Mari
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About Me
DQ6/DQ8 Celiac Sprue. Enterolab HLA-DQ B allele 1 *0302:HLA-DQ B allele 2 *0602. This genotype combination gives a strong predispositions to Type 1 Diabetes, Celiac Disease and Leaky Gut Syndrome. One male sibling has Type 1 Diabetes. The DQ6 gives some protection for developing Type 1 Diabetes which lessens with age.
Diagnosed in 2006 at age 70 but have had symptoms of gluten sensitivity all of my life. During the years I was undiagnosed I learned to use many alternative methods to cope with the developing problems of Celiac Disease. Most of these health promoting methods came from the book 'The Cure for All Diseases' by Hulda Clark, PhD, ND and helped keep me functioning and active over the last 25 years. These procedures did not stop the damage caused by gluten so I have had a lot of healing to do but by understanding the underlying problem I am in much better health now than I was 4 years ago.
I have been criticized by the moderators and warned not to refer people to certain alternative websites and not to make diagnoses since I am not a qualified/licensed medical practitioner.
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Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead...
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Jmartes71 reacted to a post in a topic:
Related issues
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Scott Adams reacted to a post in a topic:
Related issues
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jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
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Scott Adams reacted to a post in a topic:
Related issues
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Jmartes71 reacted to a post in a topic:
Related issues
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Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
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knitty kitty reacted to a post in a topic:
My only proof
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knitty kitty reacted to a post in a topic:
My only proof
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Hi again JMartes, Would you mind telling us some of your symptoms or why you need for your Dr to do more for you. What is your main concern about your health right now? We can give you some advice based on our own problems with Celiac Disease. It may be that the anger and frustration you are experiencing is doing more damage to your body than your Celiac...
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There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
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As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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Scott Adams reacted to a post in a topic:
My only proof
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Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
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Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
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captaincrab55 reacted to a post in a topic:
New here
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Scott Adams reacted to a post in a topic:
New here
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Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
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Mari reacted to a post in a topic:
Major Glutening
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Ocd making gluten fears unmanageable. Need advice
Mari replied to Dora77's topic in Coping with Celiac Disease
I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body... -
Scott Adams reacted to a post in a topic:
Upset stomach
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Hi Vicky' If you are hesitant to visit your medical provider and if this discomfort persists you may choose to do that. I do have some suggestions and how ai have delt with digestive problems not caused by gluten but likely a result of having the autoimmune reaction in my small intestine for all the years before going gluten free. Before I stopped eating...
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Hi StevieP I think it is best to take GliadinX Just before, during or just after you eat a food that may have a small amount of gluten. Taking 2 capsules of GliadinX in the morning will not protect you all day because it will be long gone when you need it. The upper digestive system is where the digestive enzymes break down gluten. The problem with...
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Long term recovery
Mari replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi James47, You are less than 2 years into your recovery from Celiacs. Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating. For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of... -
Hi Emily, What you described is very similar to what I experienced in coping with Celiacs. I think my first symptoms started when I was about 3 and I wasn't diagnosed until I was almost 70. I got along OK util I was about 30 when I began to have more problems that the Drs thought was an autoimmune problem that they couldn't identify. Then I worked in...
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mcg Vit. B12Hi dlaino - You mentioned that you are now feeling sick all the time. If this is making you miserable you might want to go to your health provider, describe what you are feeling and your symptoms so that theySome of the people here can give you useful advice about taking supp;ements and the amounts you could take to improve your overall health...