frieze
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Latest Celiac Disease News & Research:
Everything posted by frieze
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ARCHIVED Question About Genetic Testing
frieze replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link too tired right now to continue, I wonder what Raven's opinion will be.... https://www.celiac.com/forums/topic/60270-one-half-of-a-celiac-gene/ - 
	
ARCHIVED Question About Genetic Testing
frieze replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Last time I read, those two account for 98+% of celiacs, that leaves a few "unaccounted for". Raven is a biopsy dx celiac, I do believe, and she has neither.....other countries recognize other genes. - 
	
ARCHIVED Question About Genetic Testing
frieze replied to blmoreschi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
no. you can have celiac without DQ8 or 2. and no, you husband contributed one gene to your daughter, he has two, you don't know which the other is. - 
	
ARCHIVED Anyone Go Through This?
frieze replied to shadowicewolf's topic in Coping with Celiac Disease
the timing sounds blood sugar-y to me. tweek the lunch. some of it could be additional healing, and yes, the lack of sleep could have "caught" up with you... - 
	
ARCHIVED Too Limited Diet, And Still Sick. Not Sure What To Do...
frieze replied to madminx's topic in Food Intolerance & Leaky Gut
have you tried digestive enzymes? - 
	
Elevated Growth Hormone (And Igf-1) - Why?
frieze replied to nvsmom's topic in Related Issues & Disorders
http://www.us.sandostatin.com/health-care-professional/acromegaly/diagnosis.jsp?usertrack.filter_applied=true&NovaId=4029462092064793718 have you done a glucose tolerance test? and I am not so sure that it is a "cause" but a "marker of"..... - 
	
ARCHIVED Deficiencies
frieze replied to SkyBlue4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
D,Bs, and Iron seem common. - 
	
ARCHIVED Another Confused New Kid
frieze replied to SimonSez0721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
vitamin D is low, chol is low normal, sodium is low normal, TSH is high. good luck - 
	
ARCHIVED Beginner With Questions
frieze replied to Syracusegirl1999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
unless you have some genetic issue....10 minutes in the sun isn't going to do that. and it is the "natural" means of obtaining Vitamin D - 
	
ARCHIVED Beginner With Questions
frieze replied to Syracusegirl1999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
But, you see, that is counter productive.... - 
	
ARCHIVED Low Vitamin D & High Cholesterol...advice?
frieze replied to wystearya's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
please get copies of all blood work. if your fastings are creeping up, you are the sort of person that nutritionguy is taking about. they may look excellent, but if they are creeping up, potential fixable issue here. forgot, please take D3 not the D2 that your doc scripted for! - 
	
ARCHIVED Test Results Do I Have Celiac Or Not?
frieze replied to Tifftaylor67's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link I am thinking that this is a Cyrex test? testing for all those other proteins in wheat.Open Original Shared Link don't know if townsend is peer reviewed... - 
	
ARCHIVED Anemia, Gi Symptoms, Negative Antibodies
frieze replied to gfreecookies's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
get a copy of ALL testing, would be curious if they did a complete panel.- 7 replies
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- anemia
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ARCHIVED My Immune System Is Revolting On Me!
frieze replied to RNRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
if you don't have the gene for methylation, your blood level could be high with analogues. but if you folate is ok, that shouldn't be the issue....- 9 replies
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ARCHIVED Beginner With Questions
frieze replied to Syracusegirl1999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ok, that would be D3, lol. a rough guestemate is 1000 IU per 10 points you want to raise the test. If you carry extra fat you will need even more. twenty minutes in the sun would be plenty, you don't want to get even pink, never mind a tan! - 
	
ARCHIVED Beginner With Questions
frieze replied to Syracusegirl1999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
not trying to beat you over the head...the D cap weren't the little green footballs, I hope? you got them OTC, yes? PS: check out the vitamin D council website, don't think I can post url? probably doubling the dose will be nec, if not more. - 
	
ARCHIVED Muscle Weakness And Pain
frieze replied to answerseeker's topic in Coping with Celiac Disease
go in with the tests you want, when they won't do them tell them you want, in writing, why they won't. Also, check the cost, perhaps you could afford the testing yourself. PS with the easy bruising, testing for low C and K should be a "no brainer". - 
	...or maybe both?
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ARCHIVED Beginner With Questions
frieze replied to Syracusegirl1999's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
what are you doing for Vit D supplement??? an increase (actually stat. insignificant) of 2 is totally unacceptable ! obviously need to increase supplementation and/or change supplement. if you are taking D2 change that to D3. good luck. - 
	
ARCHIVED Muscle Weakness And Pain
frieze replied to answerseeker's topic in Coping with Celiac Disease
Vitamin D should be over 50, b12 over 500 (that one is close) ferritin I am not sure.. and magnesium should be in upper range of normal , ie closer to 2.5. good luck and if the little red dots are petechial, perhaps some K2? - 
	
ARCHIVED Gluten Intolerance Without Your "typical" Stomach Symptoms
frieze replied to not4sakn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Open Original Shared Link and check out anything else by Dr hadjivassliou. good luck- 12 replies
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	sounds like a seizure to me. see doc, very soon!
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ARCHIVED Don't Know What To Do!
frieze replied to Glutenfree psych nurse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ethically, if not legally, your doc is guilty of malpractice for not meeting the "standard of care." - 
	
ARCHIVED My Immune System Is Revolting On Me!
frieze replied to RNRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
elevated B12 is RARELY of concern. elevated iron? hemochromatosis? have you been checked for the gene that prevents proper methylation of B vits? that may cause an elevated test....good luck- 9 replies
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ARCHIVED Ridiculous Conversations
frieze replied to Auntie-Manda's topic in Coping with Celiac Disease
such empathy from a 10 year old MALE is a pleasant surprise! Please encourage as much as possible!