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Kay DH

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kay DH

  1. Kay DH
    At the Denver (Jeffco fairgrounds) gluten-free fair a few weeks ago, they said their hamburger and hotdog buns are almost ready for sale. They are working on packaging.
  2. Kay DH
    I've gotten glutened from labeled gluten-free hummus (processed in a plant that also processes wheat...). Your reaction could be from minor cc, or from continued detox from your gluten years. You don't mention if your being gluten-free is 2.5 months old, or if you have been gluten-free for a longer period of time. One thing I didn't realize once I went...
  3. Kay DH
    My gluten problems started last September, after getting the flu. I started the gluten-free diet because of stiff hands more than the D and other symptoms. GI problems, mood, and brain fog resolved in a few days, stiff joints in about a month,and the rashes in 6 months. I had the celiac panel blood test about 2 months after gluten-free, so the negative...
  4. Kay DH
    You can also search using hush puppies recipe "gluten free" . If you are into experimentation, you can also try your recipe with an egg white or a small amount of xanthan gum. Xanthan is nice replacement for the gluten-glue in wheat.
  5. Kay DH
    I recommend getting the Celiac Panel blood test, and make sure they test for the IgA and IgG antibodies because some people can have celiac but test negative because they are IgA deficient. I've had the symmetrical rashes for a few decades, mostly on the insides of my calves and back. It was never tested by doctors, so no diagnosis and no treatment beyond...
  6. Kay DH

    has not set their status

  7. Kay DH

    My health was pretty good until Sept. 09, usual degradation of body parts with my advancing age. Underachieving thyroid. Early Sept. I caught the flu and a few days later a very stressful event. A week or two later the GI and arthritis. I have quite a few symptoms of DH and Celiac, but all the tests diagnosed only minor reflux. HLA-DQ8 and HLA-B27 (reactive arthritis) positive.

  8. Kay DH
    Last Thursday I had what were supposed to be gluten-free tamales. They weren't. After 2 months gluten-free my reaction was mostly smelly loose BM the next morning, lethargy for a few days, and my rash came back. There were no bumps, just the itchy areas on the insides of my calves and on my back. I went gluten-free last fall after getting the flu and...
  9. Kay DH
    I modified a gluten-full fruit cobbler recipe to be gluten free. I like it better. If the fruit filling is very sweet, then delete the sugar from the topping. Fruit Cobbler Topping Fruit filling in 9x13 inch baking pan. 450 degree preheated oven. 2 cups Bob
  10. Kay DH
    I know nothing about my family history from my Dad's side. He died about 20 years ago from GI cancer and his Mom died about 50 years ago; I think he was her only child. Dad would not talk about his family. He left the family farm in Idaho to join the Army Air Corp for WW II, and his father never forgave or spoke with him again. I have determined that if...
  11. Kay DH
    I forgot to mention that I haven't tried that product. We usually make pizza from Red Mill or Debys mix, or from scratch. A store-bought frozen or pre-baked crust might not rise as much, but the initial cooking should make it more "crusty" and less likely to get soggy from the fillings.
  12. Kay DH
    We cook the unfilled crust for 8-9 minutes at about 450 F and on a pizza stone. Having the crust on parchment and a flat cookie or other sheet makes transfers easier. The heat allows the air bubbles in the crust to expand without the crushing weight of lots of non-gluten yummies. I sometimes add a thin coat of oil to the pizza crust if the toppings are...
  13. Kay DH
    My GI only had me on the gluten challenge for 1 week before the colonoscopy/endoscopy. He was quite sure I did not have Celiac but instead had diverticulosis and said I only needed to be on the challenge for a week for a positive celiac test. He indicated I was too healthy for Celiac. Needless to say, he was wrong. My multiple colonoscopy biopsies were...
  14. Kay DH
    I also would recommend the skin biopsy before the endoscopy. Not all DH shows up as GI damage. The skin biopsy is less invasive, but make sure you find a doctor that knows how to do it correctly. Problems with gluten extend beyond GI and skin issues. I had problems with mood swings, depression, and brain fog that started going away a few days after going...
  15. Kay DH

    ARCHIVED Can Dh Be Mild?

    Kay DH replied to T.H.'s topic in Dermatitis Herpetiformis

    I don't know if I have DH. Probably. My symptoms for DH look (and itch) classic, but the areas are small. Lime-sized ovals on the insides of my calves with a small area of raised red "water blisters", smaller on each side of my back, sometimes on my forearms. Perhaps if they had been larger I would have been diagnosed beyond "use hydrocortisone." It started...
  16. Kay DH

    ARCHIVED Upset

    Kay DH replied to KikiUSA's topic in Coping with Celiac Disease

    The Dairy Queen chocolate or vanilla shakes are generally safe, too. I know the feeling of not being included. It takes time to adjust to all the aspects of gluten-free. Sometimes a few of my coworkers see something gluten-free in the store and bring it to me at work, or ask what gluten-free means. It is good to hug these experiences close to your heart...
  17. Kay DH
    If you take your son for an endoscopy/biopsy make sure the GI takes multiple pictures for you to see and multiple biopsies. Especially with early Celiac the damage to villi tends to be spotty. Also ask if there would be damage to the villi if the celiac was caught so early. That you have the family history helps a lot; I did not know my family history...
  18. Kay DH
    I also don't use their products for the same reason. I have gotten sick from other labeled gluten-free products that had "processed in a plant that also processes wheat..." in small print. One of these was for hummus; the company replied to my email about gluten content by saying the equipment is cleaned before gluten-free ingredients are processed. Apparently...
  19. Kay DH
    Muscle weakness, at least if it is associated with peripheral neuropathy, is common with gluten intolerance. Nerves, particularly in your extremities can be affected with tingling, muscle weakness, and sometimes pain. By the way, I posted today my experiences with doctors and trying to get tested for Celiac under "Top Five Reasons to Get a New Doctor" ...
  20. Kay DH
    If it is clear from your first meeting with a doctor that he is trying to prove you wrong, run, and I don
  21. Kay DH
    Glucose is made from conversion of plant starches, such as in corn or wheat, to the shorter sugar molecules. It would probably depend on the purity of the glucose and if any gluten proteins got into the mix. So the question might be, is glucose always safe to eat or could the impurities cause problems? Medical-grade glucose should be high purity and therefore...
  22. Kay DH
    I did not go off gluten last fall because of my GI symptoms. I went off it because I suddenly developed very stiff joints in my hands, enough that I barely noticed my GI, brain fog, lethargy, mood, and other symptoms. I went to a rheumatologist, and all he said was to take Alleve and if it gets worse then..., he then went into detail on the cardiac ablation...
  23. Kay DH
    It amazes me what doctors don't know. I had one tell me "Celiac seems to run in families." She said they really didn't study it in med school. I went gluten-free last October after GI symptoms kicked in following the flu. I had probable DH for decades, but never diagnosed because it wasn't bad enough, or the doctors weren't good enough. One think that...
  24. Kay DH
    If the tour does let you bring/cook your own pasta, then make sure it is in a clean pot with new water. Make sure that any tour veggies are not cooked in pasta water I really like the quinoa-corn pasta, but the brown rice pasta is good, too. If you brought the pasta already cooked, then it would keep a few days in a cooler. Check all the ingredients on...
  25. Kay DH
    Travel is hard when a person is gluten intolerant. I don't know if you will be camping or staying in towns, but if the latter you might want to contact some of the Chamber of Commerces for gluten free dining. Even the tour salads can be tricky because of cc, even if there are no croutons. In regards to what you can take, boiled eggs are great, Lara Bars...
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