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phakephur

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Everything posted by phakephur

  1. phakephur
    I'm wondering how we know this. What studies prove it? I've posted this question several times before and never gotten the answer. Please note that I am not disputing that celiac is a lifelong disease, just wondering about research that steered the medical community away from the belief that gluten tolerance could be regained.
  2. phakephur
    The estimated rate is 1 in 133, but only a fraction of them are diagnosed.
  3. phakephur
    Here is an article about a woman who apparently went into remission after 10 years on gluten-free diet. I haven't seen any followup to this. Given that it used to be thought that children outgrew celiac disease, I'd like to know what research was done to show that it is a lifelong disease and when was it done. 1970s? 80s? Sarah
  4. phakephur
    Researchers seem to think that a celiac's fondest wish is to be able to eat gluten again. That's true for some of us, but I think a lot of us would just like to eat gluten free more easily, conveniently, cheaply. Right now the variety and availability of gluten free foods is increasing in grocery stores and restaurants. I wonder if that trend will reverse...
  5. phakephur
    Josh, Bottom line is, on this forum, if you admit to biting off the corner of a saltine cracker you'll get the cancer lecture. If you accidentally get glutened at a restaurant, you'll get lots and lots of {{{{{HUGS}}}}}
  6. phakephur
    Yeah, the fragrance addicts who can't pry themselves away from the curtains or the couch or whatever has been sprayed. I call them "the huffers."
  7. phakephur
    I call this "the stench of the well-groomed" I call this "the vapor trail" One thing I really hate is how Sunday night is laundry night in my neighborhood, and all the dryers are venting dryer sheet stench simultaneously. The entire neighborhood is under a miasma of "mountain breeze" and I can't go walking without getting a headache and sore...
  8. phakephur
    What will be the effect of this pill on the burgeoning gluten free food market? I am concerned that the development of a pharmaceutical therapy for celiac disease will result in the availability of fewer rather than more gluten free options.
  9. phakephur
    I love how these parents are so concerned about their children's diet/health and then they take them to McDonald's.
  10. phakephur
    I don't understand the sense of entitlement about eating in restaurants. It's a place of business, not a public park. If you think it's unfair to be barred from bringing your own food in, is the "No shirt, no shoes, no service" policy out of line? I also don't understand why anyone would threaten restaurant personnel with legal action or projectile vomiting...
  11. phakephur
    Has anyone seen a followup to this article on celiac.com in Feb 2006 about the woman who went back to normal diet after 10 years gluten free? The abstract has results for 15-month followup, but I wonder what the longer term health results have been. Sarah
  12. phakephur
    Article on cnn.com entitled Open Original Shared Link specifically mentions gluten sensitivity as culprit in digestive symptoms.
  13. phakephur
    For the most part I do. I was one of those people who had a lot of anger about the disease and I've made a lot of progress with my rage issues. I'm to the point now where I don't even really listen when people start telling about all their restaurant experiences or the dessert they had. I just roll my inner eye and think "all eating out, all the time....
  14. phakephur
    So my best friend calls me this morning and the first thing she says is "I've never cared for oatmeal. But I picked up a loaf of oatmeal bread and I don't think I've ever had anything as good." Well, I'm happy for you. But why don't you share that with someone who can delight with you in the joys of soft, delicious, store-bought bread? You can gorge...
  15. phakephur
    If you worry about the ocean, then you can worry about municipal water supply as well. I think either is too paranoid. Don't make yourself crazy.
  16. phakephur
    I thought this part was interesting. I'm sure these patients don't try gluten-free diet before their doctors pronounce their condition unresponsive to any other treatment.
  17. phakephur
    There is an Open Original Shared Link about gluten free diet. No new information. The link may not work if you don't have an account.
  18. phakephur
    Brief Open Original Shared Link in New Scientist about Genetic Information Nondiscrimination Act
  19. phakephur
    That's really great. Are they friends of yours? I have tickets to see Alfred Brendel play with the NC Symphony in 3 weeks and I'm pretty stoked about it. Sarah
  20. phakephur

    ARCHIVED Kiss & Tell

    phakephur replied to L.A.'s topic in Coping with Celiac Disease

    angelbender, you seem pretty new, so you might not have seen Open Original Shared Link I've had a lot of anxiety about the dating scene, too. I just started a new relationship about 6 weeks ago and the gluten thing hasn't been much of a problem. This guy is a homebody like me so there's not a lot of pressure to go out. He doesn't cook and I do so that...
  21. phakephur
    You had this rash before celiac diagnosis, right? Does this iodine allergy persist after starting the gluten free diet? I thought DH was the dermatological manifestation of celiac, sometimes exacerbated by iodine, but you don't get the rash if you are gluten free.
  22. phakephur
    There is, but I don't think it's very active. Here's a link Open Original Shared Link If you don't get a reply when you contact them, try this e-mail instead warli001@duke.edu Sarah
  23. phakephur
    Those abstracts are interesting, but they are from recent studies. Was it only as recently as 2005 that doctors began advising us that celiac cannot be "outgrown" as some food allergies can? In any event it doesn't matter because it's just a trivia question.
  24. phakephur
    All - To be clear, I don't dispute the veracity of the statement "celiac can't be cured", I'd just like to know where that information came from, particularly since it used to be thought that the opposite was the case, and also because it is stated so frequently on this board. That said, I do believe that "gluten free for life" is the best and safest...
  25. phakephur
    It used to be thought that celiac was a childhood disease that would resolve spontaneously with age. Now the gospel is that once you have it, you have it for life. We see that over and over again on this board. I've been wondering for a while at what point this shift took place. Can someone point me to the research which shows that a person can never...
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