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Jean'sBrainonGluten

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Everything posted by Jean'sBrainonGluten

  1. Jean'sBrainonGluten
    I get fewer migraines and my allergies and acne are less severe. Also, I can think more clearly.
  2. Jean'sBrainonGluten
    Hi, If you search through the forums here and online you will see that a substantial number of people, including me, experience mostly neurological symptoms. Here is a link to one of many articles. Open Original Shared Link I test as negative for celiac and I decided it didn't matter because when I don't eat wheat I can think clearly, more or...
  3. Jean'sBrainonGluten
    Sorry about the earlier post - I haven't been on the forum for awhile. I have no idea precisely what is happening with you but I would suggest doing some kind of rotation elimination diet with a food/symptom log to try to get clarity. To start with I seemed to have so many problems that it was hard for me to sort out, like you. Initially I did a three...
  4. Jean'sBrainonGluten
  5. Jean'sBrainonGluten
    Hi, Actually the neuro symptoms of dizziness and nausea were eventually the most challenging for me. If the blood tests are negative you may still have a different kind of gluten or wheat sensitivity. So two things - you might want to do some web searches on gluten ataxia and neurological symptoms. Also you might try a gluten free diet being careful about...
  6. Jean'sBrainonGluten
    I do get tremors in my hands that I can see but not feel - see my discussion of scary symptoms and trust in the process, above. It's kind of horrifying that wheat or gluten can cause symptoms this extreme and be so unknown. The saddest case I saw online was in a psychiatric journal - about a 67 year old woman with 'IBS', visual disturbances, white matter...
  7. Jean'sBrainonGluten
    I'm not sure what you mean by not feeling the movement. I got twitching in my legs when I was lying down. I didn't feel it directly but I felt my skin moving against the bedclothes and the bed moving because the twitches were quite strong. What I decided is that some of my symptoms are scary and I wish they would go away faster but I had the MRI and...
  8. Jean'sBrainonGluten
    Yay!
  9. Jean'sBrainonGluten
    I know you're hurting and sick. You can hope he'll eventually come around but in the meantime could you try something like scratching his back? My husband just really likes to be touched and I found if I got a skin scrubber thing (like for exfoliating the legs or something) and scratch it over his back he's very happy and feels loved and it doesn't tire...
  10. Jean'sBrainonGluten
    People list different times but between 6 and 8 weeks on daily gluten. You should check the web to get a sense of how much you need to eat each day. I think, for example, that one slice a day isn't enough to trigger the response. The thing about not getting tested is that, for me at least, as long as I didn't have a positive diagnosis I felt like I...
  11. Jean'sBrainonGluten
    Hi CGally81 You clearly have a lot going on and it may take you awhile to get sorted out. I'm going to take sort of a different approach since I noticed that you've posted similar questions in several areas. With all the things you try it can be helpful to write down what you eat and how you react, because it's easy to forget and not be able to see patterns...
  12. Jean'sBrainonGluten
    So to summarize and add to the suggestions I see here Hard boiled eggs, wraps using lettuce (or I saw one recipe for a spinach egg tortilla) to hold edibles like a sandwich or pita individual serving size cans of fruits (if you can tolerate them) You could make a preserve like fruit compote....? homemade jerky or other dried meat bean salads cheese...
  13. Jean'sBrainonGluten
    It's a pain but for the time being I would just wear the gloves while making the sandwich. I've reached the point where I reflexively wipe down surfaces in the whole kitchen when a family member makes toast and I'm not going to cook gluten pasta anymore because I was reacting to that. I'm think of wearing a mask while dusting, for that matter. It's possible...
  14. Jean'sBrainonGluten
    Hi I'm not sure why the leg lifts help me. I am careful not to do too many - less than 15 and only a couple stretches. So here's a technical discussion on why I think it's a muscle/brain stimulation thing.... Twenty eight (?) years ago I was a lab tech for a psychologist studying whether exercise helped rats recover from brain trauma, which it clearly...
  15. Jean'sBrainonGluten
    Hi, I am a little confused by your post but since you mention that you feel confused I'm going to take that as a symptom and do a symptom list from what I see in your post confusion fatigue mild constipation stomachache weight loss bad breath ?hair trouble? - your name The symptoms of celiac and gluten intolerance are really varied so you ...
  16. Jean'sBrainonGluten
    If the lab results come back negative please don't get discouraged. You could still be reacting to gluten or wheat. Wheat has about 500 proteins in it and gluten is an enormous molecule. The test they use look only at whether you are reacting enough to a small part of the gluten molecule to damage your gut. You could have wheat allergy or gluten sensitivity...
  17. Jean'sBrainonGluten
    Hi Kayla, I am so sorry you are suffering this way. I agree with the recommendations of others. From my perspective it sounds like you're showing symptoms of neuro involvement *unexplained all-day headaches (back base of my neck a lot) *fuzzy warm foggy feeling in my head that generally clouds my ability to remain focused and productive *irritability...
  18. Jean'sBrainonGluten
    I can relate to the rash from suntan lotion and the dizziness in Subway. I don't shop in stores with bakeries unless I have absolutely no other choice. Medical doctors can be so frustrating and most of them know zilch about celiac, much less gluten sensitivity. The issue of testing depends on you. I'll tell you my story and then ask...
  19. Jean'sBrainonGluten
    That's probably too long for a reaction from something she didn't completely digest. If she is healing with the gluten free diet her need for supplements may be changing. Can she reduce or cut in half the supplements - maybe trying one at a time depending on symptoms - to see if that could be her problem? You or she could do a search combining each supplement...
  20. Jean'sBrainonGluten
    Hard boiled eggs and hard cheeses are pretty portable. There are gluten free potato chips that would be portable and satisfy the snack craving. There are recipes for making your own jerky at home in your oven so then you could have portable, snackable meat for yourself. You may find that as your body heals you can try to reintroduce foods but that's probably...
  21. Jean'sBrainonGluten
    I still want to urge you to consider that you have some kind of bowel blockage or ineffective muscular activity for clearance. Here is a site that gives the symptoms. Open Original Shared Link I have had nearly all the symptoms plus chills and basically the only way I avoid them is to do the daily acidophilus (try pills if you are lactose intolerant...
  22. Jean'sBrainonGluten
    Not to be gross but if you're only 'going' every couple days you probably could benefit from taking magnesium malate and drinking a some ginger tea to get more regular. Don't overdo either but the bloating was my constant companion until I started working on the constipation, even after gluten free. I still have to drink ginger tea, do Pilates exercises...
  23. Jean'sBrainonGluten
    The best 'restaurant card' I have seen is included in the book by Elizabeth Hasselback. I know she's controversial but her card mentions the possibility of cross contaminations and the need to cook with clean utensils and not use flavorings with grain derivatives. If you don't want to get the book I'd suggest looking at the card and copying the wording....
  24. Jean'sBrainonGluten
    The thing with neuro symptoms is that they reflect damage to the brain and the papers I've looked at imply that it takes about a year gluten-free to clear up, but you have to be really scrupulous about cross contamination and not eating grain derivatives in flavorings. You should start to see improvement soon, depending on your age (younger people heal faster...
  25. Jean'sBrainonGluten
    Sorry you feel so bad - I hope you are better soon. It's almost like we should freeze some meals ahead for ourselves so we have something to eat if we get sick like this and especially need, but don't want to make, healing foods. Good luck!
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