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Kay DH

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kay DH

  1. Kay DH
    I don't think that most medical doctors know much about gluten, this includes GI doctors, and as such they dismiss symptoms. I've also found them too inclined to believe tests than to think about what symptoms may mean. My gluten intolerance started a year ago, after getting the flu. I did have minor symptoms before this, such as low D vitamins and thyroid...
  2. Kay DH
    It might be useful having a letter from your doctor regarding his diagnosis and symptoms, and talking with the teacher. When I get glutened, which is always cc from a "gluten free" source, my symptoms vary but a hard glutening results in brain fog. Effect is a lot like having a bad concussion, and it takes about a week for my cognitive abilities to return...
  3. Kay DH
    I have a breadmaker and make my gluten-free breads. Those that get stale or come out of the oven a bit deflated either become crumbs or croutons and reside in the freezer. If you wanted to try non-cornbread stuffing, then cubing and drying some of the gluten-free breads works well.
  4. Kay DH
    Interesting site. Thanks for the information.
  5. Kay DH
    If you decide on the endoscopy/biopsy, make sure your doctor is knowledgeable about celiac. You would need to be on the gluten challenge (also known as making yourself sick on gluten) for more than 3 weeks. That is +4 slices of white bread equivalent per day, not sourdough bread. My GI was sure I only needed to be on the gluten challenge for a week (he...
  6. Kay DH
    I went 55 years as a bread lover, and didn't develop the sensitivity to gluten until I got the flu a year ago. Two weeks later the GI, stiff joints, muscle aches, mood, and lethargy kicked in. Stress, viruses, bacteria, and other nasty things can trigger inflammatory responses such as celiac. Perhaps just overexposure can, too. I took my dinner to and...
  7. Kay DH
    Melting Pot in the Denver metro area also has gluten-free options. Haven't tried them since going gluten-free (11 months), but I do eat at Le Peep(s). These have gluten-free menus, baked goods, and dedicated grill/toaster/waffle irons. A waiter told me their regular waffle maker broke so all customers got the gluten-free waffles until it was replaced;...
  8. Kay DH
    I am very sensitive to gluten so am gluten-free. I even have reactions from labeled gluten-free foods that were "processed in a plant that also processed wheat.." I have no other food intolerances. I also am not sure what I have, largely because my tests have all been negative. I did not try the Enterolab test. My genetic test was positive for HLA-DQ...
  9. Kay DH
    I went gluten-free after getting the flu a year ago. I'm pretty sensitive to cc, so our house is gluten-free except for hubby's beer and (highly segregated) flour tortillas. My one concession to his previous gluten-full life is occasionally baking sourdough wheat bread (I cook a lot). It is a 3-day process using my (gluten-free flour, yogurt, yeast) starter...
  10. Kay DH
    Celiac is a grieving process, with all the anger, depression, and other stages. Your career has been blindsided, people's social lives are hit hard (not invited because friends didn't have gluten-free foods), some restaurant staff and most people barely understand what wheat is-- let alone gluten, even doctors know little about celiac and tend to dismiss...
  11. Kay DH
    Got back from a road trip yesterday. It's interesting how many small town eating places have nothing that I can eat. The grills didn't even have separate pans to fry/poach/boil eggs. Thank goodness for snacks. The problem was resolved on my original post; they are going to have gluten-free chili for me. It took about 3 phone calls and 10 emails back...
  12. Kay DH
    Perhaps consider that your being proactive is not just good for you, but is good training for the restaurant staff and maybe could prevent another celiac from getting sick in the future. If it is more difficult to voice your needs, than as another poster indicated, the dining cards work well (at least the staff are more likely to listen to you).
  13. Kay DH
    I went to a steak house about 6 months ago and told them I am very allergy to wheat, a protein in wheat, rye, barley... I should probably have asked for the manager when we arrived and told her, but I assumed the waiter would work. The salad arrived with Chinese noodles, and I sent it back. I believe the waiter just took the noodles off, rather than getting...
  14. Kay DH

