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BlessedMommy

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Everything posted by BlessedMommy

  1. BlessedMommy
    The cake sounds awesome!
  2. BlessedMommy
    I had very severe issues during my gluten challenge (neurological) and I've had to accept the fact that although I have obvious gluten issues, I will never be diagnosed and for my own safety can never attempt another gluten challenge, because of the risk of going on to have another TIA or worse yet, having a full blown stroke. That is hard for me, because...
  3. BlessedMommy
    Yep, I'm just going to add in 1/2 to 1 regular sandwich per day and still keep my house at the same level of sanitation gluten free wise. I ate a lot of gluten during my own challenge and possibly I could've made it through (but maybe not, who knows) if I would've stuck to the 1-2 pieces of bread per day thing. As far as my medical history, I normally...
  4. BlessedMommy
    DD's nurse said that she would make a note for the doctor to give me a call. The doctor doesn't get back in until next week. The person that I talked to at DS's office readily told me that doing a gluten challenge should be fine. So here we go! Wish us luck and hopefully some answers.
  5. BlessedMommy
    ^Yep, that exactly! Good luck!
  6. BlessedMommy
    My doctor refused to do allergy testing and told me to go home and experiment. Yes, those two were eliminated at the same time. So, thank you everyone for your patience and helping me talk through this. I've decided that today I'm going to call both my kids' doctors' offices and let them know that I want to do a gluten challenge with the kids. (I have...
  7. BlessedMommy
    Yes, I agree. I don't want to have her on a restrictive diet solely because of something like this. That's why I'm trying to investigate further. ravenswoodglass, that is a good idea to do a gluten challenge before the appointment. My appointment is on September 10. Would that be a long enough gluten challenge or should I push the appointment later?
  8. BlessedMommy
    She gets a rash after gluten exposure. When she was on gluten full time, it was very painful, raw, red and bleeding. That primary symptom was why the doctor recommended an elimination diet. Her rash cleared through elimination of gluten and dairy. She does typically sneak something with gluten once in awhile. And does get CC'ed and other forms of exposure...
  9. BlessedMommy
    What was in the vegetable salad? Was it a classic green salad or something more complex?
  10. BlessedMommy
    Yes, I think that we need to do a gluten challenge for her. My daughter is perfectly willing to do one, as she hates avoiding gluten and would much rather not be gluten free if it's not necessary! LOL! Her diet could be classified as "gluten light" and I seriously doubt that she's been eating enough gluten to produce antibodies if she did have celiac...
  11. BlessedMommy
    I think that maybe I'm getting too prematurely worried. I think that the doctor needs to know our history and our concerns and that I don't want to have to unnecessarily restrict my kid's diet, but that I don't feel like I can feed my kid regular food without consequence either. Then hopefully we can start the process of figuring this thing out and end our...
  12. BlessedMommy
    Should I ask the doctor for the genetic test right off the bat for my daughter then? If it was negative, then we could rule out celiac totally. That would be cool! My issue is that my daughter has reactions to gluten, has problems with dietary compliance, and due to bad medical advice, I tried to take her gluten free years ago and now we are stuck in the...
  13. BlessedMommy
    Maybe "dinner" was the wrong word. I fixed my kids a big meal about 2 hours ago, and we are going over there in 40 minutes or so, so it will basically amount to a post dinner snack.
  14. BlessedMommy
    I'm not DX'ed and honestly very few people really care whether I have celiac or not. It's just not that big of a deal. As long as you know in your mind what you need to do and are 100% strict and consistent people will quickly figure that out and those who are true friends will support you. My inlaw's went so far as to buy me a new grill for gluten free...
  15. BlessedMommy
    I was thinking though that even folks who didn't have their lighter meal in the evening could find useful variations on this theme. Like go to a bonfire at your friend's house and roast potatoes in tin foil or something.
  16. BlessedMommy
    LOL! Our friends and I normally have our heavier meal at lunch, so this is completely normal for us.
  17. BlessedMommy
    I'm putting together a descriptive paper on my daughter's symptoms, family history, etc. to take to her new doctor for DX. (her new doctor actually really likes detailed notes like that from patients) The new doc is so booked up that I can't get my daughter in to see her until September, so I have lots of time to try and get things as concise and descriptive...
  18. BlessedMommy
    We are going over to our friend's house tonight and are having watermelon, air popped popcorn, and freshly made fruit sorbet. (just made of frozen whole fruit run through a Champion dinner) I'm so stoked that I don't have to worry about gluten and CC tonight. (everything is gluten free and there's not much opportunity to CC anything, since nothing is...
  19. BlessedMommy
    Don't beat yourself up, I think that we've all had those moments. I remember once finding out that a SALAD that I thought was gluten-free and had checked the ingredients with the lady who made it, had a seasoning with soy sauce in it in the homemade dressing. I thought that I had ingredient checked and apparently I wasn't thorough enough. Yep, a lot...
  20. BlessedMommy
    It seems like the best bet is maybe to do the challenge for the biopsy, since it's a shorter challenge. Unfortunately there are no good or easy diagnostic answers for people who are severely intolerant to gluten and already gluten free and don't have a formal DX. I could never survive a 12 week gluten challenge, so I opt to live 100% gluten free and treat...
  21. BlessedMommy
    As a rule of thumb for celiacs/NCGI, when dealing with food provided by others it's best to stick with single ingredient foods unless the person has been educated on celiac disease. The enchiladas may have been cross contaminated. Or they may have had actual wheat in them--not all enchilada sauces are gluten free. If you're changing over to gluten free...
  22. BlessedMommy
    Yeah, the wooden spoons and cutting board may be the culprit. If I were you, I would just buy your mom a new set of wooden spoons and a cutting board as a gift.
  23. BlessedMommy
    I don't live in that area, but when I went to Chattanooga on vacation, I dined at PF Chang's.
  24. BlessedMommy
    Oh okay, that makes sense! So apparently there are other things that can affect the gut?
  25. BlessedMommy
    If you don't want to talk about food, you can change the subject as quickly as possible. The other person: "Oh is that gluten free bread good?" You: "Yes, this brand of gluten-free bread is excellent. Hasn't the weather been excellent lately?"
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