krystynycole

Have you tested for other intolerances?

We are. First month out. Thought I was at first because I was so nauseous all day. But nope...we hold out til next month!

Good luck for you! Hope you guys are pregnant!

Veggies and hummus, corn tortilla chips with salsa ( love the mango peach one) or guacamole. I have heard the chicken sausages are good ( & say gluten-free).

Sounds good to me. I'll be there!

The sausages are great! I eat them all the time!!

You could add pepperoni to the cheese and cracker plate.

Black bean salsa and chips

Jello with cool whip or with fruit in it

I don't think I would risk it...doesn't sound right to me.

Hmm, I know a few people with Autistic children (as you do when you start going through the process) and all the mothers are normal or below average weight wise. I was very thin when pregnant as was my SIL. I did read somewhere that twins have a 30 times higher rate of Autism than singletons - which is interesting.

I thought the same thing. My sister is very thin!

My family was always simple and traditional. However, my husband's family had a cool tradition at their church. Being Protestant we celebrate Easter Sunday. Well his church would save the tree from Christmas, trim off the branches and put it in the shape of a cross with mesh wiring around it. Everyone would bring flowers and place it on the cross through the mesh wiring. So the cross goes from being a somber reminder of Jesus' death on Good Friday and becomes a beautiful flowered cross symbolizing his resurrection and life on Sunday.

I think in the USA it's usually a corn product unless it states wheat on it. It should say if it is wheat either right after it lists MFS or the very least wheat should be listed in the allergy info at the bottom.

I think there may be a country to country thing here, you can't just diagnose autism here, you have go to a number of different specialists here, its actually quite a long and tedious process. But still - at the end of the day, special Ed teacher is not the same as a specialist, and if going though this process has taught me anything then yes - ASD is on a scale, no to people are alike, they all have strengths and weaknesses just like anyone else. It can be mild or severe and every shade in between. And with early intervention - a child who was diagnosed with quite bad ASD, given the right services can be almost completely normal when they are older. So that whole Scoffing over kids with ASD etc, just proves to me that lucky -doesn't know anything at all about ASD.

Having said that - there are of course misdiagnoses, just as there are with everything in life. Are you guys honestly saying that you expect 100% diagnosis rate? Because science just isn't there yet.

From my experience when I walked through the process with my sister last summer in the USA, we only went to one neurologist and got the diagnosis. However, I think that because there are so many different specialists who can diagnosis, there is no way they can all share the same views and be kept up to date on the changes and new information. I have various students who have a diagnosis and they all have their diagnosis from different types of doctors: psychiatrist, psychologist, or neurologist. If doctors GI docs can't get celiac right, how can all these different doctors keep ASD straight?!

Just my opinion...

I use the packet from regular mac and cheese all the time time without a problem because I don't care for Amy's noodles. I am also super sensitive and never have any problems just because the outside of the packet touches the noodles.

I am staying gluten-free for me and for the first time in YEARS feeling better! Thank goodness I found this site and forum to get some support. Thank you all so much! From what I have been reading on here I am sure I have the disease and am pretty sure my blood test was negative because it is advanced. I don't think I need an invasive biopsy to figure that out.

I didn't know until after the fact I had to be eating gluten (bad doctor) so of course mine came back negative. Oh Well I'm not going back to get retested. I've been gluten free for a year and a half and am feeling awesome and that's all that matters!

First, Welcome! It will get easier as you go on, I promise

I used the mac and cheese packet from kraft all the time...a simple indulgence I have

Have you checked your pots and pans? Gluten can get stuck everywhere! It can hide in the baking, your pot, and your colander you used. The colander/strainer is a very hard thing to completely clean. Many people buy all new pots, pans, spatulas, etc...

This is kind of gross & I have no actual scientific basis...its just a gross thought. Is is possible that there was some gluten from the old gluteny days stuck in the teeth and covered in that stuff they scrape off? the first time I went, I felt glutened all day after. But not any of the times since.

Yuck!

That actually makes a lot of sense! Especially for those who don't floss well or often.

Don't worry about a doctor...I spent 7 years trying to convince there was something there...but as long as you feel better, what difference does it make? They don't need to give a prescription for you to eat gluten free...eat gluten-free for yourself, not the doctors!

I take Zegrid daily with no problems. I take a higher dose so it's prescription, but over they sell it over the counter now too. This will also help heal any of the damage caused by the heartburn.

I don't know if they will block this link, but coupons dot com has a $1 off Udi's coupon!

Open Original Shared Link

I've heard subway has been trying that for a year now and is stale with progress, but we can hope right!

However, I have good experiences with salads at subway. I tell them about the gluten issue and they change there gloves and wash their cutting utensils. I've never had a problem at the one by me, but I think subways are a case by case basis.

It is my opinion that the label only works because of the way our culture perceives differences. If an entire school district changed the way their kids viewed geeks/nerds or kids with LD's and just allowed the child to be him/herself giving assistance when required, things might be different... Labeling is "playing the game." Of course playing the game is helpful for those IN the game.

I, myself, have various learning disabilities which were not identified until I was halfway through high school. I know full well the difficulties of facing school without any understanding from peers and teachers

It was a trick I used in "normal" gluten baking too.

