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Skylark

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Everything posted by Skylark

  1. Skylark

    ARCHIVED All Nuts?

    Skylark replied to alexsami's topic in Coping with Celiac Disease

    Nut allergies are EXTREMELY common. It's most likely that you simply react to nuts. Eliminate them from your diet for a couple weeks; then get some 100% gluten free ones by either shelling them yourself or ordering from Open Original Shared Link to challenge with.
  2. Skylark
    Ask your doctor if that's the old gliadin test or the new deamidated gliadin. If it's the new one (probably) you are celiac. It's more sensitive than TTG. As for how you're feeling, a month isn't long gluten-free. It can take as long as a couple years to heal if damage is severe. Also, go off dairy and see if it helps. A lot of newly diagnosed celiacs...
  3. Skylark
    You have what's sometimes called "latent celiac" meaning you are in the period when you have antibodies but the intestinal damage hasn't accumulated to where it shows up on biopsy. If you keep eating wheat, it's only a matter of time until your intestines are a mess! Go onto the diet like your doctor suggests, and please hang around and ask questions...
  4. Skylark
    Just stick to gluten-free, and eliminate dairy for a bit as well. Lots of newly diagnosed celiacs can't eat dairy at first. It can take a few months to feel better if you really are celiac. Your immune system has to calm down and your intestines have to start to heal.
  5. Skylark
    There are some Chinese studies using a kelp/diatomaceous earth fertilizer to add iodine to crops. There are some regions in China where iodine deficiency is a problem so they're looking at how to get more iodine into vegetables. I guess kelp is also rich in potash and other nutrients plants like too!
  6. Skylark
    I don't see celiac bloodwork on your list of tests. Did you get celiac disease tests before you went off gluten? Also, have you had a thyroid panel? That would cause the fatigue, brain fog, and I was getting occasional rapid heartbeat with hypothyroidism. Celiac can take a while to repair. Fasano says gluten intolerance is pretty quick. You may...
  7. Skylark
    Wow, I can't believe you're toughing it out. I'm impressed. At least you know for sure that gluten is a complete no-go for you.
  8. Skylark
    Yes, you have what is called latent celiac disease. Positive endomysial antibody and TTG together is a very, very strong celiac bloodwork result. They are both autoimmune antibodies, and they are aimed at your intestinal villi. People with bloodwork like yours and a negative biopsy have participated in studies. First, they have metabolic markers of...
  9. Skylark
    Mayo clinic is famous for conservative, accurate medicine. People with all sorts of rare diseases end up at Mayo clinic so the doctors are trying to rule out diseases that you and I may never have even heard of. You're a complicated case with the endocrine trouble and ovarian cyst and the results are borderline by the strict definition of celiac, so they...
  10. Skylark
    Isn't the kelp specifically used to add iodine to low-iodine soils?
  11. Skylark
    You're welcome. Glad to help! I have rather a lot of training in biochemistry and had to learn a fair amount of basic chemistry along the way.
  12. Skylark
    I've had good luck with places that separate toppings, have a separate preparation area, and keep separate pizza boards for their gluten-free pizza. I'm sensitive enough to react to deep fryer CC but not ultra sensitive.
  13. Skylark
    I think it's hard to have a young child eating gluten around. If you can find affordable snacks she likes you don't have to worry about crumbs.
  14. Skylark
    Hon, you need to get rid of this roommate. And you need to get rid of your fiance if he won't support your decision. He is not respecting your feelings and your fear, and someone like that is not good to marry. What else bad is going to happen that your fiance just brushes off? And no, he's not being "incredibly supportive" as you said in another reply...
  15. Skylark
    When I was on a full gluten diet, my reactions would come and go. Eating gluten with rich things like pasta sauces was much worse than something like a baguette.
  16. Skylark
    The thing with radioactive elements is that they often transform to different elements when they decay. Also, even though the amount of radioactivity released by a nuclear test or accident is high, the amount in kg is relatively low. Chernobyl released maybe 10kg of I-131 (50 million curies), most of which was vapor. On a global scale, 10kg is a whisper...
  17. Skylark
    I have a friend who eats reduced gluten. She's more sensitive to lectins than traces of gluten. She tolerates light colored beers like Heineken or Corona. I imagine she could drink Bud or Miller but why? LOL! She does not drink stout beers or nut brown ales. They seem to disagree with her.
  18. Skylark
    That's great news! I remember how happy I was to eat cheddar cheese again.
  19. Skylark
    Welcome to the "Why should I make myself sick again to get diagnosed when I already know what's wrong with me?" club.
  20. Skylark
    I hate to burst your bubble, but iodine-131 decays to xenon-131, which is a stable, nonradioactive gas that blows away. The iodine from nuclear testing was gone within months of when the bombs exploded. That's why the agency told you it dissipated. As far as Fukushima iodine in the American midwest, it should be gone, though it's hard to be certain whether...
  21. Skylark
    We'll still be your friend. I never even had a celiac test because I figured it out on my own before the big 2006 article that made doctors aware of how common celiac is. Stick to the gluten-free diet. Sometimes the blood tests are wrong, but other times gluten intolerance looks just like celiac disease (and it might even be an early stage of it)....
  22. Skylark
    Yes, you're negative for celiac. You can still be gluten intolerant so trust your body if it seems to make you sick.
  23. Skylark
    The "gold standard" for celiac diagnosis is positive blood and biopsy. However, they always start with blood tests. If the blood test is positive you can decline the biopsy. It would confirm the diagnosis but it's not strictly necessary unless you need it to convince yourself about sticking to a strict gluten-free diet. The blood tests are only positive...
  24. Skylark
    DNA is interesting, but not diagnostic. Even if you aren't DQ2 or DQ8 you could still be celiac, and there are plenty of DQ2 and DQ8 folks who are gluten intolerant but not celiac. To get the blood test and endoscopy your doctor mentioned, you would have to go back to eating a full gluten diet for three months. I am in your boat, undiagnosed for certain...
  25. Skylark
    I didn't vote because I couldn't check multiple options in the second question. I was doing really well until my thyroid autoimmunity flared. I do still have a healthy stomach/gut, none of the canker sores that plagued me, and I generally feel better. As far as the thyroid trouble I'm looking at everything - nutrition, other intolerances, trace gluten...
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