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Skylark

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Everything posted by Skylark

  1. Skylark
    Well, good luck sorting it out.
  2. Skylark
    That makes sense. If you just want to know yes or no for DQB1 *0201 from you, Enterolab may be the cheapest option. Happy Independence Day!
  3. Skylark
    For starters, you eliminate all soy-containing processed foods from your diet for at least two weeks, maybe even a month, and see if it helps. Soy is a declared allergen so it's not too hard to find it on labels. If you think it's helping, then challenge by adding soy back in.
  4. Skylark
    Your doctor is only repeating the incorrect information she was given that all celaics MUST be DQ2 or DQ8. Open Original Shared Link is a big genetic study where they found celiacs without DQ2 or DQ8. Gluten intolerance doesn't cause positive TTG. That is an autoimmune antibody. It comes up in some other autoimmune diseases but if it went away when...
  5. Skylark
    Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance. Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5....
  6. Skylark
    If the positive blood work was anti-EMA or anti-TTG (the autoimmune tests) and you feel much better off gluten you are almost certainly celiac. Celiac tests do not overlap with wheat allergy tests at all. They're completely different antibodies. I bet you had a lot of celiac symptoms too if they caught it ten years ago. About 1% of celiacs do not have...
  7. Skylark
    I agree. It looks negative to me too. As you're probably learning, medical laboratory tests can have different reference ranges on ELISA and other tests that are in arbitrary units. Even when labs are in measured in SI units like pg/mL you can still get different reference ranges from one lab to another. Mari, the result is right next to the test...
  8. Skylark
    Your doctor is exercising an unusual amount of common sense. I talked to my doctor about gluten challenge and he said "It's too hard to get the celiac tests to come out positive and you would just make yourself sick for no reason." I know it's a little frustrating to be undiagnosed. I never had testing except as a very young child and I was already off...
  9. Skylark
    If I were you, I would ask for the anti-TTG from Enterolab if it isn't to expensive. It is a better celiac test than fecal anti-gliadin. I would also ask if they have genetic testing for DQA1 *0505. They didn't last time someone checked, but it can't hurt to ask. Based on your genetic results it is about 60% likely that you have DQA1 *0505, because you...
  10. Skylark
    Thanks! You are not butting in at all and the extra info is very welcome. As it turns out, I'm feeling better on a little more thyroid. I came to the same conclusion after reading everything I could get my hands on so it's really nice to see someone else say the same. I took my T3 from 12.5 micrograms to a divided dose of 25 micrograms, with the second...
  11. Skylark
    Gluten sensitivity and celiac are a disease spectrum, not separate diseases. You are somewhere in the middle, past gluten sensitivity but not full blown celiac. If I were you, I would continue with a strict gluten-free diet as people with positive blood tests can move on to develop villous atrophy.
  12. Skylark
    It is what we think of on the board as 10 ppm gluten. Wheat gluten is 50% gliadin by weight. I refuse to buy Food for Life. They have a history of deceptive marketing practices like "wheat free" spelt breads and undeclared barley water used in their products. That's really good if Udi's is at 10 ppm. I have written Bob's Red Mill, and they limit to...
  13. Skylark
    Any figure in a study will be blood and biopsy proven celiacs, which means they are underestimates. Maki found 2.7% in Finnish adults, which is 1 in 37. They also don't take non-celiac gluten intolerance into account. Judging by my friends and family, I'm betting gluten intolerance is more like 1 in 10 among people with western or northern European heritage...
  14. Skylark
    I'm stumped on ITG too. As everyone else has said, you need the "normal" range to judge whether your TTG is high.
  15. Skylark
    I feel your pain. We get pizza and sandwiches at work for the weekly meeting. Stupid pizza smells good too. I always have to make sure to bring something gluten-free to eat.
  16. Skylark
    Hash browns are scary. Some places add a little flour so they get a nice, golden, crunchy coating.
  17. Skylark
    That happened to me once. I ate a wheat cracker when I got the wrong thing and had no reaction at all. I was shocked since I've reacted to shared fryer CC in the past. My doctor tells me that people's sensitivity to gluten can really change, and you can have more and less sensitive periods. Don't be so frightened. There are plenty of studies on celiacs...
  18. Skylark
    Janice, I'm glad you understood what I was trying to say. I'm suffering obnoxious insomnia from an antidepressant and I fear I'm getting grumpy from lack of sleep. I just find that most of the time, as with any health issue, it's best to provide the minimum information and move on. Sometimes I get peppered with questions and it always turns out that...
  19. Skylark
    Ugh. Sorry to hear they didn't find anything. Even sorrier to hear your doctor is one of those jerks who says stuff is in your head. On the bright side, I take it they ruled out Crohn's? I hope she does better gluten-free.
  20. Skylark
    I'm sorry but I can't feel very sorry for you if you really did everything you say. It is not appropriate to look for support for your celiac diagnosis or diet among coworkers. Save that for close friends and family. You also can't assume people know what "gluten", "intolerance", "celiac" or any of the words we take for granted around here mean. You...
  21. Skylark
    Don't fool yourselves that Earth Balance is good for cholesterol. Earth Balance has some very clever marketing but the sticks contain palm oil and have a very similar amount of saturated fat to lard (40% for both). Butter has even more saturated fat at 60% which is also why it bakes so nicely. Palm oil is NOT heart healthy. Open Original Shared Link ...
  22. Skylark
    Rice Dream's website claims their finished product is less than 20 ppm barley protein, not all of which will be gluten since it's an enzyme extract (0.002% is what is on the website). That's the same standard used for gluten-free flours and breads in the US and many celiacs will not react to it. Open Original Shared Link I agree it's not ideal for the...
  23. Skylark
    I love Penzey's. I wish I had a store in town! They've never given me any trouble, but I haven't ordered too many becasue of the cost. For the tiny bugs and mites, you need to start with clean pots and sterilized potting soil and start your herbs from seed. Soak the pots in bleach if they aren't new. Then don't set any other houseplants that could...
  24. Skylark
    I have a friend who reacts very badly to blue or green candies, pills, or anything with blue or green color. Food colors are not as harmless as you might hope. I agree with you, Karen that it would be nice if they would say something about what else is made at the plant. Many companies are really good about "shared facilities" and "shared machinery"...
  25. Skylark
    Oh, wow. That's terrible.
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