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Latest Celiac Disease News & Research:
Everything posted by Skylark
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ARCHIVED What Am I Supposed To Eat?
Skylark replied to Sage122's topic in Introduce Yourself / Share Stuff
Your dairy intolerance sounds like lactose intolerance. Hard cheese ls low lactose, and yogurt is lower than ice cream because the bacteria break down some of the lactose. Try some Lactaid next time you have ice cream, milk or other fresh dairy. A lot of people find they have to re-evaluate their decision to be vegetarian if they have multiple food intolerances... -
ARCHIVED Can Gluten Cause Ms And Other Autoimmune Disorders?
Skylark replied to TomC's topic in Related Issues & Disorders
Heh. We sure did! Make sure your doctor understands how to properly test for B12 deficiency with homocysteine and MMA. Many think serum B12 is reliable but it's not. You can have a functional deficiency and normal B12 levels. Also, B12 is safe enough that taking 500 mcg/day for a few months to see if it helps will not cause you any health issues... -
ARCHIVED How Do You Fight The Temptation To Cheat?
Skylark replied to Sage122's topic in Introduce Yourself / Share Stuff
I don't cheat because I'm scared half to death of eating gluten. I already have thyroid autoimmunity from so many years eating gluten. And the link to thyroid autoimmunity is gluten intolerance as well as celiac so you're at risk for developing it. Even worse, once you have one autoimmune disease you are at higher risk to get more. There is nothing... -
You already have a positive genetic test, a much better one than any lab can provide. You have a first-degree relative who is celiac. The HLA-DQ testing pales in comparison because it only looks at one gene that is only loosely related to celiac. 30% of the US population has a so-called celiac gene. In contrast, you know with absolute certainty that you are...
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ARCHIVED Dgp Igg Quick Question
Skylark replied to MoMof2Boyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
False negatives are possible on all celiac blood tests, particularly in kids. DGP has 90% sensitivity at best so 1 in 10 celiacs will be missed. Celiac is less likely with negative DGP IgG, and low total IgA will not affect the results. -
ARCHIVED Can Gluten Cause Ms And Other Autoimmune Disorders?
Skylark replied to TomC's topic in Related Issues & Disorders
Celiac disease and the resulting gluten-triggered autoimmunity can cause neurological and even MS-like symptoms, including white spots on MRI. The CNS autoimmunity can take a long time to heal, so you simply may not have been on the diet long enough. Let the gluten-free diet do its magic before you start worrying about MS. It took me a year and a lot of supplements... -
ARCHIVED Need Help Finding Subs For 2 Ingredients
Skylark replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
Glad you made some progress on the recipe! Try golden flax meal when you get your next bag. I find it's milder-tasting. -
ARCHIVED Starving After Starting Thyroid Meds
Skylark replied to SleepyBunny's topic in Related Issues & Disorders
Carbs make me tired. I also am feeling a little better since I dumped dairy. Turns out I'm somewhat intolerant to it and the intolerance was making me tired. -
ARCHIVED Does Bcm7 (A Milk Opiod) Initiate Celiac Disease?
Skylark replied to icm's topic in Food Intolerance & Leaky Gut
I like this analogy. There is something we are doing in modernized countries that seems to predispose to type 1 and celiac. Researchers think there is a "safety off" sort of situation because the incidences of T1 and celiac are rising at very similar rates, particularly in industrialized countries. The hygiene hypothesis doesn't go very far towards explaining... -
ARCHIVED Does Bcm7 (A Milk Opiod) Initiate Celiac Disease?
Skylark replied to icm's topic in Food Intolerance & Leaky Gut
Um guys, you might want to go do some reading before you keep piling on with the skepticism and unsupportive posts. This is an interesting question and not as far-fetched as everyone seems to believe. There is a enough literature on cows milk and diabetes that I couldn't begin to summarize it. It's pretty clear that feeding cows milk in early infancy increases... -
Don't forget the confusion with monosodium GLUTamate. Been told I couldn't eat something because of MSG on the label too.
