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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by WheatChef
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ARCHIVED Tests Came Back Negative But What Else Could It Be!
WheatChef replied to Confused in Iowa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Which tests were run? -
ARCHIVED High Igg Gliatin But Negative Otherwise?
WheatChef replied to mom2kae's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Technically according to how the medical profession regards the term "Celiac", your doctor was correct and your daughter did not test positive for "Celiac". The IgG test however corresponds with a gluten intolerance which is treated exactly the same way as celiac disease anyways so yes, from the sound of it, it was somewhat irresponsible for your doctor not... -
ARCHIVED My Celiac Panel
WheatChef replied to scootRN's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gliadin relates specifically to gluten intolerance while the tissue transglutaminase test relates specifically to celiacs. The serum test was just there to check to make sure you didn't have some sort of IgA system deficiency that could have rendered the other two tests pointless. This isn't the case in your specific example. According to the blood tests... -
ARCHIVED Asthma & Celiac?
WheatChef replied to alliebe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I used to get pretty bad exercise induced asthma. Haven't been able to trigger it even when trying since going gluten-free. Additionally I used to get at the very least 1 new pimple on my face each week (in my late 20s). Since going gluten free I've only got 1 new one and that was during the week when I was accidentally eating gluten in a new vitamin. -
ARCHIVED Food Allergies Panel
WheatChef replied to O.N.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Actually, many food intolerances can be tested for. There exist additional tests for your immune systems non IgE (those are allergies) response to many different types of foods, these are either tested for in an IgA or IgG response just like with gluten. Lactose intolerance isn't specifically an immune system response like gluten or casein intolerances are... -
ARCHIVED New Twist On The Vinegar Debate.
WheatChef posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Well, possibly new. Turns out that many types of wine are not gluten free. Oak barrel wines from europe often use a cask that has a piece of it sealed in with wheat flour. In America a different sort of seal is used on the barrels made here, however many upscale brands of wine will purchase an old used cask from europe to gain the benefit of the different... -
ARCHIVED Im Not Crazy
WheatChef replied to ragidyann's topic in Parents, Friends and Loved Ones of Celiacs
Nope, add another onto that list. They stuck me on ritalin, then phased me through 3 different antidepressants intermixed with klonopins and xanax as each new doctor seemed to just through another chemical at me until my last psychiatrist just confessed "There's just too many different things wrong with you to figure out what's going on." Money well spent... -
ARCHIVED Can Anyone Explain These Test Results For Me?
WheatChef replied to kimann79's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your assumptions were correct. While technically that is the only reliable test for celiac disease, it tells nothing of any gluten intolerance. The tests you're missing are IgA/IgG-Gliadin. Luckily with the Total IgA result you received it means that the IgA tests are decently valid, ie. your body is not deficient in IgA production. -
ARCHIVED Fruits And Vegetables!
WheatChef replied to dhiltonlittle's topic in Coping with Celiac Disease
Best way to get the most bang for your buck is to only buy fresh items while they are in season (frozen year round). Here's a helpful chart for Open Original Shared Link Unfortunately if you're living in any super hot area the seasons are drastically reduced when you try and buy local. A fun way to expose yourself to new fruits and vegetables is to find... -
ARCHIVED What To Expect At Appointment?
WheatChef replied to BrownEyedGirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I believe for DH testing they do a biopsy where they take a small amount of skin from around the DH area and send it in for testing. The food journal would be very helpful for your doctor so be sure to keep up on it. You mention that you tested negative for Celiac, do you know which actual tests were run? -
ARCHIVED Help Deciphering Results Please
WheatChef replied to Dace's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In celiac disease the body attacks itself in the intestine in response to gluten consumption. A positive or negative result on a celiac (tTG) test does not rule out the presence of reactions in other parts of the body. Being that your child had high IgG-gliadin values it is definitely suggestive of a gluten intolerance, the treatment for a gluten intolerance... -
ARCHIVED Could Antibiotics Bring On A Food Intolerance?
