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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    The home tests are better for finding celiac than for ruling it out. TTG tests are 80% accurate. There is still a 20% chance that you are celiac so no, you shouldn't assume you are intolerant.
  2. Skylark
    Your kids' response to the diet means a LOT more than fecal IgA. It's not a terribly reliable test, though a result of 144 is certainly interesting. Little kids don't always have a strong immune response so the older's test results might simply be a reflection of his/her more mature immune system. As other folks have said, you can't have them tested for...
  3. Skylark
    It has happened to other board members so don't give up hope. Just get well and set the best example you can.
  4. Skylark
    As I said above, "not detectable" assumes the test for gluten works reliably on soy sauce. It doesn't. Eat at your own risk.
  5. Skylark
    Sorry to hear that. It must be frustrating, especially the reacting. Maybe this will be easier to take on when you are feeling better. Has your doctor spoken to your husband? Maybe he'll believe better if he hears it first-hand?
  6. Skylark
    Oh gosh, that sounds terrible! Most of the celiac tests look for autoimmunity so it seems to me that your immune suppressants might mask celiac disease. Celiac can really mess with calcium absorption and cause osteoporosis. It's also a risk factor for duodenal tumors so to my way of thinking it sort of all fits together. Gluten intolerance is also pretty...
  7. Skylark
    Welcome to the board! tTG IgA is a test for a kind of autoimmunity that's almost always caused by celiac and yours is quite high. Be sure to give the gluten-free diet a good strict try no matter what the endoscopy results are. Sometimes the celiac damage gets missed because it can be patchy. If you've had a lot of stomach trouble you should feel loads better...
  8. Skylark
    Some naturally fermented soy sauce gets broken down by the cultures to where the gluten is below detection limits. Problem is, the tests don't work right on broken-down gluten so you can't really know whether the soy sauce is safe. Since the laws don't take the subtleties of gluten testing into account they can be legally labeled gluten-free. I personally...
  9. Skylark
    It took my mom a few years to watch me get well and then take the plunge herself. She denied feeling better on the diet for a good six months but got sick every single time she ate wheat and finally accepted that she needed to be gluten-free. By the way, if you are talking about minor children, I think you need to put your foot down and get them tested...
  10. Skylark
    In this study the challenge was with wheat, not pure gluten, so using the phrase "gluten sensitivity" would be incorrect. Top-level researchers use very precise language to try to describe exactly what they observe, not what they might assume.
  11. Skylark
    I went to a 100% gluten-free restaurant in Asheville. It took me about ten minutes to decide what to order because I'm so used to not having any choices. Food was excellent and the restaurant was plenty busy. They're using local, sustainable food too so they appeal to a wider market than just celiac/gluten-free. They bake all their own breads, muffins...
  12. Skylark
    Yeah, the jury is still out. I had a really strong response to eggs on an IgG test so I have to eliminate/challenge to be sure. Thing is, I tend to feel really awful on Monday and I usually make omelets or bake on the weekends. I also came up positive for soy on the IgG test and I know soy doesn't agree with me. Dairy came back negative so I'm praying...
  13. Skylark
    Thanks! I can do guar gum, psyllium, and chia. I forgot you can sub chia for eggs. I'm going to play with flax too. Cow dairy is iffy, sometimes I react sometimes not. I seem to be back to tolerating goats milk so might be able to find goat sour cream. I can do enough starch to try the Ener-G egg replacer. I might give that a go in my regular almond meal...
  14. Skylark
    There is no such research. It's an urban legend that has cropped up on the internet recently. I have looked up all the supposed scientific references and they say that coffee allergies and reactions are actually quite rare. Coffee is a bit of a GI irritant and it's hard on folks with stomach trouble. It was probably too much for your system to handle...
  15. Skylark
    In Nature! Sweet! That's an impressive study too.
  16. Skylark
    I just got diagnosed with egg intolerance, dangit. I've been mostly baking SCD-style with almond flour, flax meal, and coconut flour because I don't do well on starchy foods. All my low starch, SCD-style recipes have a ton of eggs. Now I'm at a complete loss for baking. Does anyone have any low-starch, egg-free recipes for muffins or quick breads?
  17. Skylark
    You might be able to use ground sunflower seeds if you can eat those and like the flavor. Grain flours like teff are too different for the recipes to work.
  18. Skylark
    I can't do high-tyramine foods or nitrates either. Fortunately I only have to avoid the super-high ones like red wine, aged cheese, and cured meat like ham. I'm going to have to try that Hormel bacon if I can find it and see if it works out. Glad I found this thread.
  19. Skylark
    I'm gluten-free, dairy-free, low-grain Breakfast - Coffee with coconut milk, eggs and fruit. Maybe almond flour muffins if I'm not too lazy. Today I was running late and had a Larabar. Lunch - usually frozen homemade meat/veg soup or bean soup. I usually throw some cut veggies and a small baggie of nuts into my lunchbox for a snack. Sometimes dinner...
  20. Skylark
    I play that game. Placebo effect works wonderfully for me for about a week. If only I could come up with new, safe ideas weekly...
  21. Skylark
    I don't know if anyone has noticed but this thread was started in 2006. The people originally asking the questions are probably long gone. If you have a shampoo question you might start a new thread.
  22. Skylark
    Last time I went to a wedding the bride was a close friend. She gave me the number of the caterer and it was easy to call and arrange a gluten-free plate at the reception. I skipped the cake.
  23. Skylark
    I think gluten-free sounds like a great idea with the autoimmunity. I have Hashi's and I'm kind of scared of thyroid cancer. My endo says it's rare though. Whole foods is a GREAT choice for getting started. It's super easy to make gluten-free salads, roasted meats (I like arrowroot starch to thicken gravy), or stir-fry with gluten-free soy sauce. Snack...
  24. Skylark
    The other thing that springs to mind is diabetes, though I'd think the juice would have made it worse. They'll catch that on the urine test. Good luck!
  25. Skylark
    Distilled grain liquor has no detectable gluten and is fine for almost everyone with celiac disease. Very rarely, people who are super-sensitive to gluten find that they react to distilled foods like grain alcohols or vinegar. On the off chance you react to Hangar One, which is a wheat vodka, see if you do better with a potato vodka like Blue Ice or Chopin...
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