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RoseTapper

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by RoseTapper

  1. RoseTapper
    Keep us posted on your test results. I also don't agree that IBS is a condition--I truly believe it is just a symptom. It's the most common misdiagnosis of celiac. My daughter was diagnosed with IBS of the small intestine when she was 15. Ridiculous! Now, of course, we know she had celiac, but the gastroenterologist never even suggested testing her....
  2. RoseTapper
    I'm so very sorry that you feel so ill right now. I know how hard it is to live and eat on a skimpy budget--I usually just eat mashed potatoes or tomatoes from my garden during the last week of the month because I've run out of money to buy food. It can be discouraging, I know. Although I don't normally tout processed foods, since I've been eating pretty...
  3. RoseTapper
    I thought I'd pop back in to mention that after you go gluten free, it can take quite a while before the diarrhea goes away. You're young, so maybe your intestinal lining will heal more quickly than mine did, but it took 18 months before I finally felt "normal" in that regard. However, I did see some real improvements within 5-6 months. The reason why...
  4. RoseTapper
    I'm VERY glad to learn that you're going to go on a gluten-free diet, because your symptoms sound like the same ones that many of us on this forum suffer from. I don't have all of your symptoms, but I have had most of them--and more. The fact that you're in the military worries me, though. Did you know that people with celiac can't serve in the military...
  5. RoseTapper
    Flour on wine corks? Sorry...this is nonsense.
  6. RoseTapper
    So...you're coming to the U.S.? You might encounter a little culture shock because of how poorly celiac is understood here. You might wish to obtain a list of the restaurants that offer gluten-free menus; otherwise, you'll need to ask a LOT of questions at the restaurants you visit. Yes, the tea was at the Queen Victoria Building, but I didn't get sick...
  7. RoseTapper
    I just got back from visiting my daughter in Sydney, Australia. You would not believe how easy it is to live a gluten-free life there! Most restaurants list whether a meal is gluten free, and they happily accommodate people by substituting different ingredients. In addition, gluten-free bread and pizza were available at almost every restaurant I visited...
  8. RoseTapper
    Personally, I haven't had a gluten reaction to any of those candies (and I've eaten them many times). I think your suspicion about what may have been on the others' hands may lead you to know what caused your symptoms.
  9. RoseTapper
    Okay, your situation sounds very familiar to me. I, too, was severely anemic and ill after getting a celiac diagnosis. I was so fatigued, I actually pulverized iron tablets and placed the powder under my tongue, hoping that sublingual iron would make me feel better. Well, I did feel better almost immediately, but my teeth instantly turned black. It seems...
  10. RoseTapper
    Interesting....I recently attended a celiac conference, and I learned that schizophrenia is common in people with celiac. When celiac is the cause, the symptoms disappear with a gluten-free diet. You stated that you've avoided gluten lately, but do you really know exactly what contains gluten? You might consider throwing yourself wholeheartedly into following...
  11. RoseTapper
    Gemini, I know it's an ongoing debate regarding external products that contain gluten, but I know from PERSONAL experience that I break out in DH big time whenever I use a shampoo or makeup that contains gluten. I don't know of a single study on this subject, so until there has been at least one study with confirmed data, it cannot be stated definitively...
  12. RoseTapper
    As they say, "When you have your health...." Glad to hear that you're feeling better even though the economic outlook appears poor. If you have a computer, you might consider starting an Internet business, which is easier to do than one might think. I can recommend the book "Internet Riches" by Scott Fox. After I read it, I had more ideas than I knew...
  13. RoseTapper
    Yes, you should have her ferritin level checked--when it's low, fatigue and trouble sleeping can be common. However, if she DOES have a low ferritin level, it's possible that oral iron will have no effect, since she may not yet have the ability to absorb it. When I first went gluten free, it took nearly a year for my anemia to resolve itself. Then, when...
  14. RoseTapper
    I also see no reason for a gluten challenge. There's simply no point. If you feel better without gluten, then you either have celiac or are gluten sensitive. Case closed.
  15. RoseTapper
    Okay, I'm going to take a differing point of view here. My DH developed in my early 30s, and for four years I was tortured with it. However, I noticed that when I took an anti-histamine, the itching and blistering would decrease somewhat. That led me to believe that the rash was the result of an allergy, and I eventually identified iodine as the culprit...
  16. RoseTapper
    You're received excellent advice, and I second all of it. I just wanted to jump into the conversation to say that what you're experiencing are truly neurological disturbances. At the Gluten Intolerance Conference's annual conference in Minneapolis last month, several experts presented information that was completely new to me--they said that celiac is...
  17. RoseTapper
    I think you're doing everything right, but you need to understand that it can a long time before your thyroid works right on new meds. It took over a year for my thyroid to decide to behave, and I also take the kind with T4. From what I've read, as the thyroid is dying, it comes back to life in spurts. This throws off the body as the thyroid meds are then...
  18. RoseTapper
    According to an expert who spoke at the Gluten Intolerance Group's Annual Conference last month, 7 out of 10 celiacs will test negative for celiac unless there is TOTAL villous atrophy. The tests for celiac aren't perfect, and, in my opinion, you're a poster child for this disease. Pay no attention to the doctors or your family on this matter--YOU know...
  19. RoseTapper
    Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.
  20. RoseTapper
    All I can say is that, with the low ferritin level, you're definitely going to feel tired. When I was diagnosed with celiac, it took a long time for my ferritin level to increase--I finally needed intravenous iron infusions over a two-year period. With regard to testing, at a recent celiac conference, one expert stated that in 7 out of 10 celiacs, the...
  21. RoseTapper
    Oh, BTW, asparagus is also high in iodine.
  22. RoseTapper
    My shins (and sometimes my ankles) have itched for years! I have celiac and have been gluten free for the past 6-1/2 years, but the darned shins itch almost every evening. It's a mystery to me, too.
  23. RoseTapper
    Ummm....yeah, I was thinking a baby. Is that possible? They usually do a fluttery thing several times an hour...
  24. RoseTapper
    I also suffered from a low ferritin level for years after being diagnosed with celiac. Your doctor SHOULD know that tests are available for both vitamin and mineral levels--I think you need to see a new doctor. I'm serious. I had to change doctors four times before finding one that would help me. Most doctors simply don't understand how celiac and wreak...
  25. RoseTapper
    Yes, I also learned from Peter Green (from reading his book--which is great, BTW) about iodine, and it explained why I was able to control the DH for most of my adult life. I actually thought I had an allergy to iodine, since the blistery rash appeared after I ate something with iodine in it. One place for iodine contamination that most people don't look...
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