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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Hey, if you're getting private celiac testing you need to keep eating gluten until after the tests are done! The blood tests are inaccurate gluten-free because they measure antibodies that only are in your blood when you are consuming gluten on a daily basis. Keep your wheat consumption at or even above where it usually is until the test is done. I do think...
  2. Skylark
    No need to be embarrassed. That was a good catch! Isn't it a great feeling when you figure out a mystery allergy? The gluten-free diet can get you so food-focused that you blame everything on gluten, or on food in general. I hope you continue to feel a lot better off gluten.
  3. Skylark
    I hope you can get a chance to talk to the other parents. One of the hardest things about starting the diet is getting perspective and I think they can probably help you. (Folks on the board can too!) It's hard to know when the risks of CC are small, when they are big, and what will be low enough gluten to keep your daughter healthy. Gluten tolerance...
  4. Skylark

    ARCHIVED Blood Tests

    Skylark replied to cait's topic in Coping with Celiac Disease

    Hyperthyroidism can cause weight loss, hair loss, and fatigue. Perhaps you've gone the other direction. I find that white rice is easier on my system than brown, becasue it is very low in grain lectins. Sweet potato is great because it's not even a nightshade.
  5. Skylark
    Glad to hear you had a good day! The GAPS book is well worth buying if you start to find the diet helpful. It explains why the diet works and all the details of how to really heal your gut.
  6. Skylark
    How dare you presume to speak for "most"? You speak for yourself and no other. Please stop presenting your opinions as the majority. I'm getting angry now because you are acting as if a self-diagnosis is somehow inferior or less accurate than one bestowed by a dude in a white coat who still puts his pants on one leg at a time in the morning. Celiac tests...
  7. Skylark
    You are thinking of "rabbit starvation". It's used to illustrate that people can't live on only lean protein. At the end of winter, it was possible for settlers to be out of fresh foods, tallow, or grain. Rabbits were easy to catch, but they are lean to begin with and very lean at the end of winter and don't have enough fat to live on. You could eat all...
  8. Skylark
    That's DH for sure! I hope you can get the testing easily and that things come back OK. I'm sure your baby is doing fine.
  9. Skylark
    Before you go off gluten, you need proper celiac testing. Celiac testing only works on a full gluten diet. (Four slices of bread a day worth of gluten.) If gluten turns out to be your problem, you won't want to re-poison yourself for two months to find out if you have celiac disease. Tests you need: Total IgA TTG IgA deamidated gliadin (also called...
  10. Skylark
    Sauteed chicken livers with onions and celery. (Yeah, I'm weird. I love chicken livers and I found organic ones at Whole Foods!) Steamed baby bok choy, and a slice of Canyon Bakehouse gluten-free bread.
  11. Skylark
    Before you go off gluten, you need proper celiac testing. Celiac testing only works on a full gluten diet. (Four slices of bread a day worth of gluten.) If gluten turns out to be your problem, you won't want to re-poison yourself for two months to find out if you have celiac disease. Tests you need: Total IgA TTG IgA deamidated gliadin (also called...
  12. Skylark

    ARCHIVED Blood Tests

    Skylark replied to cait's topic in Coping with Celiac Disease

    I had to look up Whole 30. I tend to get a little tired completely off starches and I feel better with maybe 1/2 sweet potato, a small serving of white rice, or some sprouted buckwheat crackers daily. With the hair falling out, I bet it's thyroid.
  13. Skylark
    Hi and welcome! Women with celiac usually have perfectly healthy babies. The placenta is very aggressive about getting nutrients to your baby. You might talk to your doctor about testing for B12, vitamin D, and iron as those are most commonly low. Obviously you need to be more consistent with the prenatal and if there are any deficiencies in the blood...
  14. Skylark
    Your doctor ordered the right tests. You can have diarrhea from gluten intolerance though. It's worth staying gluten-free for a few more weeks to see if things improve. If not, have a look at the Specific Carbohydrate Diet Open Original Shared Link or if you suspect dairy sensitivity the GAPS diet Open Original Shared Link Another thing to consider...
  15. Skylark
    Pssssst... It's a joke! She ate the WHOLE BOX!
  16. Skylark
    Strawberry allergy is not uncommon at all. My brother used to get hives from strawberries. Fortunately he outgrew it.
  17. Skylark
    Thanks for sharing. This looks tasty!
  18. Skylark
    As Razzle said, celiac is autoimmune and there are blood tests you should have gotten while you were still eating gluten. Without testing there is no way to distinguish celiac and gluten intolerance, though an itchy, blistered skin rash is often an autoimmune rash called dermatitis herpetiformis (DH). If you have DH you're celiac because it's autoimmune...
  19. Skylark
    I did that to myself with Kinnikinnick donuts too. They're dangerously good, aren't they?
  20. Skylark
    Your doctor is splitting hairs. You can be celiac with DQ1 and some experts argue that gluten-sensitive lichen planus is a skin manifestation of celiac. If rash goes away off gluten I'd consider myself celiac.
  21. Skylark
    You mean, for YOU it's easier to stick to the diet. I'm self-diagnosed and I have no problems sticking to the diet. I also have no issues getting proper medial care or convincing my friends/family that I need really clean food. It's pretty obvious when a lifetime of GI symptoms, canker sores, psych symptoms, and anemia all go away after a year gluten-free...
  22. Skylark
    Don't confuse grainless and low-carb. Grainless includes tapioca starch, flax meal, potato starch, and bean flours, which could make a reasonable flour mix for yeast bread. Some people with grain sensitivities also tolerate pseudo-grains like buckwheat, quinoa, and amaranth. If you need low-carb as well, that's where the almond flour and coconut flour...
  23. Skylark
    My understanding is that cornish game hens are a variety of chicken, usually killed younger than broilers. Good luck with the exotic meats and to look into some leaky gut healing diets.
  24. Skylark
    Don't worry. I think it's great when we offer similar advice! Less confusing. I also agree with you about how difficult it is to maintain health on a vegetarian diet, particularly without animal fats.
  25. Skylark
    Because of your IgA deficiency, IgA tests will always come out negative. There isn't any IgA to look for. The only useful test you've had is deamidated gliadin IgG. If your doctor is willing, I'm suggesting you get the IgG version of TTG, just to be sure everything is negative for your peace of mind.
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