WheatChef replied to blondebombshell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your body is the site of a constant battle for control between a multitude of different alien species. Though there exists many different clans the invaders can be lumped into two main factions: bacteria and fungi. When you go on antibiotics you kill off a vast number of the bacteria meaning the fungi (yeast) have an unfair advantage and multiply like... -
ARCHIVED Quick Question About...elisa Test Result
WheatChef replied to DebbieM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
ELISA (Enzyme Linked ImmunoSorbent Assay) is the test for detecting antibodies. It gives clear, reproducible results in units that are comparable across a vast array of subjects. That is, assuming you know the units the results are given in. They will be in the form of either units (U) or absorbance units (AU) per (/) volume (ml/dl/L). Without the volume... -
They additionally included the dangerously wrong information in their online representation of that episode Open Original Shared Link "and is a good choice if you're wheat-sensitive because it's low in gluten." Not that I was a fan of her before, but this doesn't help my opinion of her shows.
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ARCHIVED Negative Test Results. Do I Have Celiac Disease?
WheatChef replied to superman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are actually a large number of mainstream medicine tests for candida, whether they're doing a Gram stain of your stools or serum Ig tests. These are all ordered by a practicing MD and sent off to an official lab. Good call on the nystatin though. Is that available OTC? -
ARCHIVED Conflicting Test Results - Drs. Say It's Not Celiac
WheatChef replied to earthmama2k's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A) It's certainly possible, the blood tests are much better at not giving false-positives than they are at not giving false-negatives and unless they removed your entire small intestine for the biopsy then they could have missed it. From the sound of it, it doesn't sound like it matters so much in your case because based on the gliadin tests you have a gluten... -
ARCHIVED Question Regarding Vit D Deficiency And Gluten Intolerance
WheatChef replied to MNS's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The only published research paper I've read so far that tested celiac stool test kits showed that an unfavorable result for the stool kits because they had a very low sensitivity when compared to serum tests yet they had a much higher specificity than the blood tests. This means that the stool tests were shown to tell more people with celiacs that they did... -
ARCHIVED Yet Another Negative Test Question
WheatChef replied to Nilnala's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'll let you know as soon as mine resolves . At just over 2 months as well and malnutrition signs have decreased but are still there at some level. Some of my nail ridges have stopped being formed and some of my unpigmented hairs are growing in darker, but not all of them yet. Of course in those 2 months of being "gluten-free" I've been poisoned at least... -
Rats additionally pretty much everything since their species grew up feeding off the trash of our species. Because of this similar upbringing they can also experience many of the same dietary issues as us including diabetes and gluten sensitivity. I fully agree with how absolutely ridiculous it is that we expect all food to be super cheap so we can afford...
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After all of the other doctor stories I have read on this board, it sounds like you found the single GI doctor in America who actually knows what the hell gluten sensitivity/celiacs is. You are most likely unaware of just how lucky you may be.
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Cook in bulk, like enough to make that meal at least 3 times over. Most meals will save quite well for at least 3-4 days in the refrigerator. When you're cooking a surprisingly large part of your time is spent not on prep, but setting up and on things that you can't vary the time of all that much (like roasting, sauteing). When you increase the amount of...
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ARCHIVED I'm Also Confused And Overwhelmed.
WheatChef replied to CanadianSnowflake's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There are a lot of people on these boards recently asking for help/advice and it seems like some posts were easily able to slide to the second page without being answered or commented on. 1) Blood tests don't offer a 100% yes or no answer unfortunately and so doctors normally order a few different tests to try to get a slightly more reliable result. This... -
ARCHIVED Negative Blood Test - My Fault?
WheatChef replied to Deimos's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm sorry you've been having such terrible luck with bad doctors. What sort of blood tests did you get and what were the actual results? The relationship of any symptoms at all only appearing following consumption of a specific dietary trigger is a pretty strong correlation that should make any sensible doctor take note. The symmetrical rashes you mention... -
ARCHIVED Yet Another Negative Test Question
WheatChef replied to Nilnala's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Eating a toxin or bacteria doesn't necessarily cause lasting damage to your intestines but it will certainly cause your intestines to "flush" themselves and to voluntarily choose to have less activity. Increased flushing would not only reduce the amount of digestive enzymes available for normal nutrient absorbance but also can easily upset normal intestine... -
ARCHIVED Negative Test Results. Do I Have Celiac Disease?
WheatChef replied to superman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A Rack Unit (RU) is a measurement used to describe the dimensions of a systems server in Information Technology Networking (computers) so this is definitely not what those readings are referring to. Additionally the "normal" ranges they give for the gliadin tests are very very different from the ranges used in America and Europe so it would be impossible...