jknnej
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Latest Celiac Disease News & Research:
Everything posted by jknnej
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ARCHIVED Nausea Meds
jknnej posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For those of us who suffer from terrible nausea, do you have meds that work? Someone today told me about Phenegran or whatever it's called and I wondered about that b/c I've never heard of that. I think it's the morning sickness med and it makes you sleepy but that's all I know. is anyone here presribed nausea meds? I'd just like to know because mine gets... -
ARCHIVED Continued Stomach Discomfort
jknnej replied to bklyn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
bklyn, I have those symptoms, too. After I eat I get very nauseated and it's terrible in the mornings. I can barely get out of my house sometimes. The burning pain is bad, too. When I get that all I can do is sit and shake or rock back and forth. I've never been able to figure out what causes it. I certainly had more pain before going gluten-free, but... -
Hi Whimsy Girl, Thanks for your post. It made me feel better and less alone! I still have until Saturday to decide whether I'm going to do this gluten challenge or not. I don't think I can do it. I'm already all messed up and it's taken my body a long time to adjust to the gluten-free diet. I don't think I can handle going backwards. I need to go talk...
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Hi all, Well, I've been bad..in a good way:( I haven't been eating gluten. I still have time, though. My doc says I need to start 3 weeks before...that's this week. I don't know if I can do it. I still am having trouble with my tummy, even gluten-free. I have nausea after eating and still have issues with IBS...having to go to the bathroom a lot. I just...
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Our country has really gone backwards in terms of political correctness. That whole movement started out for the right reasons, but now you can't say anything to anyone and it's really ridiculous. I mean, what's the harm in talking to someone about celiac disease? They don't have to listen, now, do they? Especially if it's a stranger you'll never see again...
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I met a woman who owns a restaurant in Ouray, Colorado this weekend. My hubby went in for a sandwich, and of course, I couldn't eat there; nothing was gluten-free. The woman who owned it asked why I wasn't eating and I told her. She said her mother has celiac disease and she has all the symptoms and always has but that she is in denial and just can't change...
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Well that's the difference between us. I never leap to the conclusion that people have celiac disease; instead I feel that simply ruling it out is one of the easiest ways to discover your problem. I had to undergo a colonoscopy before the blood test. WHY should anyone have to go through a procedure like that before taking a simple blood test? It doesn't add...
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The blood test for Celiac is SO easy and simple. I believe any doctor at ALL who has a patient with all of those symptoms should give them a simple blood test for Celiac. How else could they even consider themselves a medical professional? i agree with Bambam. We're not suggesting these people go gluten-free or get an endoscopy. Just get a blood test. Aren...
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ARCHIVED Blurred Vision / Dizzy
jknnej replied to KLTerry's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I still am having eyesight issues and lightheadedness, plus I've had a headache for the past two weeks. Thank GOD for Imitrex. I'm still sore in places. I think I may have fibromyalgia..what else could explain all of this when I don't have diabetes or thyroid issues? they tested my blood for a million things; cortisol levels or whatever that is, hormones... -
Hi all, I didn't get a period this month for the first time in my entire life..they are usually very bad, even on the pill. It's been about 6 weeks since I went gluten-free, so I'm wondering if this is why. I took a pregnancy test last night and it said negative (on the 4th day of missed period, so it should have been accurate). So, I doubt I am pregnant...
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I tried the EngerG kind today in my Namaste pancakes but they weren't too great. Any hints on liquid egg replacers? I think that would be better... Help please...
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I really would rather not take antidepressants if I can help it. Where do you get this medicine you've tried? Do you have to have a prescription? Do we really need fiber supplements if we go to the bathroom so much anyway?
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ARCHIVED Non Dairy/non Soy Butter
jknnej replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
this is a dumb question, but, hey, who cares? If you're eliminating eggs, too, can you use those egg beaters or liquid egg substitues? -
ARCHIVED Non Dairy/non Soy Butter
jknnej posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Since so many here avoid the common allergens, how do you find butter that is non dairy AND non soy? I need help! All I've found is soy butter, even at Trader Joe's and all of those health food stores. Please help... -
ARCHIVED Licking Envelopes
jknnej replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
For sure I won't be licking any envelopes anymore. -
ARCHIVED Licking Envelopes
jknnej replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
Ok, I feel a little better now. Hopefully they are gluten-free...in the future I will stay away from them... -
It also helps to have a good support system. My hubby is great; only times he gets frustrated is when we're on vacation and he wants to eat at a nice restaurant. I tell him I will still go with him but it's not the same for him. I refuse to eat out; I simply won't risk cross contamination. Just made that decision about a week ago but I'm sticking to it. ...
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ARCHIVED Licking Envelopes
jknnej replied to jknnej's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh, this sucks! I just licked one a couple of minutes ago. I just got off a week of hell for ingesting gluten accidentally. I am really depressed now.....the thought of another week of hell is really awful. -
Thanks, I'll look for those this weekend. I'm freaking out because I just licked an envelope and I really hope it's gluten-free...what do you think? For the person who wrote the sliding off the wagon, I say, find a great whole foods store. I started buying wonderful mixes for cookies and breads and they taste every bit as good as the regular stuff. Even...
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My doc just prescribed this stuff; I'm at work and don't have it with me but it's something long like Chloreo......?? Anyhow, it comes in little packets that you dissolve into water and drink. Anyone take this? Does it help? Are there side effects? Doc didn't explain anything, just gave it to me. But I won't take any medicine until I fully research it. Also...
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Kaiti, What kind of digestive enzymes do you take and where can I get them?
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ARCHIVED Licking Envelopes
jknnej posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Stupid question, I know, but I just licked an envelope and am panicking. anyone know if envelpes are safe??? -
ARCHIVED Sorrel Ridge/vermints/chocolate
jknnej posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Does anyone know if Sorrel Ridge grape jelly is gluten-free? Ingredients are: unsweetened concord (grapes), mixed grape concentrates from and/or pear concentrate, fruit pectin. Anyone know if this brand is gluten-free? How about Vermints? And, is organic dark chocolate gluten-free? I think it is... Does anyone know of chocolate chips that are dairy... -
Kaiti, I read your post about gluten-free products..I need shampoo (I've been using Thermosilk), moisturizer (I use oil of Olay), and face make-up (I use Mac), and shaving cream. Do you know offhand if these are gluten-free or have recommendations for gluten-free? Someone here said Coppertone is all gluten-free..do u know if that is true?
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I am so disappointed in PF Chang's this week! As per my last post, I was thrilled to find the Chang's in Scottsdale has a celiac manager. My first experience there was great. This Tuesday I went again and haven't felt well since. I ate the leftovers just to check and sure enough, I had a stomach ache all night. I didn't eat anything else all week that wasnt...