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Skylark

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Everything posted by Skylark

  1. Skylark
    Yes, that's the study. The role of an innate IL-15 response as the first step in celiac is also pretty well documented. The model is gluten -> IL-15 through innate immunity -> interferon-gamma and NK cells -> inflammation and apoptosis of epithelial cells -> abnormal antigen presentation of gliadin by DQ2 or DQ8 -> anti-gliadin antibodies...
  2. Skylark
    There is no reason to do ANA (antinuclear antibodies) with a celiac panel. That one is run if you have symptoms of other autoimmune diseases like lupus, rheumatoid arthritis, or Sjogren's syndrome.
  3. Skylark
    Those nurses can be so annoying. They can't interpret the tests. If the biopsy is clean, you try the diet anyway. The biopsy is not 100% reliable by any stretch, so you may still be celiac (no "s" at the end of the word) or gluten intolerant. Chances are good with the positive blood test that you will feel much better gluten-free. Besides, positive...
  4. Skylark
    My mom is negative blood and biopsy and she does not have to be as careful as I do to feel well. She pretty much doesn't worry about CC because she's never had an issue with it. She can even eat a little soy sauce at Chinese restaurants, which always makes me sick.
  5. Skylark
    You MUST be eating gluten for all celiac testing. Three months gluten-free is long enough to have a completely negative celiac panel. You need to go back to eating a full gluten diet for at least two months to have a chance of positive test results. I hope it works out for you!
  6. Skylark
    I'm so sorry to hear how sick you are. It sounds terrible. Mushroom covered just about everything I was thinking. Wheat allergy and celiac is nowhere near the same and I don't know why a doctor would say that. Maybe by "technically nothing" he means that both are treated by eliminating wheat, although with celiac you also eliminate rye and barley.
  7. Skylark
    I'm so glad you're feeling better. Yes, it can stay! I was good for four years until my thyroid acted up and I think maybe it's sorted again. I have a bit of a wheat allergy along with the celiac-style reactions. I've gotten oral allergy tingle/itch from gluten and it's set off my asthma in the past.
  8. Skylark
    Don't you like that feeling of solving a health puzzle? I always feel more in control. I won't handle wheat at all unless I'm in a situation where I absolutely can't avoid it. I'm not sure I'd bother with a doctor. Dapsone is a sulfa and that's all I know of for DH. I wonder if an over-the-counter benedryl or cortisol cream might help?
  9. Skylark

    ARCHIVED Help Please!

    Skylark replied to vanik's topic in Coping with Celiac Disease

    I hope you got some medical help by now. If you ate a bunch of gluten, there won't be a lot doctors can do for you, but it's important to be sure it is the celiac and not something else. I find Pepto-Bismol helpful for the nausea and stomachache and I usually take Immodium for diarrhea. Also drink lots of water to help detox and stay hydrated. I've...
  10. Skylark
    I'm glad to hear you're better! Celiac blood tests only detect celiac maybe 70-75% of the time so it's absolutely possible to be celiac and have a negative blood test! It's also possible to be very sick from non-celiac gluten intolerance. Trust your response to the diet above anything else.
  11. Skylark
    Sorry, my bad. I missed that. I've not seen followup of the one study on celiac and dysbiosis though.
  12. Skylark
    I think you misread. He is talking about anabolics, not antibiotics. They are the steroids used and/or abused by athletes to build muscle mass. As far as I know, anabolic steroids are not anti-inflammatory like corticosteroids either.
  13. Skylark
    This is a 2007 thread. Let's put it to rest, especially since it is suggesting medications that have since been black box labeled by the FDA and subsequently taken off the market.
  14. Skylark
    I'm guessing your doc is thinking a rheumatologist because they specialize in autoimmunity. You are right that what you need is a GI for a biopsy. I've read a lot of medical literature, and everything I've read suggests that you're definitely celiac with the positive endomysial antibodies and deamidated gliadin. There are some articles that argue that...
  15. Skylark
    I think the female bias towards celiac is due to immune system differences, not hormonal differences. We are "engineered" to tolerate a fetus, which may not be a perfect immunological match and it causes some differences. I turned up one article of interest done on monkeys with an androgen receptor agonist that you might throw at the steroid pharmacology...
  16. Skylark
    There's a lot of women on the board who have conceived after going gluten-free. Good luck!!!
  17. Skylark
    So you have positive TTG. If you feel better gluten-free you are almost certainly celiac. TTG is an autoimmune antibody; simple gluten sensitivity won't cause it to appear. It's hard to get positive on both blood and biopsy. Damage can be patchy and they have to take a lot of biopsies to find the damage reliably.
  18. Skylark
    I have to take rather a lot of vitamin D to get into "normal" levels - 4,000 IU most days. (I forget sometimes.) Sun may not do it because as we age we get worse at producing vitamin D from sun. Also, do you have the actual thyroid numbers? As I mentioned, there are a lot of issues with TSH and what gets labeled as hypothyroidism.
  19. Skylark
    Putting together a series of papers, I'm pretty sure that autoimmune thyroid disease is more linked to basic gluten intolerance rather than needing to really be celiac. It's been shown that gluten intolerance produces a cytokine called IL-15 that inflames both gut and thyroid. Also, the selenium deficiency from absorption problems plays into the thyroid...
  20. Skylark
    I had blood tests and allergy skin tests done when I was a child. I don't remember being particularly upset by any of it, although the allergy skin tests on my back weren't much fun. Mom told me it would be quick, would hurt a little sort of like getting pinched, and that once it was done I could have a piece of candy if I was good and held still. I would...
  21. Skylark
    Sorry you're still feeling crummy. I have two suggestions. First, get your thyroid tested. Gluten intolerance goes hand in hand with hypothyroidism, which will make you tired, anxious, and depressed. Dr. David Derry says almost all cases of "chronic fatigue" are simply hypothyroidism. The so-called "normal" TSH ranges are off, and if you are over 2...
  22. Skylark
    I was never diagnosed. I figured out I needed gluten-free on my own. I call myself celiac because I have all the symptoms and got much better gluten-free. Celiac was even suspected when I was a child. Nobody has my medical records except my doctor and nobody questions me socially when I call myself celiac. What are you really? It's hard to say....
  23. Skylark
    Refined sugar is evil. I don't tolerate it well at all. Makes me soooooo tired.
  24. Skylark
    Food is such an important part of social gatherings and so essential, it's really hard not to think about celiac. Even when you get past the initial shock of having to think about every meal and snack, it jumps in a lot. Friends want to go to dinner and you have to find a gluten-free restaurant. There is pizza or donuts at work and you have to cope with...
  25. Skylark
    I've been known to say "it's not polite to talk about what happens to me if I eat gluten at the dinner table." That one shuts people up fast.
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