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Skylark

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Everything posted by Skylark

  1. Skylark
    We see a fair number of pre-diagnosis celiacs on the board with elevated liver enzymes. You might print this for your doctor, preferably a new one! Did they happen to take any biopsies on the upper GI exam, or did this idiot doctor miss doing that too? Open Original Shared Link If your celiac test comes back negative it's still worth trying the gluten...
  2. Skylark
    Yes, it could be gluten intolerance. There is no reliable test for gluten intolerance other than trying the diet. Don't waste money on Enterolab. It's better spent on a new cutting board, toaster, and some gluten-free goodies to try out the diet. At first, go gluten-free and dairy-free because many, many gluten intolerant people also have trouble with...
  3. Skylark
    No, the ASCA is anti-Saccharomyces cerevisiae (yeast). It's mostly a test for Crohn's disease. It can show up in celiac and colitis as well, but less commonly. It's not diagnostic for celiac at all. There is no celiac panel in those labs so you need one if you suspect celiac. You would need anti-TTG IgA and either anti-endomysial (EMA) or anti-deamidated...
  4. Skylark
    Skin prick tests for true IgE mediated allergy. As we are well aware, IgE is not the only antibody that can cause reactions to foods. I am very suspicious of the dairy causing villous atrophy. It seems to me that it would be in the medical literature if it were common and it's not. Doctors say a lot of dead wrong things very matter-of-factly. ...
  5. Skylark
    If your celiac test comes back negative you will wonder whether it was because it's really negative, or becasue you were mostly gluten-free for a couple months before the test.
  6. Skylark
    I'm a researcher, not a doctor, but I have never seen a study where a food other than gluten has caused villous atrophy. I think maybe there is one case history out there of villous atrophy to chicken. There is some fairly strong documentation of anti-gliadin antibody cross-reactivity to casein in many people with celiac disease, meaning that celiacs who...
  7. Skylark
    Celiac disease can require months or even years because auto-antibodies have to disappear, lymphocytes have to leave the intestine, and then the body has to repair all the autoimmune damage. This is very different from a food intolerance where the body is simply reacting to a food. It's like an animal allergy, where you get away from the cat and feel better...
  8. Skylark
    Yes, emdomysial is EMA. That's a good list of tests. Is your son still eating gluten for the tests to work?
  9. Skylark
    The mini rice cooker I got is the Panasonic SR-3NA Rice Cooker. It's available at Amazon and probably other places. I'd link but Amazon links are not allowed. I love it because it will cook a serving or two of rice and it's faster than my big cooker. It would be a good size for a dorm room. As far as ramen, Safeway brand has instant rice noodle bowls...
  10. Skylark
    How frustrating. The one thing that comes to mind is tartrazine (FD&C Yellow #5). It's the food color in Mountain Dew and some people are allergic to it. Any way you could switch soft drinks to something without the tartrazine for a little while? The other thing that might be getting you are natural food chemicals. Open Original Shared Link...
  11. Skylark
    So many things wrong with this statement I don't know where to begin... First, the study didn't divide people into 4 groups so you apparently didn't even read the paper. Second, you can't make conclusions about 4 groups from only 13 people. You have no statistical power. Even if a bunch of people on the board answer, you have no information about non...
  12. Skylark
    We're not doctors around here. I hope your tests are conclusive.
  13. Skylark
    It's not likely. Wikipedia says "The villous atrophy seen on biopsy may also be due to unrelated causes, such as tropical sprue, giardiasis and radiation enteritis." Open Original Shared Link Your doctor should have ruled out giardia and unless you've traveled (or are posting from an equatorial region) it's not going to be tropical sprue. Radiation...
  14. Skylark
    Yes. Eliminate the food from the diet for a few weeks and challenge. That is the ONLY reliable and accurate way to check for food sensitivities. You will find a lot of people around here who swear by various lab tests, but as your research has indicated, none of the testing holds up to scientific scrutiny. RAST and skin prick are the most common,...
  15. Skylark
    You need to make it clear to the cook that you can eat rice and baked potatoes instead of expensive specialty breads and pastas. You might offer to buy a rice cooker for the sorority kitchen to make it super-easy for them to have rice for you. All fresh fruits and vegetables can be prepared gluten-free very easily, as can meats. Commercial gluten free...
  16. Skylark
    Don't forget the pretzels and goldfish!
  17. Skylark
    I know that whirlwind. I was gluten-free, dairy-free, soy-free for a while at first! If I were you I'd stick to the foods that work until you're felling better. Once a week try adding something new like a different veggie or a gluten-free grain and figure out what you can and can't eat. I bet you find you can tolerate more foods once your intestine...
  18. Skylark
    It's very rare for me to find a restaurant that has a gluten-free menu that isn't taking adequate care to keep me from getting sick. I do generally tell the waitress that I'm celiac and really do need truly gluten-free food. Most are well aware of CC issues, including informing customers about shared deep fat fryers. Places that don't have a gluten-free...
  19. Skylark
    Sadly, it is just you... I have some awesome friends, and I have some woefully insensitive ones. As far as CC, it sounds like you were asking unrealistic things of the restaurants. Most restaurants do not use separate grills, pots and pans, or necessarily have dedicated preparation areas for gluten-free food. They should make sure things are clean and...
  20. Skylark
    How do you eat out if you're that horribly sensitive to CC? I have to wonder if you're better off bringing your own food anyway. It would really be a pain to get glutened the night before your brother's wedding. Also, with a wedding in two weeks, they're probably going crazy with all the details. What they did wasn't very considerate, but I suspect...
  21. Skylark
    Bipolar. My story is in my profile.
  22. Skylark
    Lupus, ugh! It's great that your Dr. is taking you seriously and working with you. I hope the prednisone helps. You should look up Addison's and see how well the symptoms fit. It can be autoimmune and can appear with celiac. If steroids really help that shores up the idea of Addison's, doesn't it?
  23. Skylark
    Your negative bloodwork and endoscopy suggest that you are gluten-free enough, though I do feel better if I'm "OCD gluten-free". It sounds like you might have trouble with fructose. That will cause bloating and the fat stomach. You should look up information on a low FODMAP diet and give it a try. I also think of nightshade sensitivity when people mention...
  24. Skylark
    They are often tied together. You should be able to find dozens of threads on it if you search the board!
  25. Skylark
    It may just be celiac, but those can be symptoms of serious illnesses. Diabetes among others. You really need to make a list of everything (so you don't forget stuff) and get to a doctor so you can be sure nothing else is going on.
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