    ARCHIVED Dna Test Advice

    Kay DH replied to ChristineSelhi's topic in Doctors

    I have a different issue. I have the HLA-DQ8 genetic marker, and oodles of symptoms that went away once I went gluten-free last fall. My celiac panel and endoscopy biopsy were negative for celiac, although the tests were flawed. Not all people diagnosed with celiac have HLA-DQ2 or DQ8; as the previous poster indicated, there are other probable genetic...
  15. Kay DH
    Regarding your "gluten free" associate. There are a number of gluten free beers out there, and they are pretty good. However, if the person was drinking regular beer then they were chugging gluten. When my symptoms started a year ago I was proactive and got the celiac panel blood test (negative after 2 months gluten-free) and the colonoscopy/endoscopy...
  16. Kay DH
    Thanks for the great replies. I talked with the manager today and he said he would talk with the chefs regarding food that I could eat. Hopefully the cooks know more about gluten than the manager or banquet organizer. If it doesn't work out, maybe we'll stay home and broil some lobsters. Always good to have backup plans.
  17. Kay DH
    I called a brew pub yesterday to determine IF I can eat their food at a scheduled holiday party (work). The person in charge of the event never heard of celiac but had heard of gluten. She just said, check our online menu for what you can eat. I replied that I can't eat anything on the menu unless the salad is safe or the grill area is cleaned first (no...
  18. Kay DH
    I went gluten-free 11 months ago, about a month after my symptoms started. My blood test and endoscopy biopsy were negative, but the celiac panel was several months after going gluten-free and the 1 biopsy was after a only week of being on gluten. They may have been false negative. I do have the HLA-DQ8 genetic marker, but the GI said that only gave me...
  19. Kay DH
    You could still be getting some cc, and either are reacting to it more or noticing it more. When I went off gluten last fall my GI problems only took about 3 days to resolve, and my brain fog about a week. I didn't know about cc then. I went completely off gluten in January, purged the house, read all labels, and such. Once I went completely off gluten...
  20. Kay DH
    I missed a couple of points (also I misread your post as Colorado Springs, sorry). As an adult, my experiences probably won't correlate to your child, but it usually takes me a week for my mood swings/depression to go away after a gluten hit. GI problems take 3-5 days. Dairy intolerance is commonly associated with celiac, at least until the GI tract heals...
  21. Kay DH
    I started the gluten-free diet about a year ago; my symptoms began after getting the flu last year. After I went gluten-free my tolerance for gluten dropped such that minor cross contamination (cc) at the crumb level causes GI and other symptoms. That said, are you excluding all gluten from the diet? I've gotten sick from labeled gluten-free foods that...
  22. Kay DH
    My GI and other problems started a year ago, a couple of weeks after getting somewhat minor flu (the trigger). I am surprised at how little doctors know about gluten intolerance, and how easily they dismiss it or assign symptoms to other causes. My blood tests were negative for celiac, perhaps because I was gluten free for a couple of months before the...
  23. Kay DH
    My GI problems started last September, a couple of weeks after getting the flu. I went gluten-free after a few weeks because of D, C, bloating, mood swings, brain fog, stiff joints, muscle aches, etc. My Celiac panel came back negative, probably because of my being gluten-free. I had a Celiac Panel 3 years ago because of a rash I've had for a few decades...
  24. Kay DH
    My doctors messed up my tests, so all were negative. The Celiac Panel was 2 months after going gluten-free. The GI only had me on the gluten challenge for 1 week before the endoscopy and only took one biopsy. So, I probably have celiac, but may never know because I am not going on the 3+ weeks on gluten needed for the tests to be redone. My genetic test...
  25. Kay DH
    I feel aches in my bones, mainly my feet, after being glutened. I have gotten glutened from gluten-free foods from bins. The risks include gluten getting in the bin from other sources, who knows what was in the bin before the gluten-free foods were, and also the binned food may have been prepared in a facility that also processes wheat or related nasty...
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