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Skylark

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Everything posted by Skylark

  1. Skylark
    Yes, and my autoimmune antibodies did not appear until 2008, eight years after the psych trouble started. There was no way the Hashimoto's could have been diagnosed. I have read that the antibodies can take many years to appear in the blood with autoimmune thyroid disease.
  2. Skylark
    But you do know. You know you are so horribly sensitive to gluten that it gives you symptoms of a potentially fatal condition. Socially it's fine to call yourself celiac. It's only a label and nobody is looking over your medical records. When you talk to specialists tell them exactly what you did us. The last time you ate gluten you had symptoms...
  3. Skylark
    I have never run across a chicken with plumping solution that contained wheat. If there is wheat in any product in the US or Canada, it must be declared in the allergen information on the label.
  4. Skylark
    DPP-IV products are ineffective at breaking down the toxic portion of gliadin. They only cleave terminal prolines, not ones in the middle of peptides. They cannot protect from traces of gluten, detoxify gluten, reduce celiac symptoms, or do pretty much anything that website claims. Yes, the web page cites studies, but if you take the trouble to read them...
  5. Skylark
    I would travel with gluten-free bread and cereal and figure I could get the rest of what I need at just about any store. My family is very level-headed about my diet and nobody takes offense when I'm a little worried about food. They let me eat what works for me. You're driving so you'll have a car and it will be really easy to shop. You might ask for...
  6. Skylark
    People who eat gluten comfortably can have anti-gliadin (as can non-celiac gluten intolerant folks). It can come and go too. That's why it's not considered a very specific test and doctors have been moving away from it. Normal people do NOT have anti-TTG, anti-endomysial, or anti-deamidated gliadin. Anti-TTG is not specific to celiac and can show up in...
  7. Skylark
    Oh, have fun! Around here Whole Foods has Glutino, Udi's, Rudi's, Kinnikinnick, Tinkyada, Mary's Gone Crackers plus all the (expensive) stuff from their own dedicated gluten-free bakery. They also have their own 365 Brand rice crackers that are cheap. Some of my favorites are: Glutino bagels (Udi's are good too) Glutino cinnamon raisin bread Rudi's...
  8. Skylark
    Bread crumbs don't just appear in sugar like they do butter or mayonnaise so you have to conclude your sister deliberately put them there. I don't know what's going on between you and your sister, but it isn't healthy and I agree it isn't likely to change. You need to lock up your food, dishes, and pans and obviously you need to turn down food your sister...
  9. Skylark
    Well, I'm sorry you got stuck with our difficult diet but glad to hear you got some answers.
  10. Skylark
    Are you aware that genetic gluten intolerance is a spectrum, with gluten enteropathy as only one of the many possible outcomes? You are not giving enough legitimacy to self-diagnosis, and putting more emphasis on flawed diagnostic tools than good doctors. If I went to a celiac support group, I wouldn't consider myself somehow "non-celiac". My doctors...
  11. Skylark
    Readable, perhaps. Best? Not by a country mile. That exact strategy has nearly gotten folks on the board killed because it is overly conservative, has incorrect false negative rates, and relies too heavily on our very incomplete understanding of celiac genetics. Not to mention it completely glosses over the fact that gluten intolerance and celiac disease...
  12. Skylark
    If that's deamidated gliadin, he needs to be gluten-free. That is an antibody to a form of gluten that is ONLY formed in the intestine of someone who either has celiac disease or is well on the way. He should be biopsied but even if the biopsy is negative, that antibody is a sign of trouble to come. If it's the old anti-gliadin, the IgG would only be...
  13. Skylark
    I agree with pgrovetom. Gluten-free for 5 days won't mess up the test. Simply go back to your normal diet until the test is done. There is no need to go out of your way to "load up" on gluten. I know that feeling of moving into the bathroom. Just put a really good book in there!
  14. Skylark
    Here is part of where the three months came from on the board. I did some digging in the medical literature a while back when we were all confused by conflicting advice from doctors. Scroll down to the fourth post for the studies I found. What I don't know is whether seven weeks is enough to switch to a normal biopsy. It's certainly enough to...
  15. Skylark
    I know 2-3 months sounds rough. That is why I've never gone back and challenged. You got me curious. I'm linking abstracts for you, as they're publicly available but I checked full text for two of the papers as the challenge time length wasn't in the abstract. Here is an article showing median time to relapse in children with gluten challenge with...
  16. Skylark

    Celaic And Oats

    Skylark posted a blog entry in Skylark's Blog

    As far as oats, the scientific consensus is that while most celiacs can eat uncontaminated oats safely, a few cannot. Across studies, some people have dropped out of oat studies because they felt unwell, and one had a biopsy-proven reaction. There are also immunological measures that suggest minor reactions in some people. What's recommended in the literature...
  17. Skylark
    Wow, amazing metabolic sleuthing! I'm impressed. First, have you considered the heart effect might be phenylethylamine? If it is theophylline, everything says methylxanthines go over the hepatic P450 system, which requires heme iron. However, there is also xanthine oxidase, which is a molybdenum containing enzyme. You'd have to do some digging to figure...
  18. Skylark
    Allergy tests are actually very accurate. You learn exactly what you are allergic to when it is scratched into your skin. Oh, wait... you wanted to know what happens when you eat it... In seriousness, I thought allergens that cause a big, dramatic weal and flare were usually a problem in food. Isn't it the milder reactions that are harder to sort...
  19. Skylark
    Four days off gluten won't change the blood tests. Go back onto your normal diet until they call you back and you can get the labs. Then do what your body tells you, even if the labs don't come back celiac.
  20. Skylark
    Positive bloodwork and biopsy? Sorry, but it's celiac. What are you eating that's different when you go gluten-free? Are you just taking gluten out of your diet or are you eating a bunch of the specialty gluten-free foods? You may have another intolerance kicking in to flours you've never had before like amaranth, teff, tapioca, or arrowroot. Some...
  21. Skylark
    You two are so lucky. I went gluten-free in 2005. Anti-TPO appeared in 2008, and doubled when I had it run again this year, plus I have anti-thyroglobulin now. I agree about T3/T4. I take synthetic because my doctor seems to prefer it and now that we have the dose titrated again it seems to be working OK. My advice for going gluten-free is to get yourself...
  22. Skylark
    For most folks, no. However, I am continually amazed by a small group of people on this board whose immune systems do not miss a single molecule of gliadin peptide. These individuals are far more sensitive than an R5 or even a protein fragment ELISA. Rather than providing blanket statements of safety, I think it's better to provide accurate information...
  23. Skylark
    I had vertical ridges in my nails, lots of white spots, and my nails tended to peel and break before I went off gluten. Now my nails are strong and I think they are prettier. The vertical nail ridges can be normal and they are certainly not cause for alarm like horizontal ridges; however, they can also be a sign of a mild nutrient deficiency that might...
  24. Skylark
    In that kind of matrix, it doesn't. Gluten sensitivity is only vaguely recognized by the mainstream medical establishment and the only definitive test is by diet elimination and challenge.
  25. Skylark
    We put some references in this thread. Sadly, my own experience is that gluten-free does not necessarily lower autoimmune thyroid antibodies. Mine appeared after I went gluten-free and have been steadily rising to titer over 400.
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