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Skylark

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Everything posted by Skylark

  1. Skylark
    I think you should call your doctor. Pain that bad might be gluten but I'd want to be sure.
  2. Skylark
    I'm glad to hear you found something that works. I agree steroids aren't something to take often, but it beats having an accident!
  3. Skylark
    A teflon pan with burnt rice stuck to the bottom? I'd consider replacing it. Something is wrong with the coating if things are sticking to it like that and I don't see how you could get the rice and now gluten off without damaging the coating.
  4. Skylark
    What about something like this? Open Original Shared Link
  5. Skylark
    It's the filming that would make me ask for more money. I mean, what are they going to do? Follow me into the bathroom? Seriously?
  6. Skylark
    Hi, and welcome. I'm glad you're starting to find some respite gluten-free. That chest tightness sounds like my asthma. I get it sometimes from gluten, as well as all the GI issues. You may be a little sensitive to soy. Keep an eye out next time you eat it. I've never been sure that unfermented soy was a particularly good food for humans. I tend...
  7. Skylark
    Thanks for sharing! I'll have to try almond flour. My favorite for thickening is arrowroot starch.
  8. Skylark
    But what does that have to do with antibodies to the oats? I don't get it? I'll be really curious to read what you turn up. It is VERY clear that some celiacs have a gluten reaction to oats though.
  9. Skylark
    My personal choice is to buy my flours from Bob's Red Mill, who tests them for gluten CC. I just sort through whole grains like buckwheat and millet because you can find anything that looks different. I haven't ever seen wheat in rice, probably because they growing conditions are so different. Wheat would drown in a rice paddy.
  10. Skylark
    What? Either you misunderstood or this "expert" is not expert. What's in the medical literature is a recommendation that newly diagnosed celiacs avoid oats until their bloodwork is back to normal. This is so that you can reintroduce oats and be tested six months later to be sure you're not making antibodies again from the oats. This is very conservative...
  11. Skylark
    That's exactly what I was going to say. Some celiacs take as long as 5 years to fully recover; others get a lot better but don't return to 100%. I would personally give it more time before accepting a diagnosis of refractory.
  12. Skylark
    As my MD friend tells me, doctors have to know and recognize 500 different diseases. A patient only has to become expert on one or two, so we can learn more about celiac than they have time for. I don't really know about your TTG but I can tell you that it's happened to other members here. I think someone said that anti-gliadin is better for checking...
  13. Skylark
    You are NOT hypochondriac. Never give up. You know your own body far better than a doctor ever can - you live in it. We have a LOT of people on the board who have constipation instead of diarrhea from gluten intolerance. Your low iron is a sign of it, and your memory problems a sign of the hypothyroidism that commonly comes with gluten intolerance....
  14. Skylark
    He really needs to be tested. If he is celiac, you will have a firm diagnosis for school and college. As far as needles, when I was a kid, I was able to overcome a lot of things I hated when bribed with candy. It was about the only way Mom could get me to the dentist. I had to go a lot becasue like most folks with undiagnosed celiac, my tooth enamel...
  15. Skylark
    I have a close friend who lost from half her weight from 340 lb down to 170 lb and she's still losing. All her obesity-related health problems are gone, and she had some scary ones - I was there by her hospital bed. She is an MD and she has written a book on what finally worked for her. Her book is here on LULU. Open Original Shared Link She is also...
  16. Skylark
    One of the biggest signs of celiac is inability to hold a normal weight. Are you sure your partner doesn't have issues with gluten? Dishes run through a dishwasher should be fine. If you're hand washing, be super careful with clean sponges and grabbing a fresh drying towel. If your partner does something completely natural like wiping up spilled pasta...
  17. Skylark
    You are making the assumption that small amounts of fecal anti-gliadin are meaningful. I don't believe any research has proven that or even come close. To the contrary, published studies suggest that only very high measurements are meaningful. Fine has his cutoff set far too low. Open Original Shared Link I had another study where the authors suggested...
  18. Skylark
    It's right on his website. Perhaps you should take a look?
  19. Skylark
    Probably. I know how freaky those heart palpitations feel. I hate them. It can take a bit of time for autoimmunity to crank up. Gluten activates some immune cells pretty fast, but the whole autoimmune reaction can take as long as a couple days. Unfortunately, it also takes a few days to settle back down.
  20. Skylark
    Does your family understand allergy, how kids with peanut allergy can go into anaphylaxis from traces of peanut? Or do they understand how well the immune system tracks down germs to keep us from getting sick? You can work from that to remind them that it's that same immune system that is tracking down wheat. I sometimes say my immune system is on a...
  21. Skylark
    I didn't really fit the bipolar mold well either. I broke through med after med. My psychiatrist suspected thyroid issues but we could never turn anything up with bloodwork. I suspect now that I had a mix of malabsorption and Hashimoto's flareups. Even now it takes stupid amounts of vitamins and minerals for me to test normal and if I miss taking some...
  22. Skylark
    I remember reading a recent article about celiacs eating wheat having a cancer risk. Celiacs on the gluten-free diet were fine.
  23. Skylark

    ARCHIVED Confused

    Skylark replied to Diana76's topic in Coping with Celiac Disease

    Wow, whoever you are following on FB has some sort of anti-grain agenda. That's one of the worst cases I've ever seen of totally taking a scientific study out of context. Unfollow/unfriend and ignore! Some celiacs need to avoid oats, and some need to avoid dairy, but most celiacs have a full intestinal and health recovery after eliminating just wheat...
  24. Skylark
    I'm not convinced there is any such thing as IBS. It's a non-diagnosis that usually means your doctor is too stupid to figure out that you probably have a food intolerance...like gluten. The inflammatory bowel diseases that cause TTG are Crohn's and microscopic colitis. If I were you, with nothing else wrong, and no signs of rheumatoid arthritis that...
  25. Skylark
    Your doctor can order it. Don't go gluten-free until you've had the bloodwork. I'd be surprised if it comes up positive with the low Enterolab results though. Just remember that you can be very sick from gluten without much in the way of antibodies. In some people it has a natural inflammatory action that causes a lot of havoc. I'm sorry to say, but...
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