phakephur
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Latest Celiac Disease News & Research:
Everything posted by phakephur
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ARCHIVED Gf Beer
phakephur replied to GlutenFreeGirlie's topic in Gluten-Free Foods, Products, Shopping & Medications
this is unrelated, but when I was in the library last night looking for a book on tape, I saw a title that made me laugh: A Fatal Glass of Beer -
Can someone point me to a link for the literature that shows the increased cancer risk of 40-100 times for celiacs who do not follow the diet? I'm wondering how that number can be assumed to be accurate given that the majority of celiacs go undiagnosed (and therefore do not follow the diet). Thanks in advance. Sarah
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ARCHIVED Twilight Zone Of Cd
phakephur replied to debmidge's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi debmidge, This is something I've thought a lot about. PM me if you'd like to chat some about it. Sarah -
Generally when somebody tries to rub my nose in the diet by telling me they could never give up a certain food, I'll say something like "You never know what you can do until you have to. But if what you say is true, I feel bad for you because if you ever have a health challenge that requires some self discipline on your part, you're screwed."
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Yet there is a tendency among celiacs to cite absence of symptoms as evidence that a food is gluten free. So if Tracykobegf had not inquired about the frier, he/she might have reported an eating out success story in a format with which we are all familiar, "I eat the fries at such-and-such and have never had any problem."
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ARCHIVED Companies That Don't Hide Anything
phakephur replied to phakephur's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks, Kaiti! I was too lazy to call them since I generally don't eat stuff like that. -
ARCHIVED Companies That Don't Hide Anything
phakephur posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Zatarain's is on a list that surfaces on this forum periodically of companies that don't hide allergens in their ingredient list. So out of curiosity today when I was in the grocery store I picked up a box of Zatarain's rice (I don't remember which flavor) and saw that the ingredient list contained "soy sauce" without listing the constituent ingredients... -
ARCHIVED Drink It Thru A Straw?
phakephur replied to whitelacegal's topic in Parents, Friends and Loved Ones of Celiacs
maybe it's the potable equivalent of "not inhaling" -
ARCHIVED How Many Parents Found Out After Their Children..
phakephur replied to key's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Nisla. I forgot they had done that in the Raleigh store when I was looking for bread in Chapel Hill. I guess it's a company wide thing. Now I'll have to nuke my brownies in that filthy microwave when I stop in there for coffe, not to mention that it was a lot easier to scope out single celiac men when the g.f. rack was out in the open -
I would rather have a shirt that says "the ubiquity of wheat sucks!"
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ARCHIVED How Many Parents Found Out After Their Children..
phakephur replied to key's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My mother got the blood tests (at my insistence) during her last physical but never got the results; the doc's office didn't call her and she never followed up. She's always regarded celiac as "my thing", something that will never affect her. Here we are a few months later and she's starting to have persistent diarrhea and a rash on both elbows. Although... -
Maybe that's "Why French Women Don't Get Fat"
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ARCHIVED How Do You Make Then Understand What It Is!
phakephur replied to roddi's topic in Parents, Friends and Loved Ones of Celiacs
Stef, Your insensitive friends have inadvertently put their finger on the rub. Wheat and its derivatives generally don't belong in salad dressings or potato salad or ice cream or a myriad other things, but there it is. It's not giving up Bunny Bread that makes the diet so tough, it's having to dodge all the bastardized foodstuffs. I can't wait until next... -
ARCHIVED Two Experiments
phakephur replied to blueshift's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
blueshift, What are the claims about bone marrow gel? You might be able to get the extract using a slow cooker so you aren't tethered to the house while your bones boil. Sarah -
ARCHIVED The Warning Label
phakephur replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
I would assume the absence of a warning label would indicate lack of awareness of the gluten free lifestyle, not necessarily the lack of cross contamination. -
That's good to know. Thanks a lot, Richard. Sarah
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ARCHIVED Celiac Disease In The News
phakephur replied to celiac3270's topic in Publications & Publicity
This may not be the right thread to add this, but Keith Olbermann mentioned celiac on his show last night. The stick puppets from Michael Jackson Puppet Theater are being auctioned on e-bay and 100% of the proceeds go to the celiac sprue association. I kind of wish Keith hadn't said he has a "mild case of it". I'm sure he was being sarcastic but people... -
Richard, Is that something that applies specifically to the plumping solutions used for meat? I thought "flavoring" or "natural flavors" were suspect until the allergen labeling law goes into effect. Sarah
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Health Valley rice bran crackers taste similar to graham crackers. They are available in the US at Kroger in the natural food section. The label does say "gluten free ingredients" rather than claiming to be totally gluten free. Some people aren't comfortable buying products labeled as such. I've never had symptoms after eating them. Sarah
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ARCHIVED Help - Are These Ichy Bumps Dh?
phakephur replied to dperk's topic in Dermatitis Herpetiformis
dperk - Maybe it is something in the barn. I don't live on a farm, but I have 2 horses that I board near my house. Sometimes after I've been to visit them I have itchy blisters on my face in the same place where I used to have full blown DH before going gluten free. It doesn't happen every time. Usually I get an outbreak when I've spent more time in the... -
I'm bumping this question back to the top because I'm really curious about this. Mel, your post about the catering hall reminded me that nobody had replied yet. Sarah
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Hi Mel, I totally gave up eating out 2 and a half years ago. I ate out a couple times after diagnosed and didn't get sick, but after reading about all the possible sources of contamination, it just seemed too likely to me that I would get dosed in a restaurant. I regard my good experiences eating out as the product of luck rather than skill in ordering...
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How do you know what things on the buffet are safe? Boiled eggs in the shell or unsliced fruit would be obvious to me, but what other things can you safely get without asking the same questions you would when you order an entree? Sarah
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ARCHIVED Going On A Week Long Trip..
phakephur replied to curiousifcd's topic in Traveling with Celiac Disease
Check out Tamarind Tree prepackaged Indian meals. They don't require refrigeration. I have found these in 2 chain grocery stores. (I'm in southeast US). These meals include precooked rice which you need to rehydrate and a nice dish to put on top, so if you have access to a microwave it would be easy to heat. I recently took one of these on a day long... -
ARCHIVED New And Frustrated
phakephur replied to foodphobic's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Wendy, Don't those George Foreman grills have teflon or other non-stick coating? If that's the case and it was used previously to cook gluten containing foods, there could be contamination in the non-stick surface. Just a thought since it looks like you are being diligent with ingredients. You're on the road to wellness. Hang in there. Sarah