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KAthyB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KAthyB

  1. Boar's Head and Deitz and Watson turkey and cheeses are all gluten-free
  2. The Don Pancho Tortillas are pretty good and if you click the link on the gluten free food bullet on the homepage of celiac.com it will link you to the Gluten Free Mall and they carry them and ship them. A good lunch idea is lightly toast frozen waffles, let cool then spread with peanut butter and fluff or jelly. Trader Joe's waffles taste like EGGO's...
  3. I spoke with Glaxo Smith Kline about three months ago and was told Tums are not gluten free....this was after the GI suggested my daughter use them for her reflux...Rolaids are gluten free! Kathy
  4. We ate at PF Changs for the first time this weekend and my daughter had the Cantonese Chow Fun with chicken and the wide noodles. I trusted that if it was on the gluten-free menu that it along with the lettuce wraps were safe. The manager came to out table and told us that the lettuce wraps were gluten-free but not all of the sauces were. He brought out a...
  5. My 19 yr old celiac daughter was up to 40mg nexium 2x daily and xtra strength pepcid 2x daily and a 3rd nexium if needed after a ph probe on meds showed that the usual dose was not blocking enough of the acid. She decided on her own to take a "drug holiday"....24 hours off meds...she learned that these "holidays" are often helpful in one of her nursing...
  6. When my daughter was first diagnosed in March of 2003 I was constantly on the message boards and saw the warning that Corn Pops which were always gluten-free were changing the ingredients. I went out and bought a box from the last gluten-free batch. Genuardi's/Safeway make a corn nuggets cereal that is very much like the corn pops and is gluten-free. Sorry...
  7. My daughter receives the low gluten host once a week and has been for one year. Her blood work is done every 3 months and since she went gluten-free her anti-bodies are in the normal range. The low gluten host is the only exception she makes and it is either truly a harmless trace of gluten or God is watching over her. This is a personal decision and it is...
  8. KAthyB

    ARCHIVED Need Ped Gi Dr In Pa

    There are sveral doctors at Children's Hospital of Philadelphia. My daughter was dx'd by Dr. Barbara Haber. Dr Petar Mamula is also a good one and has celiac disease himslef and Dr. Ritu Verma has 2 children with celiac and runs a children's support group. Appointments can be made at 215-590-3630 Good Luck, KathyB
  9. Hi..... Breakfast......bacon, egg and cheese sandwich on Trader Joe's gluten-free waffles Snack.........Strawberries dipped in gluten-free vanilla yogurt Lunch......grilled hot dog with cheese wrapped in a corn tortilla with grapes and apple slices Snack.......Mr. Ritts bakery or homemade cookies with an Ensure shake (add a scoop of ice cream) Dinner...
  10. Hi! My daughter is at Gwynedd-Mercy College in Montgomery County, PA. The chef has offered to cook her a gluten-free meal every night and have it on a covered tray waiting for her. He learned all about the diet but sadly, my daughter is stubborn and just reheats the foods I send her. She is only about 45 minutes from home so I stock her up on the weekends...
  11. Hi...i just tried the Mana from Anna mix and it is truly good....even the non-celiacs in my family ate it........it tastes like one of the Panera Breads....i got on the net from a site called gluten evolution. Kathy
  12. i know this is tough....my daughter is 18 and recently dx'd...she absolutely freaks when others don't eat gluten because of her....but she never refuses and invitation to dinner....she says she eats to live not lives to eat....and does not want to miss out on good time because of gluten...she either eats before and orders something safe like a plain salad...
  13. Hi all, I am reading the swanson 32 0z box .....i don't see the gluten...i talked to swanson sevral months ago and they said all their ready to serve sizes are gluten-free...what ingredient contains the gluten.....Kathy
  14. I use vanilla pudding in my choc chip recipe and all the kids in my daughters dorm love them..they asked for the recipe....wait till their moms see that it uses gluten-free flour...it truly tastes like a toll house 2 1/4 cup of Bette's featherlight rice flour mix, 1 tsp. baking soda, 1 cup of soft butter, 1/4 cup white sugar, 3/4 cup light brown sugar, ...
  15. Hello all....my celiac daughter was plagued by insomnia the first two weeks away at college and melatonin did the trick...just one (i think 3mg) tablet....from a local drug store and 20 minutes later zzzzzzzzzzzzz! She compares it to the feeling she has going under sedation (too many med. tests). She also suffers severe headaches and lo and behold her neuro...
  16. Hi Deanna, My daughter's reflux is awful after gluten-free 6 mos. with a flaming positive ph probe. She takes 40 mg Neium 2x daily and Pepcid 20 mg 2x daily and weighs in at 103. At this quadruple dose of reflux meds, today the doctor said she could also use tums. No matter what she eats, even ice cream, she has heartburn and buprs like a turck driver. She...
  17. Hi Missy, You are a carbon copy of my 18 yr.old celiac daughter. GI celiac symptoms are slightly improved by the diet but reflux, joint and muscle pain and vision are a problem. Vision problems began with a bout of conjunctivitis and she is awaiting her glasses so she can drive at night. She had 20/20 prior to the infection. She saw a Rheumatologist this...
  18. My child has bleeding from a rectal skin tag. The combination of diarhea and constipation associated with celiac disease causes this. The skin tag is what convinced the GI to run the tests for celiac disease. Since your child is not on the diet yet, warm soaks in the tub and using mositened wipes in the bathroom can help. Kathy
  19. KAthyB

    ARCHIVED Safe Restaurants

    I found a Carraba's gluten-free menu online and brought it with me to the restaurant. Kathy
  20. I'm from Philly and you can get a cheesteak hold the bread or have it served over gluten-free fries. Kathy
  21. KAthyB

    ARCHIVED Fast Food

    I called Wendy's last week about their fries and was told that they are definitely gluten free but are not listed on their gluten-free list since some Wendy's do not use a dedicated fryer. My daughter ate them last week after checking that they used a dedicated fryer but still did not feel well afterward. I'm not sure if fried food upset her reflux or if...
  22. Hi Amy, Hang in there! I know you are overwhelmed right now but when you and the baby can handle it go for further testing. As a mom of a recently diagnosed 18 year old who was starving to death before dx'd I think the only way to justify the demands of a gluten-free life is testing. Babies don't even know they are biopsied and I know you don't want him to...
  23. Hi Heather, I'm mom to an 18 yr old daughter dx'd in Feb 04. We are from the Philly area and she will be attending Gwynedd-Mercy college in Bluebell. They have made her go through the ADA channels and are making some special exceptions for her diet. Just want to make sure that you know your school should be able to help you out by ordering gluten-free foods...
  24. KAthyB

    ARCHIVED Newbie

    If you do without long enough you may be more tolerant of the new taste and texture of the gluten-free products. I did this with my daughter who refused all the gluten-free substitutes and stuck to meat, fruit, veges and dairy and after 3 months she is coming around and trying breads and other baked goods. I get what you mean about the "health food" thing...
  25. KAthyB

    ARCHIVED Fragile

    I definitely see a link between moodiness and anxiety in my celiac teen and potassium. She has had trouble maintaining electroltyes for years and just recently was diagnosed celiac. Along with moodiness she gets terrible leg pains. I am not sure if she has trouble absorbing the potassium because of the celiac disease but if I sneak her some exta OJ, cantalope...
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