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wjp

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by wjp

  1. I am 53, gluten free for 2 1/2 years and can't give advice on young children. After saying that I just wanted to let you know that I get sick if I eat the wheat/gluten free oats. I saw that your 2 1/2 year old was eating those. Good luck in your search. Keep at it mom, children are so precious.
  2. I eat out alot and I know I am taking a risk each time. Many restaurants in my town try to accommodate me and I appreciate all their efforts. If I get stung twice, I don't go back. That's my rule. Would never consider suing. I have had one Mexican restaurant refuse, therefore I don't eat there. We are responsible for ourselves.
  3. Yes, it can be that fast. When I went gluten-free, I woke up on the third day of gluten free and the headache that I had was gone. I had this headache for 2 years. The water weight and bloating I had was gone. Over time all of the symptoms in which I had complained to doctors about for about 5 years was gone. I only get these symptoms if I get gluten...
  4. Last Thanksgiving was my first gluten free Thanksgiving. I did have everyone at my house and yes it was totally gluten free. Maybe you can cook a mini-thanksgiving dinner on Wednesday evening and take some leftovers for you the next day. There are some wonderful gluten free stuffing recipes out there. It doesn't have to be huge meal but maybe some of...
  5. I was on Synthroid for the lst year I was gluten free. I didn't realize at the time that Synthroid for causing a problem. I am very strict with my diet and did not realize that the dizziness/vertigo I was still getting was caused by Synthroid. When I read back in the Spring about Synthroid possibly having cross contamination, I switched to Levoxyl. Stopped...
  6. Since M&M's started making the ones with pretzels, some bags of regular M&M's have been contaminated. I used to be able to eat M&M's but it's a gamble. The bag may be fine or it may not. I called the company and they told me that many of their plants have been cross contaminated with the new ones with pretzels. They started making them last...
  7. As far as I know Texas Roadhouse does not have a gluten free menu. But our local Texas Roadhouse's manager happens to have Celiac so I have eaten there many times safely. But one time after eating half of my salad, I came across a couton. The manager stated that a new employee didn't realize the importance of making a new salad if they accidently start...
  8. The trick to using Betty Crocker mixes is to always use 1 extra egg. I did this to the cookie mix and it turns out great. Also I use their yellow cake mix for the base for many recipes. They have an awesome banana bread recipe on their website. I put in 1 extra banana but use the recipe as is from there. Have tried many of their recipes on www.bettycrocker...
  9. Yes you definately been glutened. Unfortunately it could have been the vanilla or the pans and items your friend used to make it for you. I'm usually ill for about 3 days, depending on how much I was glutened. All the symptoms you mentioned are the ones I get. Cross contamination, I believe, is our worst enemy. This is probably what happened. When well...
  10. Just to let you know Synthroid cannot promise that their product is gluten free. I just went through this myself. Been gluten free since 01/10 and my thyroid medicine was switched 04/10 to Synthyroid from the generic. Started in last June, started having vertigo and dizziness off and on up to this past April when I learned that it was possible Synthroid...
  11. I always take Nature Valley Roasted Nut Crunch "Almond Crunch" bars with me on all trips. They are a great back up when there seems to be nothing safe to eat. They have "gluten free" right on the box.
  12. Swelling of my ankles and legs was one of my main complaints before going gluten free. Then my stomach started to swell and I was always bloated after I ate. When the doctors diagnosed "celiac" and told me to go on a gluten free diet, I lost 6 pounds within 1 week and I know it was the fluid that I have been carrying around for probably 3 or more years...
  13. I have been gluten free for 1 year now and the best way to satisfy my cravings is to find gluten free ones. Just last night I had pizza. I make this a couple of different ways but the fast way is this: Use corn tortillas, pizza sauce (I found a great one at Harris Teeter, starts with De F-something-can't remember the name), cheese and whatever toppings...
  14. I have a cruise scheduled with Princess Cruises in April. This will be the first time we have been cruising since I was diagnosed 1 year ago with Celiac. Has anyone else been cruising, on which cruise line and what was your experience? Any suggestions is greatly appreciated. Thanks!
  15. I just ate there today. I have eaten at Cracker Barrel many times since going gluten free 01/10. I have not been glutened so far. I always tell the waiter that I'm gluten free and I ask them to please tell the cook to be careful. I have had grilled pork chops, green beans, carrots, fried apples, grilled hamburger steak, sirlon steak, baked potatoes, eggs...
  16. I know Jason's Deli in Charlotte is now serving gluten free bread and apparantly it is pretty good. My son is currently working there and states all the Celiacs that come in seem to enjoy it. They also have several other items that are gluten free too!
  17. Not sure about the medicaid but I would definitely call the office and find out. Their number is 910-483-9200. Had my appointment but totally forgot to ask about getting a support group together. If I get time from work this week I'll call and talk to one of the nurses.
  18. Another happy patient who also sees Dr. Serano. Started seeing him because of the horrible headaces that I was getting everyday, extreme fatigue, bloating, mix constipation/diarrea and many other symptoms. It took about 6 months but in January 2010 genetic testing came back with celiac. Have been gluten free since and am feeling alot better. No headaches...
  19. Having headaches and low energy was 1 of the many symptoms I had before going gluten free. You may want to try adding B2, B12 and vitamin d to your diet. I was very deficient in each of these by the time I was diagnosed with celiac. Once I started taking these vitamins and being gluten free my headaches are gone and my energy is up. You should have your...
  20. Doctors are wanting me to take calcium and vitamin D because of some bone thinning. Before being diagnosed Celiac, I found I could not take calcium because it caused a lot of pain in my stomach. Tried all brands and kinds (even tums hurts my stomach). Been gluten free since 01/10 and started taking calcium about 1 week ago. Been taking vitamin D for over...
  21. I also have Hashimoto's and my right thyroid was removed in 2007. Just diagnosed with Celiac 1/10. As far as the surgery it was not bad. I stayed over night and even though they suspected cancer, it was not. My right thyroid was extremely inflamed (part of the Hashimoto's) but I did feel a lot better after the surgery. Voice raspy for about 1 to 2 weeks...
  22. wjp

    ARCHIVED Recommend A Doctor In You State

    Hi Kathy - you see Dr. Serano too. Yes they are helpful and caring. Do you know if there are any care groups for celiac around Fayetteville?
  23. You are basically describing me when I am glutened. Especially the pain and swelling right above my belly button. Gas, bloating, general not feeling well, joint pains. I don't normally get the acid thing but can get the burning in my gut right when I eating but only when I accidently get glutened. Hope this helps.
  24. Gluten Free for about 2 months and I also have a pain on my back - right side around the bottom of my rib cage. Would love to know results of any testing anyone else has had for this. Had this pain right before going gluten free but seem to have it more often and more intense. Has anyone experienced this before? Have not gone to doctor for it but may...
  25. I understand what you are going through. I was diagnosed about 6 weeks ago. Same thing - negative blood test, then test genetic marker - it's there. Since I have been going to the doctor for a year with various symptoms I was greatly surprised to find out it was Celiac. After just a few days of gluten free I saw a lot of the symptoms go away, have accidentally...
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