afford it, how to avoid it, etc.... I was so stressed by it I wanted to cry all the time at first. So...
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