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Skylark

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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995

Everything posted by Skylark

  1. Skylark
    I only eat out at restaurants with a gluten-free menu and a kitchen that has staff trained about cross-contamination. Every time I try to relax on my diet and eat at normal restaurants I end up in trouble from traces of gluten.
  2. Skylark
    Thanks, Cass. It's hard to believe you'll feel better again in the midst of the storm. Also really good to know that hyper- can make you exhausted too. That explains a lot!
  3. Skylark
    Yes, yes, yes gluten can affect thyroid function! All of your symptoms could be caused by changes in thyroid. Your "symptoms" are classic hypothyroid symptoms and your "Periods of:" list is hyperthyroid. You may have times when the gluten alters your thyroid function by triggering autoimmunity. Thyroid function can swing up and down with Hashimoto's until...
  4. Skylark
    If you're willing to go on the gluten-free diet strictly and you know it's the cause of your symptoms you don't need testing. There is no cure for celiac other than the strict diet. As others have mentioned, your rash sounds classic for dermatitis herpetiformis (DH) and if that's the case, you are one of the typical folks who has celiac and sees Dr. after...
  5. Skylark
    Does your insurance cover the test for lactose intolerance?
  6. Skylark
    Your doctor was being facile. If you want to really understand the result, you need to ask him specifically whether the test was for anti-gliadin antibodies, or anti-deamidated gliadin peptide (DGP). If you know what diagnostic lab ran the test, it might be easier to call the lab. One result is more problematic than the other. It's not uncommon to find...
  7. Skylark
    Thanks, Cass. I don't have the numbers yet from my labs. My doctor did a full thyroid panel including antibody tests because I was hypo-ish but having periods of insomnia, low-grade fever, and when I went in my blood pressure was 10 pts above normal. I'm depressed, dizzy, can't exercise without getting really tired, and my brain is just mush. It's hard...
  8. Skylark
    Hi guys, thanks for the welcome back. Thanks for letting me know about CassP. I remember she had a lot of thyroid trouble. I'll PM her if she doesn't pop by in a day or two. I'm so depressed it's just stupid. Fortunately I have a doctor good enough to figure out what's going on.
  9. Skylark
    So I haven't been around here much lately as I've been feeling awful. Tired, brain fogged, depression alternating with insomnia, chronic fatigue, low-grade fevers, heart palpitations, bad reactions to exercise. It's been all I can to do to get to work and do all the gluten-free cooking. I click on the link to the board and getting my exhausted eyes to focus...
  10. Skylark
    This is not correct. I don't have time to pull references for people this weekend but I suggest you check out the recent IL-15 research. It is more recent than that book. Books are always out of date because of the fairly long time lag between writing and publication.
  11. Skylark
    Of course there is an immune reaction; that's the whole reason intolerance exists. Thing is if a person isn't celiac (which can be difficult to determine as the tests aren't great) the immune reaction appears to be transient inflammation rather than autoimmunity. If you're gluten intolerant and eating gluten all the time, the inflammation can be very troublesome...
  12. Skylark
    Me? I may as well eat poison. Cramping, D for 4-6 hours, wake up the next morning exhausted and spend the next 2-3 days having panic attacks. Then the canker sores will break out in my mouth and I'll have those for a week. Totally not worth it. In truth, I know all this from taking risks at restaurants and getting glutened. You'll only know how sick...
  13. Skylark
    Not me. I was wheat sensitive from infancy. I do agree with you that we are over-reliant on wheat and it's probably causing problems though.
  14. Skylark
    If messing up on your diet is agony, it doesn't matter whether or not you're diagnosed. You live the same way anyway. That's pretty much where I am. I decided not to get sick and gluten challenge.
  15. Skylark
    It's widely variable. I have had reasonable luck with better restaurants where the chef has culinary school training. It can be really hard when you get into places where half the staff is Mexican and English is their second language. The good news is that there are many restaurants in the Gaslamp so you can move on easily if you get a "gluten, what's...
  16. Skylark
    You have a "celiac" gene and borderline anti-gliadin. Developing celiac disease is a process. If you want an educated guess, I'd say you're partway there. Your villi may look OK but going off gluten is a really good idea and you will probably feel much better.
  17. Skylark
    For starters, congratulations on your new-found health! People who need a diagnosis often want the option of "cheating" on the diet. If they are not diagnosed as celiac, they think an occasional cookie won't matter. (This may or may not be true, as we know too little about non-celiac gluten intolerance.) Sometimes people just want the label. Names have...
  18. Skylark
    Not sure which part of SD you will be in, but you should be able to find stuff on these lists around town. Open Original Shared Link Open Original Shared Link Open Original Shared Link
  19. Skylark
    Paper will not make him sick unless he is eating it, nor will touching things around school. How well does he understand how to stay gluten-free? Is it possible he's eating foods other kids offer him thinking they are gluten-free and getting glutened by mistake? He needs to be eating only food you pack every single day, washing his hands before he eats,...
  20. Skylark
    Everything below the standard range is noise. The standard range is not zero because there is always some random background noise in this kind of assay. You also can't compare your numbers to anyone else because labs have different ways to score the assay. You're comparing apples to oranges. It's really good you don't have TTG. Autoimmunity is no fun...
  21. Skylark
    If garlic is an issue, keep an eye on onions. Lots of people have a cross-intolerance.
  22. Skylark
    Is there any possibility she is getting gluten foods from other children or at school?
  23. Skylark
    I've been at this for 6 years and my level of sensitivity changes. Sometimes I get into a period where I react to traces of gluten. Other times I can eat out without worrying too much about CC.
  24. Skylark
    I'm so glad it worked out!
  25. Skylark
    The Ghirardelli dark chocolate squares are awfully good! I prefer the 72%. The 86% is a little bitter for me. I have a package and here are ingredients. 72% - Unsweetened chocolate, sugar, cocoa butter, soy lecithin, vanilla. 86% - Unsweetened chocolate, cocoa butter, sugar, milk fat, soy lecithin, vanilla, natural flavor.
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