SaraKat

Can you have your husband talk to her? I spoke with my MIL about the Thanksgiving dinner, but I wasn't forceful about it, but my husband spoke to on the phone a few days later her when I was standing there and was very forceful and questioned everything and made her aware of how strict she needs to be. Tgiving was fine.

I am in this situation too- we are going to my MIL's for dinner and she told my husband that the turkey is gluten-free and her stuffing is made with rice, not bread (I guess it's not really stuffing then, haha) and all the other ingredients in it are gluten-free. I was going to bring my own meal, but I am going to eat her things this time to see what happens. This is my first Thanksgiving as a celiac.

I have been wearing Benefit and a couple by Estee Lauder. What are your faves that are gluten-free?

Does anyone know if the white chocolate mocha is gluten-free? I love that one.

I think a constant period would warrant a trip to the GYN. I noticed about 16 months ago my periods were acting up- like it would come early and last longer. I've always been super regular too so this was very alarming to me. I was dx'd with celiac 3 months ago and I am wondering if the weird periods were part of celiac. My GYN said no, but I find it coincidental.

Have you had a pelvic U/S?

I get a weird nauseous/gagging feeling sometimes and I attribute it to the celiac.

does the Caramel Brul

I think I am going out for sushi this weekend. I know a lot of sushi is gluten-free- when you go out for it do you tell them you are celiac or have an allergy or just order what you know is safe?

What are some good rolls to order? What should I be aware of with sushi (I know no tempura and soy sauce, what else)? This is my first time going out for sushi since being dx'd.

Thanks!

I was happy to learn their Chili was gluten-free, that was one thing I used to get on the run a lot. I guess you could just try it, maybe some others will answer your post to see if anyone else had issues.

I was on vacation last week and we went out to breakfast a lot. They told me that they would cook the omelet in a clean pan and I got a side of fruit instead of the normal sausage/hash browns/etc.

So, I had quite a few different types of omelets and healthy fruit. It was pretty easy.

I have had their chili and frosty's a few times since being dx'd 3 months ago and didn't have any issues.

My blood results were worse than yours and I still opted for the endoscopy- I wanted to see how severe the damage was and to see if anything else was going on. The endoscopy was not bad at all and I am the type that used to faint from getting blood drawn. You don't feel anything- you just wake up in a recovery room. I was in at 6:30 and out driving home (by my husband) at 8:45. Good luck!

I had colic as a baby and just got dx'd with celiac (at 35). I wonder if there is a connection?

I agree with Sandsurfgirl- you can't let the disease destroy your life. I've only been dx'd for 3 months and yeah, it is depressing, but there are ways to still lead a normal social life. I was on vacation all last week and ate out every night and had no issues. 3 of the 7 places had a dedicated gluten-free menu, the other places didn't and the servers were all very accommodating.

Sit down dinners at a family/friend's house I think is probably the going to be the most difficult, but I did go to a dinner party Saturday and my friend ordered takeout and it was all gluten-free, I was planning to bring my own food, but she wanted to just have the entire meal be gluten-free. The only thing I couldn't eat was the cake for dessert, but she also served fruit, so it worked out good! I don't need the extra calories anyway! LOL

The one thing I miss at parties is the cheese/crackers. What I do is bring a ziplock bag of rice crackers and glutino pretzels and just eat the cheese that is served. I also eat a lot of the veggies. I do miss the really good apps that are passed around at a lot of parties, but honestly those are all so fattening and have so many calories it is better that I can't eat them. At least I can still eat shrimp cocktail!

Cross contamination is real, but if you live your life in fear of it, this will destroy your social life.

the last concert I went to I brought those rice crackers/Glutino pretzels and some cheddar cheese. I had some shrimp cocktail too. Good luck!

I get their Pikes blend every morning and have never had a problem. I am too scared to try any of the fancy drinks though.

It took me a year to get diagnosed after having weird symptoms and I thought that was long. I don't know why they don't test everyone for celiac- or at least people that have come back a couple times with no diagnosis.

Dior- how did you find out about the tapioca thing? I am wondering if I should get additional food testing done.

JulandJo- This is definitely reassuring, I have seriously had the same thoughts!! I said to my husband- how can I be in this much pain and not be dead yet. That is how bad it is!! I even went to an oncologist before the celiac diagnosis, I thought it was cancer.

Mine is 95% of the time on the left side. In the last 12 months I have had a CT scan, chest XRAY, AB ultrasound, and an endoscopy. All they found was celiac, so I am guessing it is the celiac, but it is scary how bad the pain is.

I was beginning to think something with my pancreas, but all other tests were normal, so I am led to think it is a celiac thing.

Thanks!

I say I have celiac disease. I have noticed that no matter what I say people have no clue about it anyway. I still have to do further explaining. No one I talk to knows what exactly gluten is either- some think it is rice, some bread, some people say I can still eat white bread, just not wheat bread.

I wish more people knew what it was, I don't mind educating my friends/families, but the restaurant thing annoys me. I have yet to go somewhere unless they have a specific gluten-free menu that has an idea what it is without further explanation.

I wrote my first letter to a manager at a restaurant about the cluelessness of the waitstaff there. She wrote me back and told me she was going to do a training on what celiac/gluten is at their next staff meeting. So, that was good.

I have the terrible rib cage pain too- mainly on the left side. It started in Oct 2009 and I had so many tests done and finally in August 2010 I was dx'd with celiac after the rheumatoligst did a random blood test. I have been gluten-free (I have had some mistakes) since 9/1/10 and the pain seemed to be going away, but it has been back for the past 3 weeks really bad again. I am ready to go back to the Dr.

I was on the Stairmaster the other night and the pain was so bad when I was breathing out I had to get off. It is like right at the lower part of the left rib cage and then sometimes wraps around the back. It hurts at night when I lay on my stomach- it feels like something is being pushed in. It is a very hard feeling to describe.

For me, I don't have malabsorption yet- aside from anemia, all my other levels were normal- is there anything else I should have checked? I had calcium, potassium, B12, D. Maybe I am missing something.

I have also been experiencing some cramp like feelings under the left breast lately too. When it happens it is so painful it almost takes my breath away. Anyone get that? It usually lasts for 30 seconds then goes away.

I saw them in Wegman's this weekend also.

Well, my main symptom is rib bone pain on the left side. That is why I kept going back to different Dr's and I finally got a celiac dx in August.

I have been gluten-free for a couple months and it was getting better, but lately it has been back. I am not sure if I accidentally got glutened or if it is not related to the celiac.

1. Female

2. Age: 35

3. How long ago were you diagnosed with celiac disease? 2 months ago

4. Does anyone in your family have celiac disease? Not that I know of, some of them are getting tested and so far they are all negative.

5. How severe is your celiac disease? I think it is silent, except for some joint pain in my ribs and anemia. I have no gut issues.

6. Is it difficult to eat out at restaurants or anywhere outside of your home? Yes, because I have no clue if I am being glutened.

7. Do you believe that there should be more to be done to make this disease more aware to the public? Yes

8. How has this disease impacted your life? I just have been eating in more.

9. What do you think would make celiac disease easier to deal with? If I could tell for sure when I have been accidentally glutened.

I am 35 and was just diagnosed 2 months ago! I was feeling a little off for the last year or so and after many tests celiac came back positive. I am not sure how long it has been active in me. I was under a bit of stress a couple years ago, so maybe that set it off. No idea.

What were your symptoms?

My Dr told me it is common for people not to be dx'd till they are in their 50's.