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Skylark

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Everything posted by Skylark

  1. Skylark
    Are you eating "gluten free" breads, crackers, and other grain products or only things like rice and potatoes? Processed foods that could be CC? Are you eating other foods that can cross-react like dairy? I also just recently learned that coffee can cross-react with celiac antibodies from this blog post. Open Original Shared Link The first thing I would...
  2. Skylark
    Hashimoto's and celiac go hand in hand. You absolutely need celiac testing. It would probably be better for your thyroid if you go off gluten once the tests are done, no matter what they say.
  3. Skylark
    Hey, I never thought about the nail biting. I hardly ever do it now.
  4. Skylark
    Congrats on your recovery! Bipolar I here. I believe most of my mood problems have been caused by thyroid disease and gluten intolerance. I have to take a lot of supplements and fish oil, and had five years of normal mood. Unfortunately, recently my thyroid autoimmunity ramped up and I'm having problems again. (ugh)
  5. Skylark
    I hate to tell you this but some people have had CC issues with Amy's. The pizza is the worst but I don't trust that brand any more.
  6. Skylark
    Was this before or after you went gluten-free for a year or so? I can digest a lot of foods that just went right through me before.
  7. Skylark
    Your little painting on your profile reminds me of Gauguin and I like the composition. I imagine Gauguin caught some criticism for unrealistic colors too.
  8. Skylark
    I understand your situation now. That must be extremely frustrating to have social security say one thing and the VA another. I wish there were a solid test for celiac that doesn't require eating gluten! Even the newer DGP test isn't that good, though it catches more celiacs than the older ones. By the way, I noticed your avatar before you said you...
  9. Skylark
    We had a long thread about Udi's once before. Some people just can't eat their breads. I've just found bread by Schar and it's as good as Udi's. Maybe you can find that one. Rudi's is supposed to be good too.
  10. Skylark
    For starters, thank you for your service. I have a lot of respect for soldiers. You do need to understand that you are hitting a bit of a nerve here. Most of the adults on this board lived with undiagnosed celiac for most of our lives (me included) and we are not looking for disability. I don't know all of your health situation, but most folks recover...
  11. Skylark
    It definitely says it's for research. "Even one donation could aid in the researcher's effort of developing more effective testing or finding a cure." I imagine they need plasma from celiacs who are newly diagnosed and still eating gluten though. There wouldn't be antibodies from folks on a gluten-free diet. "Once the products are successfully collected...
  12. Skylark
    Yes, she is almost certainly celiac. That TTG antibody is the autoimmune antibody that appears in celiac disease, and it's correlated pretty well with mucosal damage in kids. The IGA serum test should be normal; it only tests total IgA. Anti-gliadin is a notoriously poor test, so it's not unusual to have that one come back negative. The other disease that...
  13. Skylark
    I don't cheat because gluten makes me sick. I feel sorry for celiacs who cheat, just like I feel sorry for smokers. They are probably responding to the narcotic-like effect gluten and casein has on some people much as smokers are addicted to nicotine.
  14. Skylark
    I might use the gluteny food as bait to catch fish. As other folks mentioned, I'd eat the Larabars in my purse first! I never leave the house without an emergency snack.
  15. Skylark
    I was super-tired and threw some chicken and stuff in a pot. I was too lazy to brown the meat or saute onions and garlic, just threw it in a Dutch oven and hoped for the best. It came out really yummy. 5 or 6 frozen chicken breasts. Whatever you can arrange in a layer in the Dutch Oven so the wine and tomatoes mostly cover them. Fresh is fine too and...
  16. Skylark
    Nora, immunoassays are rarely zero. It's really, really common to have a faint signal from cross-reactivity in any assay that deals with polyclonal antibodies. That's why posting the reference range is so important. A reading of 3 on an assay with a reference range from 0-19 is definitely a negative result. (I might add that I know this because I have...
  17. Skylark
    My asthma has been better gluten-free, though I still need Singular.
  18. Skylark
    OK, here we go. Reference ranges are in parentheses. TPO Ab 432 High (0-34) Antithyroglobulin Ab 61 High (0-40) T4, free, direct 1.36 (0.82-1.77) TSH 2.210 (0.450-4.500) T3 209 High (71-180) No vitamin problems to account for the depression and fatigue. D 42 (30-100) B12 713 (211-946) Folate >19.9 (>3.0) My TSH seems a little high but...
  19. Skylark
    You're not alone. The blood tests can be wrong. You need to be strong and refuse to eat gluten around your family. They'll come around when they see you get well off gluten! Good luck and keep posting here. There's lots of nice folks to help you out.
  20. Skylark
    15% is optimistic for false positives! I think it's more like 20% or higher. Have you considered just trying the diet? Your GI does not control what you put in your mouth. Celiac runs in families, as does gluten intolerance.
  21. Skylark
    There is really no way to interpret celiac blood tests if you have been gluten-free for five months. The equivocal gliadin IgA is interesting, but gliadin IgA is an old test and isn't considered very predictive of celiac in the first place. Sorry for the bad news about the test results, but I hope you're feeling better off gluten!
  22. Skylark
    Your test results are probably not not celiac, although you haven't posted the reference ranges of the gliadin peptide IGG and Tissue Transglutaminase. A reading of 4 is usually pretty low. Thing is, people with non-celiac gluten intolerance can be every bit as gluten-sensitive and sick as celiacs. You also may have a false negative from not eating gluten...
  23. Skylark
    You also need a super-careful diet. Folks with neuro problems are more sensitive to gluten than most.
  24. Skylark
    - Peanut butter with gluten-free crackers, apple slices, banana, or whatever else I have around. - Hummus with whatever I feel like dipping in it - Olive tapenade on gluten-free bread. Sometimes I just get a little dish of olives by themselves. The oil in them makes them filling. - See if you can find a soy cheese you like - Natural, unsweetened applesauce...
  25. Skylark
    You need to tell your friend that the big issue is developing other autoimmunity, refractory celiac, and the chance of a rare but dangerous cancer. Her immune system will always notice the cake. There will be T-lymphocytes recruited to her intestines to do celiac damage. Whenever the autoimmunity starts, there is a chance it can spread. People who don...
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