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Skylark

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Everything posted by Skylark

  1. Skylark
    Click your name in the upper-right corner to get to "manage blogs" on the dropdown. There is a create blog button on that page. Once you have created it, there is an "add entry" button on the regular blogs tab from the main page. You also get a "blog this" button that shows up on all the posts from the board, which is nice for saving a post you think might...
  2. Skylark
    Welcome. Don't you hate doctors like that? It's still possible you're celiac, but you could also have what's called non-celiac gluten intolerance. Gluten intolerance is pretty common and can cause the same sorts of symptoms as celiac. You can push for a biopsy but it might be easier to just go off gluten for a couple months and see if it helps.
  3. Skylark
    That sounds a lot like Mom's fructose malabsorption symptoms. Have you started eating a lot more fruit since you went gluten-free?
  4. Skylark
    Shopping can be overwhelming so I always tell new celiacs to shop the outside of the store and stick to simple foods. Label-reading will take a little practice and research. It's easy to tell that a banana or a potato is gluten-free. I detour around the bakery section. I feel like an invisible cloud of gluten is hovering in the air. I mostly live...
  5. Skylark
    No worries. I think disallowing personal offsite links is a good policy. There are too many who would take advantage of free publicity. I just answered someone with my favorite recipe blog links and thought how nice it would be if I could store the list somewhere instead of hunting down my post because the question is bound to come up again. The onsite...
  6. Skylark
    1. You're going to get glutened occasionally no matter how careful you are. It's OK. Pick yourself up and keep going. 2. Don't worry about what others think. There will be people who say you are worrying too much about cross-contamination. You might meet celiacs or people who don't stick to the diet very well and say it's fine to cheat (it's not)....
  7. Skylark
    I was wondering about an on-site blog? I thought it would be fun to collect things right here on celiac.com. I don't know that other board members know how to get to blogs from people's profiles.
  8. Skylark

    Recipe Sites!

    Skylark posted a blog entry in Skylark's Blog

    Here are my favorite cooking blogs for gluten-free recipes. Gluten-free crockpot recipes Open Original Shared Link Gluten-free Bay Open Original Shared Link Hey, that tastes good! Open Original Shared Link Kill.the.gluten Open Original Shared Link Tartelette - French Pastry with regular and gluten-free versions Open Original Shared...
  9. Skylark
    Here are my favorite cooking blogs Gluten-free crockpot recipes Open Original Shared Link Gluten-free Bay Open Original Shared Link Hey, that tastes good! Open Original Shared Link Kill.the.gluten Open Original Shared Link Tartelette - French Pastry with regular and gluten-free versions Open Original Shared Link Straight Into Bed Cakefree...
  10. Skylark
    The genetic tests are mostly worthless. 30% of the US population has a so-called celiac gene (DQ2 or DQ8). Even worse, there are plenty of people without a so-called celiac gene who are celiac by blood and biopsy. If you happen to come up double-DQ2.5 you might have an argument based on the genetics but even then it's not diagnostic.
  11. Skylark
    My brother had tics and hyperactivity when he was a child and teenager. He had motor tics in both his hands and face, and handwriting problems. He couldn't sit still and the doctor wanted to put him on Ritalin. There was also discussion of Tourette's but he was never formally diagnosed with it. Mom flatly refused drugs and put him on the Feingold diet...
  12. Skylark
    1. You're going to get glutened occasionally no matter how careful you are. It's OK. Pick yourself up and keep going. 2. Don't worry about what others think. There will be people who say you are worrying too much about cross-contamination. You might meet celiacs or people who don't stick to the diet very well and say it's fine to cheat (it's not). ...
  13. Skylark
    Good luck, then! I hope the diet helps her feel better and that you get the support you need from your doctor and school. As for the needles, I'm funny. I don't mind the stick but I can't watch. If I see the needle in my arm I get a little faint.
  14. Skylark
    As an adult, going without testing isn't a big deal. I was never tested. If I had a child, I would have the tests done. As Jestgar mentioned it's an issue for school and an even bigger issue if she goes to college. She also may rebel in her teens and the positive blood test lets you know if it's really important to keep her gluten-free. Fear of needles...
  15. Skylark

    ARCHIVED I Need Help!

    Skylark replied to akcyb9's topic in Coping with Celiac Disease

    Well, I found eliminating soy and dairy really helpful at first. If you cook from whole foods it isn't too hard. Another to look at is fructose. My mom can't tolerate that and when she eats it she gets really nauseous. I really hope it helps because you sound pretty sick.
  16. Skylark
    Unfortunately, there is no further testing. Blood and biopsy are it. You to get strong support from your GP. Most people do NOT score high on tTG; only people with autoimmune diseases do. The one thing you could do is go strictly gluten-free and show the tTG antibodies falling. You need to stay strong and refuse gluten. Hopefully when your family...
  17. Skylark
    Sometimes doctors make you want to scream! Go gluten-free, see it it helps. This is a common sense diet and if it's the problem you don't need much help from doctors anyway.
  18. Skylark
    These are celiac tests for autoimmune IgA antibodies. I'm not sure what the IgG and IgA your DH and DS got were. There is total IgA - you have to make IgA to begin with for the celiac tests to be valid. If it's low, you need the IgG version of the celiac tests. I've never heard of testing total IgG though. There is also anti-gliadin IgG and IgA which...
  19. Skylark
    With the DGP and DH I don't think there is any doubt that you are celiac, no matter what the biopsy shows. The biopsy would let you know the degree of damage and give you a benchmark if you decide to be re-biopsied later in life to confirm that the gluten-free diet is working. Some people find it difficult to stick to the diet without the proof provided...
  20. Skylark
    Wow, that's a really tough call. For you, I'd say stay away from gluten and casein. You're feeling better, and people with neuro autoimmunity may only ever show anti-gliadin. The celiac panel is for GI autoimmunity. For the kids... sheesh. What a tough choice. The IgG results are pretty much allergy results, though allergy/intolerance can make people...
  21. Skylark
    For the first year when I figured out I was celiac I also got stomach aches from soy and dairy. After about a year and a half I was able to eat them again. He might try eliminating those two foods for a couple weeks and see if it helps. I know it's hard, but it beats stomach aches!
  22. Skylark
    Amy's has been a problem brand for some, especially their pizza. I don't trust Food For Life either, as they have had undeclared gluten in their foods a couple times.
  23. Skylark

    ARCHIVED I Need Help!

    Skylark replied to akcyb9's topic in Coping with Celiac Disease

    Are you celiac or just trying out the gluten-free diet to see if it helps? With that much vomiting I really think you should get to a doctor if you haven't gone already. As far as foods, soy and dairy both made my stomach hurt when I first went gluten-free. A lot of folks on the board are sensitive to them.
  24. Skylark
    I often bring a fruit salad or a big tray of fresh veggies with gluten-free dip. Your diabetic family member might really appreciate fresh vegetables to eat since they're such a staple for folks with diabetes. Another thing I sometimes take is either cupcakes or brownies made with the Betty Crocker gluten-free mix so I don't feel left out at dessert. ...
  25. Skylark
    Welcome, and don't panic. Shopping can be overwhelming so I always tell new celiacs to shop the outside of the store and stick to simple foods. Label-reading will take a little practice and research. It's easy to tell that a banana or a potato is gluten-free. I detour around the bakery section. I feel like an invisible cloud of gluten is hovering...
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