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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I get this! Brain fog, vergito, neuro symptoms, horrible cognitive dysfunction (can barely drive), and migraine symptoms. I can also be depressed when the episodes come on. For me they last 2-3 days. I am a little afraid it's perimenopause in my case. Chocolate triggers migraines in some people. I'm also sensitive to tyramine, which is very high in...
  2. Skylark
    If you never eat while you are working, I'd personally focus on home first. If I lived in a kitchen with gluten I would have separate condiments and a separate cutting board as well as the toaster. If someone gets breadcrumbs in the mayo, you're CC'd. Also is anyone using wheat flour in the kitchen at home? It gets in the air and goes everywhere. If someone...
  3. Skylark
    Glad you found that funny/helpful. Please don't apologize for ranting. It's why the most popular section of the board by far is called "coping with celiac". As you well know, celiac is not something you can just forget about or ignore in our bread-centric society. This is where you can come to get the frustration out and we all completely understand...
  4. Skylark
    Look into low dose naltrexone. It didn't do much for me but some people find it really helpful. Open Original Shared Link
  5. Skylark
    Welcome to the board! Do you mind an answer from an adult? Because I sure feel the way you do sometimes. I'm going to a party tonight. They will serve beer and I will have to bring my own cider if I want something to drink. I've eaten dinner ahead of time because I will not be able to snack at the party. Even if there is gluten-free food there will...
  6. Skylark
    University of Chicago Celiac Clinic says 2-3 months. I was told 2 months at Warren Celiac Clinic at UCSD. Mayo clinic tests at 4 weeks but has patients continue eating gluten up to 6 months if they are seronegative at 4 weeks. You know better than them? The study you linked supports a 4 week challenge ONLY if you can retest later like Mayo does. Notice...
  7. Skylark
    That's great that your ped will write Meghan up for a 504 without the biopsy. I'd be more inclined to follow parental instincts and see how she does on the diet if that's the case. You and your Dr. can always make the decision to biopsy later if things aren't improving. Same with lactose intolerance/casein intolerance. It's something to keep in the back...
  8. Skylark
    I think you should work hard to get blood testing done before you leave for vacation. See if your Dr. will call in labs in the next couple days. Mine will make a lab slip for me to pick up if the test is warranted. Agreed it isn't worth ruining your vacation with gluten! Your results are interesting and suggestive of celiac. I can see why you...
  9. Skylark
    The main concern with "may contain wheat" labels is barley-derived ingredients like barley malt hidden in natural flavors. Rye is an unusual ingredient so that's not a real concern. Barley malt and malt vinegar are expensive, specialty ingredients so they tend to be listed separately but of course we need to be sure. A lot of the major corporations like...
  10. Skylark
    You might look into salicylate intolerance.
  11. Skylark
    This sounds interesting. I wonder when it will be commercially available?
  12. Skylark
    $1000/week??? Maybe I should see about selling my Hashimoto's antibodies. Wow, good luck with the wedding. That's exciting news!
  13. Skylark
    Waitaminute. High BMI and high cholesterol are symptoms of thyroid disease. Has her thyroid been tested? People with celiac are very prone to thyroid trouble. Also, I thought the latest thinking for controlling weight and cholesterol was allowing good fats like nuts, seeds, olive oil, and avocado and limiting bad fats like hydrogenated vegetable oils...
  14. Skylark
    You're the second person who has gotten a weird answer from Kraft. I don't think they are training their telephone people about gluten. I'd trust the label. I'm enough of a health food person that Cheez Whiz is out of the question anyway. If I'm going to wreck my stomach with dairy, it's going to be a really high-quality aged cheese!
  15. Skylark
    I have to be honest, they couldn't pay me enough for my plasma to make it worth eating gluten. I'm too afraid of more autoimmunity appearing. All the money in the world won't make another autoimmune disorder go away if you mess up your immune system with gluten.
  16. Skylark
    You need to get your other kids tested, especially DD#2!!! Type 1 diabetes is a risk factor for celiac and it can be silent. I wouldn't put her through the biopsy if she were my child, as long as her doctor is willing to firmly diagnose celiac for her school. Some teachers are unbelievably uncaring about celiac kids. Other board members have had a lot...
  17. Skylark
    I wonder if your GI is just wanting to have a look and rule out other problems? I'd personally only go with the biopsy if I still had symptoms at appointment time. If the gluten-free diet heals you in 4 months, which it definitely can, there is no point to undergo an invasive procedure.
  18. Skylark
    There is no validated test for gluten intolerance. What test was done and what were the results? It may have been that your Dr. misinterpreted a celiac test. If I read your post correctly you've only been gluten-free for a week? My understanding is that only a week off gluten isn't enough to throw a celiac panel to the point where you need to challenge...
  19. Skylark
    I'd be inclined to trust the kit since it's cat food. Did you test some similar human food (canned tuna or something) to be sure it isn't coming up with gluten on everything?
  20. Skylark
    Gotcha! Well good luck with it and enjoy your pastries. I hope you don't get too sick.
  21. Skylark
    You put that really well. I'm the same way. Gluten is poison for me, but now that I know I have Hashimoto's I really wish I knew whether I had celiac as well. It would help me evaluate the risk for more autoimmunity. That niggling doubt is sometimes hard to live with. That said, I'm not going to gluten challenge to find out. Two doctors in a row told...
  22. Skylark
    Sorry, but most celiac clinics say to eat 4 slices of bread worth of gluten daily (or a typical full gluten diet) for 2-3 months before a blood test to have a reasonable chance of a positive result. The antibodies in DH are in your skin, not your blood, and a fair number of people with DH continue to have flareups for quite a while after going off gluten...
  23. Skylark
    Like Nicole says, being "slightly positive" on a celiac test is like being "slightly pregnant" on a pregnancy test. You're celiac, and feeling great on the gluten-free diet and sick when you eat gluten confirms it. Don't worry about the biopsy and keep right on eating gluten-free! Thank your doctor Monday for diagnosing you so young. My life would be...
  24. Skylark
    You know, I really wish people would keep their story in one thread. It's impossible to help someone with all the relevant info scattered about.
  25. Skylark
    Good to know! See how it's listed separately, though?
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