Mari
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About Me
DQ6/DQ8 Celiac Sprue. Enterolab HLA-DQ B allele 1 *0302:HLA-DQ B allele 2 *0602. This genotype combination gives a strong predispositions to Type 1 Diabetes, Celiac Disease and Leaky Gut Syndrome. One male sibling has Type 1 Diabetes. The DQ6 gives some protection for developing Type 1 Diabetes which lessens with age.
Diagnosed in 2006 at age 70 but have had symptoms of gluten sensitivity all of my life. During the years I was undiagnosed I learned to use many alternative methods to cope with the developing problems of Celiac Disease. Most of these health promoting methods came from the book 'The Cure for All Diseases' by Hulda Clark, PhD, ND and helped keep me functioning and active over the last 25 years. These procedures did not stop the damage caused by gluten so I have had a lot of healing to do but by understanding the underlying problem I am in much better health now than I was 4 years ago.
I have been criticized by the moderators and warned not to refer people to certain alternative websites and not to make diagnoses since I am not a qualified/licensed medical practitioner.
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Is Thiamine Deficiency the Beginning of Celiac Disease?
Mari replied to knitty kitty's topic in Coping with Celiac Disease
It is rather amazing to me that I was able to follow, in a general way, your reasoning in this scientific thesis. It is very good work on your part taking different research papers and tying the information together if not for a cure for celiac disease, the ability to decrease the symptoms of celiac disease and other autoimmune conditions. Now if you can... -
Hi Kelly, We have had at keast 2 discussions abour people with Celiacs moving into assisted living. . No easy solutens to the problems Celiacs face when they cannot eat the food served so they need to prepare their own meals or order gluten-free meals. You seem to be coping quite well. It is not clear to me whether you are suffering because you miss...
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Scott Adams reacted to a post in a topic:
Iies in medical record
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Thanks, jmartes, for answering the question. You believe you still have active Celiac Disease. Right? You wrote that you are WHEAT free. Are you also BARLEY free and RYE free?I am asking this because to have an active reaction you must be putting gluten into your body, There are a few other foods that may cause some autoantibody production. Ask KnittyKitty...
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Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems...
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Scott Adams reacted to a post in a topic:
Second chance
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hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente...
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Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
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RMJ reacted to a post in a topic:
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Scott Adams reacted to a post in a topic:
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Ijmartes71 I son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties...
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Leople with celiac disease have differebt levels of sensitivities to gluten. Some react to tiny amount of gluten in the environment, others.Others only react only to larger amounts as in their food, such as cross contamination. If you are strictly on a gluten-free diet you may already have figured out whether you are more or less sensitive to gluten. There...
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knitty kitty reacted to a post in a topic:
Related issues
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knitty kitty reacted to a post in a topic:
Related issues
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I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
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OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
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Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
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Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead...
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jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
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Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
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Hi again JMartes, Would you mind telling us some of your symptoms or why you need for your Dr to do more for you. What is your main concern about your health right now? We can give you some advice based on our own problems with Celiac Disease. It may be that the anger and frustration you are experiencing is doing more damage to your body than your Celiac...