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ARCHIVED Here Is The Rundown... Can You Tell Me What You Think?
Skylark replied to KathrynB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OMG! That's my old rash! I thought maybe it was DH because it itched like crazy but I never had the symmetry and DH is uncommon on hands. The interesting thing is I stopped getting it a year or two after I went gluten-free. I haven't had a breakout in ages. I wonder if there is a link between celiac and dyshidrotic eczema? -
ARCHIVED Need Help Finding Subs For 2 Ingredients
Skylark replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
Ground almonds. I get Bob's Red Mill brand at my local health food store. It's kind of pricy but really good. You can make it yourself by putting blanched almonds into a food processor. Just be sure you don't overdo it or you get almond butter. -
ARCHIVED Here Is The Rundown... Can You Tell Me What You Think?
Skylark replied to KathrynB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi and welcome. When celiac is ruled out, a LOT of people self-diagnose with non-celiac gluten intolerance. As you are learning, you can get very ill from gluten and still have negative celiac tests. Yes NCGI can cause fat malabsorption from the intestinal inflammation. I wouldn't be surprised if it could cause elevated eosinophils. You have to stay... -
My smarta$$ reply to "how do you have anything to eat?" is "Truffles, caviar, and champagne are gluten-free. I do just fine."
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ARCHIVED Declaring It Offical.......
Skylark replied to roxieb73's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm glad you've gotten more comfortable with your diagnosis. It's great to hear you're feeling better! -
ARCHIVED Need Help Finding Subs For 2 Ingredients
Skylark replied to squirmingitch's topic in Gluten-Free Recipes & Cooking Tips
Whew, thanks Jestgar. That was hard to read. I'd try subbing more flax meal for the almond flour. You might not miss the egg yolk with more flax because flax is a common egg substitute. I'd throw in a wee bit of water or melted coconut oil if the batter seems thicker than usual from missing the fluid in the egg yolk. -
ARCHIVED Mcdonald's Grilled Chicken
Skylark replied to jststric's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Punkin seems to eat a lot of junk food. It's probably affecting her mind. -
If you've been traveling tropical sprue can cause a biopsy that looks like celiac. So an a viral infection. If you weren't sick any time near the biopsy and haven't been to the tropics it's probably blood-negative celiac. It happens because the antibodies are mostly in your gut, not your bloodstream. Blood tests sort of look in the wrong place.
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ARCHIVED What Are Ok Calcium Levels?
Skylark replied to hannisa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That's really up to your doctor to determine. He will do that partly by evaluating whether you have signs of calcium deficiency as well as reading labs. As I mentioned, if your blood levels tend to fall below the bottom of the "normal" range you might have parathyroid trouble. -
ARCHIVED High Liver Enzymes A Sign Of Gluten Intolerance?
Skylark replied to gonnabeglutenfree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sure. Any MD can order a celiac panel if it's justified. -
ARCHIVED Cheetos? Reacting From? Anyone Else Have Problems
Skylark replied to Teri Lou's topic in Dermatitis Herpetiformis
If you like the cheese coating, get Pirate's Booty rather than Tings. Pirate's Booty doesn't have as many chemicals as Cheetos and tastes almost the same. -
ARCHIVED High Liver Enzymes A Sign Of Gluten Intolerance?
Skylark replied to gonnabeglutenfree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great! I'm so glad you feel better. -
ARCHIVED Best Tests For Young Children?
Skylark replied to nvsmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The last test you're thinking of is deamidated gliadin peptide IgG, abbreviated DGP. It would be good to ask for becasue it can be pretty sensitive in kids. I've read the same thing about EMA, that it's less sensitive than tTG in kids. One more vitamin that can be deficient is vitamin D, though I don't know how common D deficiency is in kids. It's pretty... -
It's not that hard to identify DH. Blisters? Itches like a SOB? Goes away off gluten? Bingo. I have Hashimoto's thyroid disease, which is autoimmune. There is a blood test for it. I don't know much about adult onset type 1 diabetes but I know that it's possible. Sounds like you need an endocrinologist, not a chiro.