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luvs2eat

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luvs2eat last won the day on May 30 2010

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  1. I've always been an average weight... always wanting to lose about 20 lbs (and doing it several times). I didn't get the unexplained weight loss symptom of celiac, and AFTER going gluten-free, I packed on about 30 lbs!! At the moment I'm doing Weight Watchers on my own to try and lose about 40-50 lbs. I'm about 6 down... many more to go!!

  2. I'd never heard of it till I was diagnosed!

    My symptoms started in the summer after spending weekends boating in the Delaware River. My doc thought I'd picked up some ugly bug or something and put me thru a course of Flagyl while we waited for my blood work to come back.

    My daughter's fiance started having mild gut symptoms that progressed over the next year till he finally took himself to the doctor who suggested gluten intolerance. He thinks I "witch cursed" him!! haha

    After my diagnosis, I'm convinced that my sister's lifelong eczema and skin/internal allergies and my brother's occasional eczema are gluten related... but neither will be tested!!

  3. Is he having tubes put into his ears? The procedure does only take 5 minutes, but they'll put him out and will want him to wake up a little before he goes home. My daughter had some cereal before she left, so just bring some crackers or a light snack (similar to toast or crackers) and some juice you know he'll like.

  4. Yea, I've gotten the "Can't you just eat a LITTLE??" Yea, I answered... if I want MOLTEN ACID shooting out my butt.

    When I explained to some nice older ladies at the bake sale table that I couldn't eat any of their wares... and told them why, they gasped and said, "Oh my... WHAT do you eat??" I looked down at myself (I didn't GET the unexplained weight loss symptom...) and said, "Um... do I look like I'm starving??"

  5. Oh man... we just found Bone Suckin' Sauce... it's delish!

    I've found that often the "store brand" of things like BBQ sauce and spaghetti sauce have better ingredients than the big name brands. Often the big name brands will have modified food starch and high fructose corn syrup (which doesn't have anything to do with celiac disease but is just a sugar no one needs!!) when the cheaper store brand does not!! Check them out!

  6. Reading this thread with interest, as my middle daughter who was recently diagnosed with Celiac Disease is trying to find the right combo of meds for her bipolar, which is also fairly new and SCARY (for her mom anyhow!). She's finding the whole gluten-free lifestyle hard to embrace and I'm so thankful I've been dealing with it long enough to be able to give her answers when she has questions or to direct her to where she can find the answer if I don't know.

    I'd love to hear that others feel better with their bipolar issues after being gluten-free for a while. My daughter has more GI symptoms than I did/do, and doesn't feel well much of the time... so feeling physically better AND mentally better can ONLY be a plus!!

    All this said... her doctor told her that if a food/medication says simply "modified food starch" that it means it's soy starch and that she can have it. I told her that she can't take the chance. This same doctor told her she also has a "wheat allergy"... but she felt like a croissant this morning so she ate it. "Then we're not talking about the same thing," said my daughter... "because if you have Celiac Disease, eating a croissant is not an option."

  7. Yea, I was lucky to be diagnosed so quickly... altho now I laugh when I tell people about it and say, "the first symptoms is unexplained weight loss... um... I didn't get that one!"

    When I went to the rheumatologist, he explained it all so well to me. He said that my body is like a country (I asked if that was some kind of sick FAT joke?? haha). My immune system is the army that defends my country. When I get sick, my army comes to the defense and helps me get well...

    So... sometimes when there are no germs to fight...or even when there are... the army (immune system) gets restless and starts fighting amongst themselves (autoimmune disorder). It's the immune system fighting itself!

    So, he said that this elevated ANA meant that my army was sort of poised to fight against itself if it got mad enough.

    I don't remember what my ANA number was... but the numbers go up in a funny way... sort of exponentially or something... so a big number looks bad, but really isn't.

    I'd call your doc and get a better explanation!

  8. My symptoms were unrelenting diarrhea and belly noises that sounded like wolverines were fighting in there!! I had no pains or other sickness. I thought I'd picked up some sort of parasite! The doc gave me a course of Flagyl, the med for "bugs" and did blood work and a colonoscopy. The results were SO positive, I didn't have an endo. I'd only had my symptoms for about 2 months when I was diagnosed.

    About a year later, my routine blood work for my yearly physical showed the slightly elevated ANA. My doc sent me to the rheumatologist who did more extensive blood work. So far, so good... no symptoms from it.

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