Jump to content

Skylark

Advanced Members
 View Profile  See their activity

  • Posts

    5,198

  • Joined

  • Last visited

  • Days Won

    79

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    I'd make potato salad too. I make the mayo kind so I'd put it in a cooler. If you put some eggs in it, it's a pretty good meal. I've also taken gluten-free brownies to gatherings and people ate them fine. Pamela's or Betty Crocker are good.
  2. Skylark
    Wow, great answer. Thanks for sharing that. Kettle Chips are GOOD too.
  3. Skylark
    Your thyroid sounds OK. O.77 TSH is not a sign of hypothyroidism. T3 uptake can be low if you're on birth control pills. It can be a sign of hypothyroid, but not with your high T4. If your pulse is elevated all the time, you tend to be warm, you are agitated, or have a fine tremor you might be hyperthyroid, but your TSH isn't suppressed too badly. It...
  4. Skylark
    I did that too. I kept getting into gluten at Thai restaurants without realizing it and thinking I got "food poisoned". Duh. Now I know that an awful lot of American Thai food is made with soy sauce or oyster sauce. I was eating out too much and not worrying about CC enough. I was also eating Amy's pizza regularly and I learned here that it tends to be...
  5. Skylark
    Your friend must have a bit of a self-destructive streak. How unfortunate.
  6. Skylark
    There are a lot of people who say they have trouble with Udi's. I'm lucky - I can eat it. I don't think it's gluten because they are sourcing as carefully as any other gluten-free brand. Of course if you can't tolerate 5ppm, any "gluten-free" bread will be a problem. My guess with Udi's is that they're using a lot of xanthan gum to get the great texture...
  7. Skylark
    A day isn't a problem. Just go back to your normal diet until you can get the testing done. That document you linked says they defer for Celiac Sprue, meaning someone with the active diarrhea. It says they can't typically accommodate "Celiac sprue - symptomatic within the last 6 months". It sounds like you need to get your health sorted out, then...
  8. Skylark
    Hi there, and welcome to the board. You start by going back on gluten and going to the doctor for a celiac panel. Celiac is diagnosed through either blood or biopsy and you have to be eating a full gluten diet for the tests to have any hope picking it up. Even so, the tests are only about 75% accurate. Trying the diet is a last resort, because you won...
  9. Skylark
    That "bloated belly" picture in medical textbooks is so horribly misleading. Heaven only knows how many misdiagnoses it's lead to. The blood tests are unreliable in little kids. She absolutely sounds celiac or at least gluten-intolerant since she reacts so badly to bread and pasta. The pica is because she is seeking nutrients she can't absorb. I agree...
  10. Skylark
    Bad example, eh?
  11. Skylark
    There are people all over this board who have negative celiac tests and get very sick from gluten. We don't know all there is to know about celiac, and even less about non-celiac intolerance. Mom doesn't have that much info. All we know is that she is DQ2 by serology. I wouldn't worry about the docs. You do not need to justify a gluten-free diet...
  12. Skylark
    Sometimes I wonder about malabsorption of iodine or selenium in non-Hashi's hypothyroidism.
  13. Skylark
    LOL! Stop reading and try the diet!!! :lol: :lol: My own mother is celiac-negative by antibodies and endoscopy but she is DQ2 and shed a lifetime of stomach-aches and IBS going gluten-free. The tests simply aren't accurate.
  14. Skylark
    Here is one. My keyword mojo is returning. This is the lady who desensitized herself. Open Original Shared Link And the article showing 10% of DH patients go into remission and can return to a gluten diet. (That one was tricky to dig up.) Open Original Shared Link I don't have any specific references for Markku M
  15. Skylark
    OMG the poor thing! No, she won't be damaged for a year. Don't panic. I take immodium if I have diarrhea and pepto-bismol for the stomachaches. (Name brand Pepto is gluten-free). For me a bad glutening is like getting a stomach flu. I'll also sometimes suck on candied ginger for nausea but you have to be fond of ginger. I pretty much do what...
  16. Skylark
    This is not true at all. It is a myth that is propagated on this message board. I heard a talk by one of the leading experts on celiac disease, Markku Mäki, and he said that celiac disease can be desensitized like an allergy sometimes, and other times it disappears after a few years on the gluten-free diet. It's a little bit of a mystery as to why ...
  17. Skylark
    Let's see. My "Living well with Graves' Disease and Hypothyroidism" book by Mary J. Shomun says: - Limit iodine, avoiding iodine supplements, iodized salt, and kelp. Sea salt is OK. - Add goitrogens to lower iodine absorption - brussels sprouts, rutababa, turnips, kohlrabi, radishes, cauliflower, millet, cabbage, kale, soy products, horseradish,...
  18. Skylark
    The low TSH supports your idea that you are having periods of hyperthyroidism. TSH, thyroid stimulating hormone, tells your thyroid how much hormone to produce. If it's really low, below 0.5, that supports your idea that you are going hyperthyroid. You could ask for the Graves' disease test, an antibody called TSI. You probably are postpartum. You're...
  19. Skylark
    Hi and welcome. There are cases of gluten intolerance and even celiac completely resolving. On the other hand, some of us go through periods where we are more or less sensitive. Stress can really worsen all sorts of immune system problems, so if you quit a terrible job you might have less reaction to gluten. Unfortuately, if it was stress it may flare...
  20. Skylark
    Bread, cookies, pie, cake. Who would think they are poison? Knowledge set me free.
  21. Skylark

    Celiac Haiku

    Skylark posted a blog entry in Skylark's Blog

    Bread, cookies, pie, cake. Who would think they are poison? Knowledge set me free. Source: Celiac Haiku
  22. Skylark
    Metronidazole always makes me feel awful. Tired, bloated, queasy, and generally ill. I ask for something different now.
  23. Skylark
    Wow, I have so much respect for you folks who manage that grant treadmill. I'm in my postdoc and looking for a nice, sane industry job. Just getting the doctorate was hard for me because I was fighting my thyroid/celiac caused mental illness. I had to take a year leave of absence at one point in graduate school because I just couldn't function. Neshema...
  24. Skylark

    ARCHIVED Brain Fog

    Skylark replied to Harpgirl's topic in Coping with Celiac Disease

    For me, brain fog is very much like that muzzy-headed feeling you get when you're sick with a flu or virus. I can't focus, can't concentrate, can't remember a damn thing. I can't learn anything new, and I often can't recall things I should know, even to the point of fishing for words. I am "spacey" and can barely get out of the house with everything I...
  25. Skylark
    You got it! You are DQ2.2 heterozygous, meaning you have two different genes (hetero = different), one copy of DQ2.2 and one of something else (DQ5.1 in your case). There is no way to know which allele came from which parent without having your parents tested. In the big Prometheus lab study of 10,000 people who were referred by doctors for genetic screening...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.