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Skylark

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    Hi there. Don't worry. She's almost certainly celiac, because there is no other disease that causes that Gliadin Peptide antibody to appear along with TTG. Your daughter is very lucky that you were smart enough to insist on the gluten intolerance tests. Untreated celiac is no fun but kids usually recover really well off gluten. I know it's scary that...
  2. Skylark
    I have run across Queso sauces that have a flour/water base to thicken them so I wouldn't eat it if you can't get a clear answer. Did you try using the contact form on their main website to ask? Open Original Shared Link
  3. Skylark
    Cool, thanks for letting us know! *wanders off to Costco*
  4. Skylark
    Developing celiac is a process. First you make antibodies, then your immune system starts doing the damage to your intestine. Damage can be patchy and pathologists often don't consider the earliest stages of celiac diagnostic. You can be anywhere in that process, or your doctor might not have gotten a biopsy from a damaged place. If you have the antibodies...
  5. Skylark
    I signed it. I hate turning girls down at the door because I can't eat the cookies.
  6. Skylark
    You can't get positive bloodwork without eating a full gluten diet (3-4 slices of bread a day) for two months. It sounds like that's not an option which means you are doing the right thing staying gluten-free. With the rash, GI problems, and mental problems it sure sounds like celiac to me. If it's easy to get the rash to come up without making yourself...
  7. Skylark
    If you have celiac bloodwork and a negative biopsy, there is some research supporting your thoughts that a gluten-free diet is a good idea. Developing celiac seems to be a process, starting with the TTG antibodies and progressing to villous atrophy. There was a study where they found people with anti-TTG but a normal endoscopy still had a metabolic profile...
  8. Skylark
    I know one very astute scientist and another extremely good physician who say the diet is utter bunk. The scientist personally met D'Adamo and says he's laughing all the way to the bank on this diet. The physician points out that he merely associated the favorite American foods with the most common type, type o. Half the people who buy the book get to...
  9. Skylark
    I have one spot on my hand that blisters occasionally and itches like the devil. I used to think it was herpes whitlow but I had no reason to get that. It's mostly a dentists' disease. Now I'm betting on DH, especially with all the intense itching.
  10. Skylark
    You make something up.
  11. Skylark

    ARCHIVED Should I Get A 2Nd Opinion

    Skylark replied to KikiUSA's topic in Doctors

    I'm a little late to this thread, but you really don't want to put a kid on a black-box labeled drug (the big FDA warning box) unless there are no other options. Also, Lotronex is not the only drug to treat IBS-D. Not by a longshot. When I was a child I took an old, much safer medicine called Bentyl. It helped quite a bit.
  12. Skylark
    OMG I'm not alone! I practically go into orbit around a box of cookies. I play games with myself. Just one more. OK two. OK I'm just going to eat the ones on this side of the little plastic divider. OK just one from the next little plastic divider section... I can't keep chocolate, cookies, or chewy candy like Snickers around the house or I will binge...
  13. Skylark
    If they package malt-containing teas on the same lines, it could be CC'd with traces of gluten. Personally, I'd order it and not worry since the manufacturer says the tea is gluten free. Sadly, just about anything that comes out a facility that processes gluten can theoretically be CC'd. It depends on your personal sensitivity how much you need to worry...
  14. Skylark
    Tonight I'm going out so I brought a sandwich on Udi's to work. Tomorrow... Chicken legs, baked in the oven with a little butter and lots of Tabasco sauce (brand name is gluten-free unless you are too sensitive for vinegar). It tastes kind of like hot wings. Brown rice in the cooker, and I'll steam some broccoli.
  15. Skylark
    I have REALLY variable reactions. My doctor says people's level of gluten sensitivity can really change, either with more or less sensitivity. I got the wrong crackers at Trader Joes, ate one, and thought "waitaminute... that tastes like wheat". I checked the label, and sure enough I had just eaten an entire whole wheat cracker. I had no reaction...
  16. Skylark
    I agree with Korwyn that bashing the guy is not constructive or helpful (and even worse will keep him from ever coming back). There was a lot of advice given to Karl that he did not ask for and clearly did not want. He asked only one question, whether the modern tests would document his "disability". The rest of his posts were pretty much personal...
  17. Skylark
    OMG don't mess with that K2 stuff! It has cannabis-like designer drugs in it. The drugs have never been tested, nobody knows if they are safe. As soon as the government makes one illegal they invent another. You are a guinea pig for completely untested drugs. If you find pot helpful for fibro, see about getting the natural stuff for medical use. Open...
  18. Skylark
    I want to test a generic medicine I don't quite trust, so $12 is well worth it! Thanks for the feedback about how they work. It really helps.
  19. Skylark
    It's not safe for everyone. Some people can't tolerate Codex. You're not refractory yet!
  20. Skylark
    For the OP, Tricia Thompson did the recent study on CC and grains. She found CC in 7 of 22 samples, and a downright frightening amount of gluten in one batch of soy flour. Open Original Shared Link You can talk to any of the gluten-free manufacturers. They are happy to tell you that they use a 10 or 20 ppm cutoff, and sometimes they sell foods that...
  21. Skylark
    Has anyone tried the gluten test strips, like EZ Gluten? Open Original Shared Link Did they come up positive on something that made you sick?
  22. Skylark
    I've been OK with the Betty Crocker mixes, but it seems more likely that than leeks, huh?
  23. Skylark
    When I'm traveling I always bring gluten-free bread with me. It keeps just fine for a week-long trip. Then I can go to a grocery store and buy lunch meat, some raw veggies, and a piece of fruit for a decent meal. There are grocery stores pretty much everywhere. If all else fails, I can usually find a convenience store with fruit and some packaged nuts...
  24. Skylark
    Going back and reading what we said, I realized I left something out. Gads how I hate this brain fog... The idea with refractory is that you might be ultra-sensitive. Brands like Udi's and Bob's do their best to get gluten-free grains but there is so much wheat in fields, silos, and trucks, that getting completely gluten-free grains is nearly impossible...
  25. Skylark
    Even a trace of gluten will often give me a canker sore. I used to have them all the time eating lots of wheat. There are lots of studies on how much gluten it takes to do damage. The answer is very little, and it depends on the person. A crouton a day is too much for all celiacs. Some might be able to eat a crumb every now and again with no damage...
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