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jebby

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Everything posted by jebby

  1. jebby
    Hi, I have 3 blog entries which are stuck in "draft" mode, I have been unable to post either of them. I am trying to figure out if it is a problem with my profile only v. a problem for everyone. Thanks! Jess
  2. jebby

    Is This Thing Working?

    jebby commented on kareng's blog entry in kareng's Blog

    I have been unable to post my last 2 blog entries and they are stuck in draft form. Does anyone know if/when the problem has been fixed?
  3. jebby
    Thanks BitterGrad for sharing your experience. I hope that in the (not to far) future that Fasano's diet becomes the standard of care for newly diagnosed Celiacs. Had I known of this back when I was diagnosed, I would also have stuck with whole foods for the 1st 3-6 months. Jess
  4. jebby
    If you have Celiac Disease, it is important that you know a bit about your thyroid gland, as you are at a high risk of autoimmune thyroid disease. Experts estimate that between 8 and 12% of people with Celiac Disease have, or will eventually develop, problems with their thyroid gland. Conversely, between 3 and 5% of people with autoimmune thyroid disease...
  5. jebby
    Hi archaeo, That is awesome to hear that you have been able to build up your mileage with patience and time. I have been running a lot because I am training for my first marathon in May (in Cleveland). I ran a half marathon in NYC last weekend which was great. I have stuck with plain water for hydration for most runs, before long, long runs will have some...
  6. jebby
    Hi Kerrylad, My pins and needles/numbness has totally resolved since taking all gluten out of my home (no more accidental cross contamination). The last time I had it happen was in January after getting gluten cross contamination at a restaurant. Do you have celiac disease or non celiac gluten sensitivity? Have you seen a doctor? If you are linking the pins...
  7. jebby
    Hi, A lot of us do have both Celiac Disease and I.B.S., so it is sometimes difficult to sort things out. I.B.S. is associated with multiple food intolerances, especially those of us with what is now called "wheat sensitive" I.B.S. Hopefully your food journal will help you to sort things out. I've also been taking a probiotic, which has helped a ton. Best...
  8. jebby
    Your pediatrician is dead wrong. I am also a pediatrician. Untreated celiac disease is one of the most common causes of short stature. Can you get a new doctor?
  9. jebby
    I just bought these for the first time, they are fabulous!! Definitely worth ordering online if you can't find them locally!
  10. jebby
    Hi Diana, The "gold standard" would be a repeat biopsy, but I think that for a lot of us who decide to go this route, we would expect to feel a lot better and experience much less cross contamination. Jess
  11. jebby
    One of my favorite Celiac Disease-related pages on Facebook is that of the University of Chicago’s Celiac Disease Center. One of the first “tidbits” that I read on this page, after discovering it last fall, was the following statement: “Women who have experienced persistent miscarriages or infertility without a known medical cause should be tested for cel...
  12. jebby
    Hi Maria, Thanks so much for reading and commenting. I am glad that you are feeling better on the "grandma's diet." It truly makes so much sense for us!
  13. jebby
    Hi, I am in the same boat as you. I went almost 33 years before being diagnosed with Celiac Disease and we have a lot in common (I have 4 kids too). I put a few of my blog posts from my "real" blog on here (The Patient Celiac) if you'd like to connect. I very recently wrote about both the after effects of having a delay in diagnosis as well as infertility...
  14. jebby
    Schar makes a bite sized cheese cracker that my kids love, it is the closest to Cheez-its and Goldfish crackers that I've found. I just paid $2.50/bag for them at my local market.
  15. jebby
    No, but I got very, very ill from one of their tomato sauces last fall which was marked "no gluten ingredients." I contacted Trader Joe's after I was glutened and found out that the sauce was made on shared equipment with wheat containing products but did not have their "shared equipment with wheat" warning on in. The best way to find out would be to call...
  16. jebby
    As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “...
  17. jebby
    I am so glad to hear that your daughter is feeling better. I am really trying to get the word out about this condition because I feel that so many people are needlessly suffering from it (including some of my own family members). Message me if you are interested in sharing your daughter's story on my blog, I think it would help a lot of people. Jess
  18. jebby
    Hi Lauren, Thanks for reading. I think that you should post your research information on the research page of the forum because I do not think that my blog has very much traffic. I will email you to participate. Best wishes! Jess
  19. jebby
    I just went through a huge work up for MS last fall and my symptoms did end up being due to gluten. That being said, if there are 2 or more lesions in the brain and/or along the spinal cord, then she likely has MS as well. There is a high link between celiac disease and MS and a lot of people have both conditions, just like other autoimmune conditions....
  20. jebby
    I take Florajen 3 and it is gluten free.
  21. jebby

    Trying to figure out if I should keep blogging or not!

    1. tinpins

      tinpins

      Thank you for the time you spend researching and sharing.

      You are giving us a gift beyond measure!

    2. jebby

      jebby

      Thank you sweet Tin Pins. I am just seeing this now, 4 months after you wrote it!

  22. jebby
    Best of luck on your gluten free journey! It can be challenging all the time but sure beats being sick! I wish that I would have made our household GF when I was diagnosed as I am pretty sure that I would not have developed the neurologic complications. One thing that I did not mention in my post is that I am still allowing my kids to eat gluten outside of...
  23. jebby
    I just re-read your post. I was diagnosed based on family hx, symptoms, and sky high celiac antibodies (no biopsy). When I developed neurological symptoms I had negative celiac antibodies because of being gluten-free. I was offered an endoscopy and biopsy but I declined because I knew that my body would not be able to handle a gluten challenge (plus I couldn...
  24. jebby
    Congratulations on your pregnancy! It sounds like you have your hands full. I am a mom of 4 small ones as well. I agree with the others to try to keep all of the gluten filled food out of the house. My little kids whined and complained a ton when our household went gluten-free, I can't even keep track of how many times they rejected my gluten-free meals ...
  25. jebby
    I am looking into this (a link between Celiac Disease and mast cell disorders) right now. I have both Celiac Disease and a pretty severe sulfite allergy/intolerance which gets worse when I am exposed to gluten. There are a bunch of us on a sulfite intolerance forum who also have issues with gluten (some with Celiac Disease, some with non celiac gluten sensitivity...
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