People tend not to get better with the "wrong diagnosis". Just think how well celiacs recover with the IBS diagnosis. The diagnosis, the label, is important to the treatment, and it is important to let not just the sufferer himself, but others, know that this is something specific, a known quantity, with a known approach, that can be handled in a certain way.

Exactly! You said it much better than me

We, that are healing and on a gluten-free diet, may not seem like we have a diagnosis until we stray from our diet/treatment! Those with autism are the same...their treatment helps them seem more typically developing than they would without the treatment!

you can also use apple sauce for the oil...moister and healthier!

Thought I'd share a coupon for lara bars..$1.00 off 4 bars.

I don't know if they will block it, but it's at Open Original Shared Link

My wheat-eating friends tried some cupcakes I made from the Betty Crocker gluten-free devil's food mix at a party. They said they were a touch dryer than wheat but that the flavor was good and all the cupcakes disappeared.

You do have to watch them...I usually pull them out earlier for that.

While I know King Arthur is better, Betty Crocker has a cake mix easily available in most stores around me. I know there is some debate over it on here and it's a personal taste thing. However, I like it because I can find it many stores easily and adapt for muffins. I like there chocolate cake, vanilla cake, and brownie mix...to me they compare to other gluten box cake mixes you would find in the store. If you want it to taste like you made it from scratch them get King Arthur.

Sometimes I wonder if some of these 'diagnosis' that they are labeling children with are really disabilities at all. There is no doubt that those with the most serious forms of autism need to be given all the help possible to achieve a more normal and productive life. But autism has many spectrums and some of the more mild forms, like Aspergers, produce adults that are very productive and very intelligent and high achievers. They may lack a bit in social areas, have a bit more difficulty making friends and would have worn the label of shy nerd in past years. People have differences and that isn't always something that needs a label or intervention. I have to wonder how many of our past scientists and inventor etc. would have been labeled in the past. And the impact those labels and interventions would have had on their discoveries.

While I'm sure there are some mis-diagnosis', but there is for every disorder/disease. I do not believe that this is the reason for such high numbers though.

With the label, they are afforded more benefits from their insurance. For example, my nephew has autism and is very high functioning, with a mild form. He does not have an IEP or 504 plan at school and most people would probably think he just a little goofy, obsessive or nerdy. However, because of this diagnosis he was able to be afforded occupational therapy paid for by insurance and was able to find ways to cope in these social areas.

What may not seem like a 'need' for an intervention to the outside world really bothers people with autism. My nephew is able to go and do things, but often got VERY quiet during certain noises and displayed anxiety. While he appeared fine and just a little quirky, an OT was able to help him work out strategies to help him during these situations so he can enjoy them without anxiety. He was not able to play on team hockey until he met his OT because of this...he only played with his dad in the living room....just because he was quirky with sounds so he would loose focus for a few seconds and in hockey every second counts! He also has issues with food...again he was able to attend a food group through OT. Before the food group, his mom was worried about what on earth she could send him for a school lunch because he was good for most of the day, but refused to eat a lot of different foods. How do you transport non-typically school lunch foods? He did fine the rest of the day. No one new he had autism except for those who saw him at lunch.

Another student of mine got straight A's and was different socially. However, his diagnosis was able to get him insurance paid group with other jr. high students with other Aspies so they could talk out their frustrations they came across socially together with the guidance of a social worker. The social worker took much of what they talked about and put together rules every so often that the kids could take with them or review before they left the house for a particular event. You may have thought this kid was pretty good coping on his own, but it was only because a social worker had taken the time to write out rules for him to review before he left the house. Without the reminder he is a totally different kid.

Early intervention is also another tool that has allowed many of the kids who just look quirky be able to successful. Because they were taught VERY young how to cope, they have been able to have a head start. They are now able to grow and "fit in" easier because there were interventions very early for the child. While they might not look like they need a label, does not mean that they need it or once had much severe signs/symptoms.

Prevalence and incidence rates are two different things.

There are just to many factors at play right now to be saying we have any "answers". All we do know that there is a define genetic component.

Most of the current data is skewed in some way. You have to take into account diagnosis methods (which differ worldwide), who is doing the diagnosis's (some countries limit to psychiatrists, others allow psychologists) , those who have been diagnosed later in life since the said definitions were not available then (likely most of the older generations in HFA range before 1980), things like urban vs. rural likelihood of DX, ditto that with terms of things like class, race, gender and socio economic position. You also have about 50% of the DX now being made that are in the HFA / Aspie /PDD-NOS category.

In many ways autism is like celiac disease in the way that while we have some data, we certainly do not have all of it and the data we have is still skewed to some extent. I really do think it is too early to be drawing conclusions yet. Give it 20 years and at least then we will have more reliable data.

Definitely agree on the diagnosis methods!! It definitive has had a great affect on the increase.

Many different types of doctors can diagnosis Autism/HFA/Aspie/PDD-NOS which leads to a variance in thoughts on what the disorder actually looks like. Some people are diagnosed by a regular family practice doctor, others by psychologists, others by a neurologist, others by predication, others by school teams, etc...With some many people diagnosing autism with really a lack of info for so many years it's no wonder that now that we are learning more, they are all starting to be on the same page which leads to more consistent diagnosis' which leads to a high rate of that diagnosis. I read about so many people going to one type of doctor--gastro-- and getting so many different answers for the same disease (celiac)...just think how many more different diagnosis' there are when there are so many more diagnosing it!