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jiggles

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Latest Celiac Disease News & Research:

Everything posted by jiggles

  1. jiggles
    Hi nonnarae Have you cut out oats and dairy whilst you are still healing , as they can make you feel awful, just like being glutened as lots of new coeliacs can't really digest them until they have healed more ,
  2. jiggles
    Hello Tokyo , we all want to help you , it's not right that you should be suffering like this , Does this surgeon have an email address ? if we can email him too and ask him to help on your behalf as your suffering so much , he should not be able to just brush this off anymore , Desperate times call for desperate measures , Please let us try...
  3. jiggles
    Hi Tokyo , I don't doubt for a minute that you are reacting to something and you know your own body best , But you have only been gluten free for around five months is that right ? Just wondering how are you are managing to look after yourself whilst you are feeling so poorly ? what are you eating and drinking ? You have suffered 24.5 years...
  4. jiggles
    Hi Firstimemama2014 , Nope I couldn't bring myself to watch the video , yes fran it does look rather shocking , I am hoping I don't accidentally press the play button , it looks way too graphic for me , But just looking at the the photo , it does look like a rather extreme case Jiggles x
  5. jiggles
    Hi Firsttimemama2014 , If they are present , you may be able to see them for yourself in a bright light , also good luck for Tuesday you are very brave to have an endoscopy without any sedation, especially with you being pretty scared may I ask why your not getting sedation
  6. jiggles
    Hi Firsttimemama2014 , I understand you don't have bad breath , but because this only happens when you exhale with your mouth closed , (no matter where the odour is coming from ) it seems your breath is carrying it up to your nose , so if were tonsil stones you wouldn't have to worry about looking any deeper , also they can be...
  7. jiggles
    Hi , Ftmama , it could be common tonsil stones , it seems to fit what you are describing , perhaps google tonsil stones and see if that could be the problem , because sometimes they can hide in the crypts inside the tonsils , you can buy something to flush them out leaving your breath smelling fresh again
  8. jiggles
    Hi spirit-walk , IrishHeart is right you must Eat , and not just rice , eat everything you can tolerate ( gluten free of course ) When we are trying to gain back our health and strength "Eating" is our number one priority Unless something you are eating is upsetting your digestive system and is making you sick , then elimination diets...
  9. jiggles
    Hello spirit-walk , just wanted to say that I too had an issue with popping joints too , and also terrible muscle stiffness , I found through a process of elimination that too much fruit and vegetables were the problem for me , thanks to IrishHeart histamine foods list , It dawned on me that it was histamine related , and maybe oxalate related...
  10. jiggles
    Hi AnnaChristine , I hope you don't mind me suggesting something , to help you find out what's bothering you , You need to stop all those supplements , Keep it simple Start again using good whole foods to heal , boiled white rice, fish, meat veggies fruits ,a little gluten-free bread too if it agrees , Then get all your vitamin and mineral...
  11. jiggles
    Hi, it's great news that your doctor is sending you to the Celiac centre , it's really good to feel there is more help out there , there is a very good post on here about starting to feel better , sorry I can't remember who the OP was .... It starts with waking up one day feeling ok, and you notice that you have had a good day , then you...
  12. jiggles
    Hi , You could try going grain free and just stick to "whole foods " meats veggies and fruits ect , This can help us to heal faster and feel better again , I had to avoid all dairy at first too, Then at a later date you could try adding in some factory made gluten free foods and baked goods to see how well you tolerate them , Some people can...
  13. jiggles
    I would cut out ALL factory produced foods , and that includes the flours you are using , Just stick to "whole foods " of one ingredient , which I see you are doing already , but your nut flours are factory produced , and dilitantesteph is right about low levels of gluten being present in factory produced flour , as they are allowed 20 parts...
  14. jiggles
    Hello AnnaChristine, sorry to hear you are still feeling poorly, I use enzymedica Digest , I notice you are already eating nuts and nuts can be very hard to digest at the best of times, I found nuts gave me terribly bad indigestion and bloating and all the symptoms you mention, so I cut them out completely, I do hope to re introduce them at...
  15. jiggles
    Hi again , when I couldn't get up from the sofa , I drank the broth from the chicken , please ask someone to boil up a chicken for you so you can at least drink the broth , also your dietician can they prescribe food drinks for you whilst you cannot eat , I had some prescribed and they did help , plenty of water and the chicken broth will help until...
  16. jiggles
    Hello motheroftwins , I am so sorry to see your still having a rough time of it , it did take me over a year to stop losing weight , my gastroenterologist and dietician were baffled , It was so frustrating , and it's only recently that I managed to put a tiny bit on Can the dietician find you any suitable drink supplements to help you at this time...
  17. jiggles
    Hi , you say it occurs a few times a week , I think notme! may have something and that a food or drink may the culprit , something that you are having few times a week , just a thought .... coconut can have a laxative effect on some people , I don't know much about Kombucha except that it's very beneficial for good bacteria, although I did read you...
  18. jiggles
    Hi just thought I would let you know what worked for me too I tried spa tone it's a natural iron source from Welsh well water, it comes in sachets , It got my iron levels up really well without upsetting an already sensitive digestive system I think it may be a different name in the USA tho , Hope you start to feel better soon Open Original...
  19. jiggles
    Hi I am so glad I saw this , since IrishHeart Squirmy and ItchyAbby mentioned Dog food I noticed the treats I was feeding him were full of gluten , I stopped that and the Iodised salt too , and we are now gluten free in our house after hubs read the posts , I have been using a muscle rub with ibuprofen and asprin in , I think that may be NSAIDs too...
  20. jiggles
    What a great dermatologist you have, no one has even suggested a biopsy for me at all , I think I may have to pay a private dermatologist to get a biopsy, but I wouldn't know where to start , Good luck with your biopsy, hope you get some answers, Please let us know how you get on
  21. jiggles
    Oooo ItchyAbby it really does look very red and angry, no wonder you say its pure misery it must drive you absolutely nuts, at the moment mine are on the back of my legs and over my derrière too so I can't really photo those, but they are at that sore stage now, The Gastro Doctor wanted to have a look at my rash, but when I told him It was covering ...
  22. jiggles
    Hi here is a picture of my rash too, it's insanely itchy and gets very sore after scratching , it takes months for it to go away but it leaves purplish marks which turn light brown http://s832.photobucket.com/user/Itchytoo/media/image_zps5997158d.webp.html?sort=3&o=1
  23. jiggles
    I thought that too BellVie , but I have been amazed at how things have changed, it's a crazy thing , once I went gluten free and started to feel a bit better, I then found I would react to some of the foods I used to be ok with , but I was then able to re introduce them at a later date like a lot of others on here , I followed their advice and it...
  24. jiggles
    Hello BelleVie , I was intolerance tested and was told that I had a very strong reaction to casien and was recommended to cut all dairy out, I did cut all dairy out for many years and it helped quite lot , but then the specialist hospital dietician told me to re introduce dairy , as she thought casien intolerance was quite rare and the tests may have...
  25. jiggles
    Oh I forgot all about sea bass thanks for reminding me IrishHeart, mango salsa, never tried that before "Notme!" Did you get to see the little mouse on the piano yet and Is it still playing by itself ? The piano I mean ha ha, hey that is a bit spooky, I think I would be too scared to check it out For dinner tonight I had lentil and bacon soup...
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