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Skylark

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Everything posted by Skylark

  1. Skylark
    I sounds like she was mostly being self-centered and you have had a reasonable relationship in the past. Perhaps it was a little too much invasion into her home, especially when she was not prepared. The comment that got you upset would have upset me too. I tend to take those head-on. "That really upset me. I'm not eating much junk food and this gluten...
  2. Skylark
    Oh, wow. You poor thing. I understand how being sick can put your life in a shambles. I almost dropped out of graduate school. Your test results are TOTALLY clear and there is nothing more you would get from another lab. This is a more thorough genetic test than many people on the board have gotten. The genes they look at for celiac are DQA1 and DQB...
  3. Skylark
    That sounds awful. I have thyroid trouble and I've been reading a lot about it lately. Free T4 isn't an accurate test for hypothroidism, although yours sure is suggestive. Have you had any other tests? Usually they test TSH, and you should be screened for anti-TPO and anti-thyrglobulin, the Hashimoto's antibodies. Hashimoto's can make your thyroid...
  4. Skylark
    Sorry you got sick. I eat Costco chicken too and have never had a problem. You may have gotten unlucky and it was CC'd somehow.
  5. Skylark
    Was she gluten-free for a while? Many of us notice an increase in sensitivity going back on gluten. I hope she feels better soon!
  6. Skylark
    Sounds like celiac to me too. I had that diarrhea too and mine went away after a week on an elimination diet. The hallmark of dermatitis herpetiformis is "scratch your skin off" itching. You have a right to get your diagnostic test results. Sometimes it's easier to go to the front desk and ask for a copy of them instead of from the doctor. As Cyberprof...
  7. Skylark
    It looks like they didn't subtype your two DQA alleles. There is only one DQA1 *02 allele, so it's *0201. Your other DQA is one of the five possible DQA *01 alleles. None of the DQA *01 alleles are associated with celiac so it's not very important. In the common shorthand, you have DQ2.2 and DQ5.1. Your lab results say negative because they're looking...
  8. Skylark
    Hi, and welcome. Isn't it nice to sleep? It will take your body some time to heal and build up nutritional stores again. Just make sure your doctors are keeping an eye on iron, vitamin D, B12, and calcium. Also be aware that some celiacs have thyroid trouble, so if you're getting run-down ask for a thyroid test. You will likely be able to drink bourbon...
  9. Skylark
    Only if you're sure he will be safe eating it. It will give you a more reliable biopsy result but your ER story is really scary.
  10. Skylark
    Hi there. That sounds awful. First, are you eating gluten-free oats? Some celiacs react to them like wheat and you won't get well. Also, some folks find they can't get well eating a lot of gluten-free processed foods. There are still traces of gluten in them and it's too much for some people. Have you tried an elimination diet? I couldn't figure...
  11. Skylark
    Damn doctors. I guess they didn't bother to tell you that he would never be diagnosed without putting him back onto gluten when they offered you the choice of an endoscopy or gluten-free for a year. Ideally you want the endoscopy on a full gluten diet. The longer he is gluten-free, the smaller the chance of seeing damage because he will be healing. After...
  12. Skylark
    Blood tests are negative in up to 30% of celiacs. Don't be so sure you're not celiac if a gluten-free diet makes a huge difference.
  13. Skylark
    I have the Rudi's gluten-free Wholegrain right now and I like it a little better than Udi's wholegrain. It has more of a "bread" flavor.
  14. Skylark
    Autoimmune diseases cluster, and there is an association between Hashimoto's and celiac. Going gluten-free sometimes helps people with Hashimoto's. There is one autoimmune disease expert who says all people with Hashimoto's should go gluten-free because it helps so consistently. Open Original Shared Link
  15. Skylark
    Rudi's and Udi's are both soft and have the right texture for bread. They're not crumbly like some gluten-free breads. Everything I've tried by Udi's has been good. Their cinnamon rolls are wonderful, the muffins good (a little sticky since they're frozen), and I just got a package of snickerdoodle cookies that were great. I just tried Multigrain Rudi...
  16. Skylark
    Looking over the path report makes a lot of sense. EMA is an old test where they see if the antibodies react with monkey esophagus. The main antibody that reacts has since been shown to be TTG. I don't know that EMA would really give you new information since you already know he has the autoimmunity. What you might find more valuable is the newer...
  17. Skylark
    It's not ridiculous at all. The reference ranges are there and those are the actual test results. It is a negative celiac panel. Welcome to the forum. Reticulum Ab is the old name for anti-endomysial or anti-EMA. Your result was negative, meaning they did not see the antibody at all. A positive result would have a number. Anti-EMA is an...
  18. Skylark
    Two things come to mind. First, gluten-free is sort of a shock. Food is a big deal - it's essential for survival. Gluten foods like birthday cake and "daily bread" are also very much woven into our society. Many of the foods you're used to eating are gone and you have to relearn how to eat. You ARE in mourning. Go ahead and let yourself cry over the...
  19. Skylark
    Retesting can't hurt and absolutely try the diet once you're done with the testing. There are plenty of folks who get very sick from gluten and never have any sort of positive lab test or biopsy.
  20. Skylark
    Your doctor is not explaining the genetics very well to you. There are some genes that predispose people to celiac, but the genetic test is not diagnostic. The only result that is highly associated with celiac is two copies of DQ2.5. It sounds like your doctor didn't give you details? 5 out of 8 seems awfully vague. It is very true that biopsies sometimes...
  21. Skylark
    You seem to have Hashimoto's thyroiditis. Didn't your doctor tell you this??? It's an autoimmune disease that causes hypothyroidism. I have it too. The TPO (thyroid peroxidase) and TG (thyroglobulin) are the autoimmune antibodies and you have both kinds. Do you have access to a good endocrinologist? Hashimoto's isn't a huge deal, but it can cause...
  22. Skylark
    I was wondering if the powers that be might install some more avatar packs on the board. I've been so foggy lately I forget usernames and with the limited number of avatars available people are using the same ones over and over. I'm finding it very confusing. "Oops, that person with the kitten is a new member and not who I was thinking of!" I know...
  23. Skylark
    I would lose my mind on that diet too! You're going to stay light eating only once a day. You mentioned grilled cheese. Find a good gluten-free bread like Udi's or Rudi's as a treat and make one! Almost all cheeses are gluten-free. You know all fresh fruits and vegetables are gluten-free, right? Normal (not processed) cheeses, Yoplait brand yogurt...
  24. Skylark
    Simply Sleep is 25 mg of an antihistamine called diphenhydramine. Look for Benadryl, or any other generic Benadryl-like allergy medicine with 25 mg of diphenhydramine to get exactly the same thing. Brand name Benadryl tablets were gluten-free last time I checked. Here's the Simply Sleep ingredients so you can see for yourself. Click on the red "Ingredients...
  25. Skylark
    That's interesting. I thought I reacted to Redbreast the time I tried it. Other Irish and Scotch whiskies haven't bothered me. I was wondering if it was in my head.
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